At our wit's end

I usually post on the hepatitis forum for my husband who has liver disease. However, several years ago he started having epileptic seizures (generalized according to EEG), which were under control with Topamax for several years until recently. At this point, he is seizing almost every day, increase in meds. He was re-admitted last June for monitoring in the EMU and it was found that he has both epileptic seizures and non-epileptic seizures. He did well for several months until the last few months. In the last month he has been seizing every day almost, several trips to the hospital and ER because he keeps falling. This is getting to be more than I can handle and I want to arm myself with as much information as I can so I can have a logical conversation with his neurologist

I have often wondered that. He had another seizure last night resulting in an ER trip because his head went through the drywall on our wall! He has been admitted to an EEG Monitoring Unit. They did a CT and no brain bleed, but his mental status has been definitely altered today. Hoping for some answers

Thanks, Greg! When he first started the seizures, they had him on Dilantin, and it was not effective for him. They have also tried Keppra and a few others. The Topamax worked for a while, but now we are having severe cognitive issues due to the medication. I had a wonderful conversation with the neurologist today and he has my husband hooked up to the video eeg monitoring, and he is also going to reduce the topamax and add a 2nd medication to see if that will help with the cognitive issues. He is also going to have PT and OT assess him, and if the seizures are the non epileptic we are going to come up with a plan for him to go to a rehabilitation facility short term or something until he learns some coping skills. It is just not safe for him to be home with him seizing every day and it is more than I can handle by myself