HealingWell
Search Close Search
☰

Need to vent

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/2/2008 1:33 AM (GMT 0)
I was diagnosed in April of this year. I have been in PT for my neck and back which are usually the most disabiling pain I have. The pain got unbearable, and I could barely walk on my right hip the past few weeks. I got in to see my rheumy this week, she gave me a cortisone shot in my hip for bursitis, and rx'd Lyrica for fibro. Two days later I got up off my toilet and tore a tendon in my knee. Earlier this week a woman I provide day care for asked me if I was 90 with all the health problems I have. I am 31 years old. Two years ago I could run 5 miles on the eliptical at the gym, and now ... I am falling apart.  Not to mention my memory is getting horrible, I can no longer spell, I sometimes lose the words that are trying to come out of my mouth, I have been unsuccessfully trying to get pregnant for 2 years, and I am tired of being sick and tired. I am sorry but I needed to vent where I am understood. I don't mean to be stuck in a pity party, but I am fustrated. On the bright side of things the Lyrica the doctor put me on is seeming to help.
Posted 8/2/2008 1:59 AM (GMT 0)

Hi Shellsis617,

Sometimes things are sucky and it's okay to say so.  And sometimes people unintentionally tease in a way that hurts because they don't know what a sensitive nerve they are hitting.  I HATE when people ask me if I'm 90 years old and my all time favorite "Man you get sick a lot!  You should take a multivitamin."  Yeah, bite me.  You should see the vitamins, minerals, supplements, and other meds lined up on the counter.  Duh-huh, yes I take vitamins.  And then there are opinions and judgements about that--"You're too young to be taking all that stuff" and blah blah blah.  I think it's so irritating because it's true and it hurts.  I am too young and I do get sick a lot.  When I think back to life before I got sick, I realize what I have lost.  I grieve that loss.  I wish people would be more sensitive and supportive and less judgemental.  I have always gotten every cold that goes around but last year I got mono and my immune system was depressed like never before and I kept catching virus after virus after virus.  When people commented on it, they sounded accusatory like it was my fault.  I even said to someone once, "Yeah you're right.  I really should wash my hands before I pick my nose."  Anyway, I hear your frustration.  It is extremely frustrating.  I'm glad you're finding some relief with the Lyrica.  What did your doctor say about trying to concieve while on it?  I'm going to ask a dumb question but I assume your thyroid was checked?  Just checking since that is one of the big reasons for difficulty concieving.  Hang in there and keep positive as much as you can.  I don't know how long you were sick before you were diagnosed but three months is not all that long.  This disease is a bit like a rollercoaster with its ups and downs.  There are good days and bad days and different treatments that work wonders for some and adversely affect others.  It is very individualized and a lot of the figuring out of things will be up to you because you know your symptoms best.  Look forward to the good days and treasure every day.  You are now on the road to a healthier you.

Holly

Posted 8/2/2008 2:10 AM (GMT 0)
Hi Shellsis and welcome. I'm sorry your having such a rough time. Is it hot and humid where you are??? This summer has been hard on a lot of us. I know here in Illinois the weather has been crazy this year.

 

Is the PT helping your neck and back??? This is weird but I met with a physical therapist and she had me turn my head to the left and she pushed down on it, I had a sharp pain in my left hip. It is really strange how our bodies are all connected.

 

I just got off the phone with my future DIL, she is 30 and has RA and has been in a lot of pain. This DD is not fair and there is so many aspects to it you never know what to expect from one day to the next.

 

Are you using moist heat and doing stretches??? If you haven't read the second thread on the first page, Fibro 101, take time to read it. There is a lot of info in it.

 

We are here for you when you need to vent.

Get better.

 

luv and hugs

Marlee

Posted 8/2/2008 11:56 AM (GMT 0)
Shellsis,

Welcome and I'm glad you decided to vent. We have all been there with those darn statements tht people make. I have had fibro since I was 28, (I'm not 56) , so I have heard my share of all those people who say such things. My family in the beginning, wasn't very supportive, because they didn't understand. My in laws never got it, but that's ok, they were the sweetest people on earth anyway. My husband had a co worker who had fibro very badly and my husband got his fibro 101 through her. She was always citing websites for him to read up on the disease and telling him of her latest doctor's visit. She made my work easier. He is the most supportive person now. I think God for him.

well I didn't mean to ramble, just wanted to tell you that you are not alone . I am here for you as well as the rest of the forum. Don't forget. And, vent anytime, that's what this site is here for.

God's blessings.

Lindaloo
Posted 8/2/2008 2:48 PM (GMT 0)
Hi, Shellis, and welcome to the fibromyalgia forum!  We have heard all of that and it is painful.  People can be so insensitive.  I can't even remember when I could get out of bed pain-free but I haven't let it stop me from enjoying my life.  Once I came to the realization that I will always have pain, then I could move forward with my life and work around the pain.  Yes, some days are worse than others, but, when I'm having the really bad days, I know that good days are heading my way.  That helps me stay positive.  A positive attitude does help a lot.

 

Holly, I used to catch everything that came down the pike, but , when they came out with Zicam, that has helped me greatly.  I always have Zicam nasal swabs at home and, when I even think I may be getting sick, I'll start using them and it seems to stop sickness in it's tracks 90% of the time!  They will at the least shorten the duration of the illness.  My daughter was sick last month.  It started out as a sore throat and then progressed to her lungs.  She was miserable for a week.  Of course, several days later, I started getting the sore throat.  I immediately started using the Zicam and, within a day, I was fine again.  So, if you haven't tried them, it may be worth it to you.

 

Shellis and Holly, I started using malic acid/magnesium supplements last December and they have really helped me a lot.  I still have pain but not nearly as bad.  I have more energy, too.  I'll bump up the thread about it so you can read it and think about it.

 

Lastly, Shellis, I have problems with my hips and it's the fibro that's doing it...not bursitis.  I had a light massage a few days ago and, when she was working on my back, I could feel it in my hips!  Just like Marlee said, everything is connected!

 

I'm so glad you joined us and I hope to hear more from you soon!

 

Sherrine

Posted 8/2/2008 5:32 PM (GMT 0)
Welcome Shellsis to our family! I'm so sorry you are going through such a rough time right now. And for the insensitive comments some people can make. I had an incident at work not too long ago where my back got hurt. I had a comment thrown my way, "what's wrong with you? Someone just touches you and you break." Yeah, it hurts. But noone can understand what it's like to have these bodies of ours. The hurtful comments come from ignorance, not spite.

Have you been checked for endometriosis for your fertility issues? I think I read somewhere that it is another of those common denominators with fibro; please someone correct me if I'm wrong? We had tried for 4 years to conceive before I got a laparoscopy to check for it. The doctor only found traces, but nevertheless, I got pregnant the next month after they removed it! This also did the trick for #2, and after that I was cured. Good luck, sending baby dust your way.
Posted 8/3/2008 4:13 AM (GMT 0)
Hi Shellsis and welcome-
I too just got diagnosed and had my arthritis flare up in my neck and had to take Prednisone for a week. Then came severe pain all over my body. I go to Physical Therapy too and at first it caused SO much pain afterwards I almost did not go back but I'm glad I did. It is helping and I do feel better.
That's all you needed was a torn tendon in your knee. :( You mentioned the Lyrica seemed to be helping- I hope it keeps getting better for you! GamJill
Posted 8/4/2008 12:06 AM (GMT 0)
Thanks all. Holly I was dx in April, have been sick since I was 14. Long time to wait for help. I have made a choice to continue meds up until pregnancy, because I can't spend everyday miserable waiting after the past 2 have been so bad. I will be stopping Lyrica and Celaxa under Dr directions if and when I get pregnant. I have been reluctant to go back for consultation on infertility issue since the Dr that delivered my youngest brother told me to have my husbands sperm tested and come back. eyes I have to find a new OB/Gyn where I live now. Physical therapy helps alot, I get a very light version of it that utilizes, nerve stimulation therapy. I wish it could fix everything. The knee is sidetracking me now, and that fustrates me. I had a laugh today at church today so.... I guess I am out of my funk.
Posted 8/4/2008 4:51 PM (GMT 0)
Shell, I heard a doctor today say that if you want to get pregnant, lose weight if you need too, and stay away from caffeine and alcohol.  He is a OB/GYN.  Just a thought...

 

Sherrine

✚ New Topic ✚ Reply