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Fibromyalgia
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Posted 8/8/2008 2:35 AM (GMT 0)
eyes  I know there are "good days" and days I feel like I've been run over by a freight train.  I know my activity level and exercise play a major impact in this as well as stress.  I have learned how to control my stress factors very well.  However, I never am totally pain free without my tramadol.  Is this pretty common?  I can live with it I suppose as long as I have the tramadol but I just want to make sure I am not "masking" anything with the pain relievers.  Also, fatigue,joint pain & stiffness is part of the Crohn's as well.  So....I have problems sometimes telling what is what.  What is your input?
Posted 8/8/2008 5:16 AM (GMT 0)

I do not have chrohns so I cant comment on that but I know that My rheumatolgist keep telling me I have arthritus no because of tests results but because of my symptoms, but I to do not know what is the fibro and even if I do have arthritus which is a problem because he wants me to take medications I feel make me worse.  I always hear of flare ups but to me I have good days and not so good days and there is usually a reason for the bad days but I never really refer to them as flare ups as people seem to imply they go for long periods in between flare ups.  So for me there is just good days and bad days I am never sure that some of the things that go wrong with me are fibro or not and I worry that one day my doc will say its just fibro when it may not be.  If ever in doubt I would see another doc for sep things and not mentiion fibro.  I am on an opioid patch for pain and I hate the idea that it is just masking it.  I like to think the longer Im on it the better i am getting and one day will just be right again. doesnt really answer your question really though sorry.  Hope something in my reply may of been of help to you

Posted 8/8/2008 1:55 PM (GMT 0)
Your never pain free with fibro. Some days you may have mild pain and some days you may feel like you have been hit by a train but the pain is always there. To me a flare is when it gets so bad it stops you from doing your normal everyday things. I had a really bad flare the first two weeks of June of burning searing pain all over my body. It felt like my body was fighting off a very bad bug. A feeling of not being well.

 

After my first flare that finally got me a dx of fibro my pain level stayed pretty consistant until last Nov and I got a break from it. Then the end of Feb the pain came back and was worse. After the flare in June the pain has been worse. So for me everytime I have a flare the pain level goes up a notch. I'm still better off than most cause I only take 4000 mg of tylenol a day with a tramadol when needed.

 

luv and hugs

Marlee

Posted 8/8/2008 3:37 PM (GMT 0)
I do have Crohn's and I do know what you are talking about.  Many times the doctors say it "Crohn's arthritis" that I'm feeling.  The fact is, Broomhilda, they don't know what is going on.  And, to me, pain is pain, no matter where it is coming from.  I don't dwell on what is causing it because they really can't do any more than what they are doing for me anyway! 

 

But, I do actually think it is coming from fibromyalgia.  I will have joint areas really hurting for quite some time and then they get better and disappear.  I don't think that happens with arthritis because the joint is being damaged.  Not so with fibro, thank goodness!  I have had fingers and toes just kill me but then it goes away.  I have a toe right now that is so swollen and painful and it is difficult to walk on the foot (but I still do ;)).  I had the same thing with another toe two months ago.  The other toe is now fine and this one is hurting.  I know it will eventually go away.

 

And, no, I have never been without pain since fibro.  I don't even remember what it is like to be pain-free, but I can get around and enjoy life.  I just have to do a little more planning!  yeah

 

Sherrine

Posted 8/8/2008 9:10 PM (GMT 0)
Thanks Sherrine...I think you pretty much clarified it for me. I know the Fibro has no inflammation and the Crohns can cause inflammation for some....any darn well it pleases. I feel over the last couple of weeks the beginning of that nagging pelvic pain and searing shoots of pain up my torso. That pain was all too prevalent prior to my resection 2 years ago. I was hoping I'd be one of the lucky ones and make it at least 5-8 years before another surgery but it's not looking to optomistic right now is it. I have follow up with my Rhemy this month and my GI early Sept. We'll see.
Posted 8/8/2008 9:50 PM (GMT 0)
Happy Friday yeah

Hello to all my friends out there, I have had a very crappy day today i am so glad that i am home. one of my friends 4 month old granddaughter died in her sleep last night and i can`t get that out of my mined so i should not feel that i had it so bad but on top of all this i feel sick and my boss is on the top of my list has been all week, it was a good thing that work came to an end when it did or the whole place would have seen this grandma explode and let me tell you it would not be pretty. mad

Now that said, broomhilda what is Crohn`s? i have heared of the name but don`t know what it is?

I always wonder why when we have things like Chron`s or Fibro etc. whe do we have to have other painful things with it? and then to top it off you always have these others that have nothing and they think that you are faking it.  I am getting the feeling i am either tired or i am down i guess i had better go find a laugh somewhere.  Have a better day than me ok.

 

Posted 8/9/2008 4:19 AM (GMT 0)
MamaKitty- That IS horrible news. I'll never be able to wrap my brain around how a child is put on this earth and wisped away so soon. My heart goes out to you and your friend!

Now for that laugh...I'm currently on the grandma waiting list myself for something that is NOT 4 legged, hairy, drools, barks or meows! My son married last year, bought a house this year....and the wait is on.

Crohns, I'm so glad you asked! First let me say that people with Fibro are not at risk for developing it so I won't scare the beejeebies out of anyone. It is a chronic, potenially life threatning disease that is auto-immune related. To explain it the easiest way possible. Most crohnnie's lack a protein that inhibits proper digestion, causes malnutrition from lack of absorbtion of nutrients from our food and causes an overgrowth of bacteria in the digestive tract (most commonly the small intestines). Although, Crohns can be present from mouth to anus. This bacteria eats through the intestinal walls or any other tissue in the digestive tract. Our immune systems then go into overdrive and further attack the affected tissue. We are most famous for severe infections, diarreha up to 20 times a day (no kidding), bloody stools, sometimes constipation, nausea, vomiting, intestinal strictures and obstructions. There is no cure for it and each patient responds differently to various treatments of symptoms. It also causes a host of secondary auto immune system diseases, psorasis, arthritis, osteopourous, ostopenia,drug induced diabeties and lupus and the list goes on. Most of us are on some form of strong biological, maintenace and/or heavy steriods to control the constant inflammation. And I won't even get into the various foods we can or can not eat on any given day. Sometimes water doesn't stay with us longer than 1/2 hour. Sometimes we can lose 30 lbs in two weeks. Sometimes we just have to bite the bullet and have the diseased intestines and/or parts surgically removed every 5-8 years depending on the severity. Well, that's about the jest of it. So when you say you've had a "crappy" day...I can totally relate! Thanks for asking! Most people are familiar with IBS or Ulcerative Colitis. The is a huge difference between irritable bowel syndrome (IBS) and Crohns which is (IBD) irritable bowel DISEASE. I'm always willing to educate people and answer questions about this on the Crohns board here @ healingwell!
Posted 8/9/2008 3:05 PM (GMT 0)
nono  Shame on me for feeling so crappy, Thank You for telling me what Crohn`s is wow that is alot to carry. One day i was talking to my doctor and i told him that i always remind myself that someone else has it worse than me and he said."Never belittle what you have, no one else would want what you have, and you would not want what they have", and you know what? I still feel that there is always some one else that has it worse.(ha).

I do have to say that it is such a nice day out today that i should try and get out for awhile if i could get rid of this dizzyspell, i don`tknow if it is from my pills or my being blond,(lol), when i get it durning the week and have to call into work i tell that to my boss, i say that i have my blond disease, meaning i am dizzy.

Well, hope today is better than yesterday.

Posted 8/10/2008 3:32 AM (GMT 0)
Was born blonde, turned a mousy brunette? Still have the blonde moments though (: I get dizzy alot too. My guess would be your Methotrexate. Scary when I'm on a ladder this week attempting to paint a bathroom. Hall & Foyer took me 3 months to complete...wonder how long this will take!

My common response to the "How are you today"? question....."Still Standing, to my own amazement"!

Hope you are having a less crappy day...I am!
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