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Fibro and immune deficiency

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Posted 9/30/2008 10:10 PM (GMT 0)
Hi Everyone: I have seen ads for clinics that treat fibromyalgia and immune dysfuntion. I have immune deficiency that shows up in my lab work, all my IgGs are out of range.(low) Does anyone here have that with their FM? Six months of injections only slightly helped. Thanks- D
Posted 9/30/2008 10:36 PM (GMT 0)
Hi Dowa! Yes, I have all of that fun stuff of immune problems and positive ANA as well as cebv and cfs. I had about 3 months worth of glutathion/atp injections that seemed to make a world of difference.....I felt like a new person pretty much during that whole time. The rheumy took me off of the injections on my last visit. However, I'm still taking atp pills but since the injections ended, I've slid almost all the way back to what I felt like before starting them. The cebv seems more and more likely to be the main trigger for my fibro and cfs as the numbers related to active Epstein-Barr have remained high for many months and only slightly improved during the injection period. But, even with only slight improvement, I felt sooooooo much better than I do right now. I see the rheumy in October (thank God) and I'm kinda hoping that once I tell her about the merry-go-round starting so dramatically again, she'll put me back on the injections for a while to see if I IMPROVE dramatically again!

Gentlest of hugs,
John
Posted 10/1/2008 1:28 AM (GMT 0)

Thanks John for your reply. What is atp? I am familiar with glutathione but not atp. My injections were gamma globulin not glutathione. What did you do to increase your IgG levels?? D

Posted 10/4/2008 1:56 AM (GMT 0)
Hey - just started glutathione injections after a year of
abject misery...They do seem to be helping turn
I have gone back to work - I had just gotten my GP
to fill in all the paperwork for disability claims!
I have a WONDERFUL immunologist here in North Jersey
who is treating me for an incredibly reasonable rate
(outside insurance as they won't cover this)

You can also look into trying NADH
and Whey Protein

Both are supposed to work on similar immune
mechanisms.

I too have a Pos ANA and strange immune titers
like a titer for Sclera derma yet no symptoms of it.
And IGG titers for CMV, EBV, HHV6, Parvo,

Post Edited (Enochroot) : 10/3/2008 7:59:38 PM (GMT-6)

Posted 10/4/2008 10:10 AM (GMT 0)
Enochroot,

What is people parvo. I have heard of dogs getting parvo. But it was a while back when I heard about people getting it. What are the symptoms? How do they know that you have it?

Thanks in advance,

Hugs Karen
Posted 10/4/2008 6:16 PM (GMT 0)
http://www.immunesupport.com/library/bulletinarticle.cfm?id=4874&PROD=N0237

Check this link out :-)

 

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