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Posted 10/28/2008 1:42 PM (GMT 0)
cry  hi everyone new to forum, i have fibro symptos for eight years now . It started with cheast pain so bad i thought i was having a heart attack .I want to many hospitals , doctors and specialists. I was finally told this year that i have fibromyalgia, this year my symptoms have got much worse the pain in my joints is so bad i just spend most of my time crying in pain. The pain in my wrists feel like i sprained them ,the pain in my feet and toes is so bad. Also i suffer from really cold feet the go blue with the cold,i have tried every pain killer which do not help. My specialist has put me on Lyrica ,he told me it could take six months to a year to see any results. He also said i have to excerise which is so hard because i am in so much pain, can anyone tell me about the back pain. It is so chronic i am losing my mind ,the pain is in my lower back and in my spine i cannot sleep as i have to keep turning all the time and the pain goes down my legs. Please if anyone has any advise or could help me in any way please please let me know,thank you.
Posted 10/28/2008 1:51 PM (GMT 0)
My niece has many of these same symptoms and they are testing her for Raynauds.  I guess the cold feet and cold hands is what tipped the doc off.  I don't know much else about it, but it might be worth checking in to
Posted 10/28/2008 2:21 PM (GMT 0)
Thank you for your reply i will ask my doc , I am living in Ireland so it is great to hear any advice from people going through the same things i am so please please write again . Khalin.
Posted 10/28/2008 2:40 PM (GMT 0)
Hi Khalin and welcome. Have you had any test done on your back to make sure there is nothing else going on but fibro??? We can't always blame fibro for all our pain. I have osteoarthritis that is worse than the fibro pain. The pain is not really in the joints with fibro but the muscles, tendons and ligaments which makes it feel like it is the joints. I've started having wrist pain which I had never had before. They say fibro does not progress but it sure has for me.

 

Read the fibro 101 thread, second on first page, it contains a lot of helpful info. Read and ask questions and we are here for you.

 

Moist heat of any kind is good for fibro. Some use malic acid/magnesium combo and have good luck with it. I use a TENS unit when the pain is really bad to interrupt the pain signals to the brain.

 

luv and hugs

Marlee

Posted 10/28/2008 3:04 PM (GMT 0)
Hi Khalin,

 

I can so relate to your symptoms!  I get the cold blue fingers and toes too.  It is Raynauds Phenomenon. Google that one... I also have lupus. The Raynauds is caused by both diseases.  Extra care in keeping them warm is important.

 

I also have the lower back and spine, and neck issues.  It's hideous.  I also have a horrible time sleeping. I wake up every time I need to roll over because the pain is so bad.  I don't sleep very well because I'm awake so much. I wish I had some ideas for you Khalin. I'm losing my mind over all the pain too.... I think you and I can relate very well!  I am using a memory foam mattress cover which helps the lower back issues. Gives more support in that area.  They're inexpensive to buy. Mine is about 3 inches thick.

 

I find that prolonged sitting makes everything so much worse.  So I get up and move around for a few minutes every hour.  Be careful with the exercise.  If all you can handle is a mild 5 minute routine, that's good.  Anything is better than nothing.  But doing too much will flare things up.  Listen to your body. If it's saying STOP!, then stop.  I can only do 5 minutes on my exercise bike these days.  But it's better than nothing!

 

Are you taking anything for pain?  I'm not and it sucks.... I'm seeing my doctor this afternoon to talk about it. Can't live like this anymore....I wish you well, and I hope we can talk more.

 

Ginny

 

 

Posted 10/28/2008 5:09 PM (GMT 0)
Welcome Khalin. . . I'm new on here also, and everyone has been really nice and helpful. . . I wish you the best of luck for your pain to subside :)
Sam
Posted 10/28/2008 7:15 PM (GMT 0)
Khalin, Welcome! I may have some good news for you. I started on Lyrica about a year ago. It helped me sleep better right away. That has been the biggest help, but I think it has also lessened some of my pain. At least when the weather is warmer. Cold weather is really hard on my joints--my hands and my knees mostly. I don't have Raynauds, but the cold does cause pain. Good luck. Diane
Posted 10/28/2008 7:28 PM (GMT 0)
Hi, Khalin, and welcome!  I'm so sorry that you are having so much pain.  I think I'd be checked for Raynaud's also.  I really don't know anything about that illnesses but maybe they have some medications that could help you.

 

I see that Marlee directed you to the Fibro 101 thread.  There is a lot of info in that and also in back posts.  Learn all you can because that will help you cope with the pain.

 

Moist heat is great.  Hot showers or baths feel wonderful on all those muscles and joints.  Also rice bags are great.  There is a product called Bed Buddy here in the States and it's sold at Walgreens.  If you can't find one there, try Googling Bed Buddy and see if you can order one on line.  They are filled with beans, I think, and you put it in the microwave and heat it and it gives off moist heat.  You also can take a tube sock, fill it 2/3's full of raw long grain white rice (not the instant kind) and tie a knot on the end.  There you have a mini rice bag that can be microwaved!

 

On the Fibro 101 thread there is a link to great stretching exercises.  There are done sitting down and they really do help.  You do need to keep moving.  Walking is a good exercise for fibro patients.  As you move the pain should lessen because you are stretching the muscles so they aren't stiffening up on you. 

 

Also in the fibro 101 thread is a link all about malic acid/magnesium supplements.  I started these last December and they have helped me a lot with pain and fatigue.  They don't work for everyone but many members have had good success with them.  Read about them and see what you think. 

 

I'm glad you joined us.  We have a good group of people that have wonderful ideas to help you live a full and enjoyable life with fibromyalgia.  I hope to hear more from you soon!

 

Sherrine

Posted 10/28/2008 9:59 PM (GMT 0)
Pain sucks... Try doing what Sherrine has suggested...

Sometimes, it helps... sometimes, it doesn't... :(... Wish we could just magically take our pains away...
Posted 10/29/2008 12:41 PM (GMT 0)
Thank you everyone for your replys it makes me feel so much better when i hear from you.My family are great but it is so hard for them to really understand what i am going through . I have five children ranging in age from fourteen years to four years , I try my best not to show them that I am in pain. So thank you again . KHALIN
Posted 10/30/2008 5:35 AM (GMT 0)
Ask for a muscle relaxant im sure it will make a difference,   sue2z :-) :-) :-)
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