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Posted 11/1/2008 6:06 PM (GMT 0)

shakehead  I was just told I have fibromyalgia Oct.30 2008, I am scared and don't know what to expect or what to do. I have been on the internet and I am so confused. Can anybody help me.

                                                            big bird

Posted 11/1/2008 6:34 PM (GMT 0)
Hi Big Bird

 

Welcome to the forum hun...this is a great place with alot of great people.  Make sure you read the Fibromyalgia 101 thread.  There is a bunch of good information in it that will help you understand more. 

 

I was actually happy when I was finally diagnosed with this.  That meant I didn't have anything else bad wrong with me.  I can understand being scared though.  I am scared that it is going to keep getting worse.  Right now I can manage my burning pain with Lyrica and the other pains Tylenol and heat takes care of.  I still work 40-50 hours a week...on my feet all day.  I do consider myself really lucky. 

 

You will have good days and bad days...but you have to learn (which I am still trying to do) how to limit yourself on the good days so that the bad days won't be horrible days. shakehead

 

Ask questions...lot's of them...that's what I did...everyone here especially the moderators are the best at answering the questions.  And they will be honest and up front with you. 

 

Take care hun

 

~Missy~

Posted 11/1/2008 6:59 PM (GMT 0)
Hi Big Bird,

Welcome to the HealingWell fibromyalgia forum. You will find that this is a really good place to come and ask questions and read. There is a lot of information in the fibro101 thread (as stated by Missy). It is the second thread on the first page. I think that you will find that you are not alone in this. We have all been there.

As we say, fibromyalgia might be a life sentence, but it is not a death sentence. We learn that we might have fibro, but it doesn't have us. We have eachother to lean on, and on bad days we are all there for eachother.

As Missy said, try not to over do it on the good days. You will learn to pace yourself.

Has your doctor put you on any medications for fibro? Some of us need prescription medications where others are able to control it with tylenol or ibuprophen. Some of us use supplemennts, such as a malic acid/magnesium supplement. Everybody is different, but we are all in the same boat. So post about whatever you would like, answer threads or start your own. We also have an introduction thread called "Who's who in the land of fibrofog". If you would like, you could tell us a little about yourself there, or you could do it here. Either way, we are here for you and will help you in any way that we can.

Have a wonderful painfree day.

Hugs, Karen
Posted 11/1/2008 7:04 PM (GMT 0)
Hi, Big Bird, and welcome to the fibromyalgia forum!  There is nothing to be frightened about.  Yes, you can have pain and fatigue with fibromyalgia but you don't die from it.  You will learn how to control the pain and still have an enjoyable life.  I know I have and I've had fibro for 21 years.

 

The fear will cause anxiety and depression which, in turn, will make the pain worse.  So, what you need to do is arm yourself with knowledge about fibromyalgia.  You have come to a great place for that!  We have wonderful members on here that have great ideas to help you learn how to live a full and enjoyable life with fibro.  AND, a big plus is we all REALLY do care about each other.

 

As Missy said, start out with reading the Fibro 101 thread.  There is a heap of information in there.  Also, back posts have a world of information in them, too.  Don't hesitate to ask questions, either.  We are here to help you.  I'm sure you will have more questions as you start to read about fibro.  Meanwhile, I'm so glad you joined us and I hope to hear more from you soon!

 

Sherrine

Posted 11/1/2008 7:14 PM (GMT 0)
Thank you Missy and Karen for the support. My Doctor has me on Zanaflex and Diclofenac right now until she gets my blood tests back on Monday.
I am 48 years old will be 49 next week married and 3 grown sons I live in Indiana and I am superviser at a day care my little ones are from different countrys. I love what I do. I am doing online Courses for my Associate Dgree in Early Child hood development.

big bird
Posted 11/1/2008 8:11 PM (GMT 0)
Wow BigBird,

You sure have a lot going on. That is good, stay busy and try not to think about the fibro. Except when you come here of course. But throw yourself into your job and your online courses. They will keep your mind busy.

I am so glad that you have found us and look forward in hearing more from you.

Hugs, Karen
Posted 11/1/2008 10:36 PM (GMT 0)

Welcome BigBird!

I'm so sorry that you are scared.  There is so much to learn about this disorder but I promise if you stick around here you will begin to realize that everything will be ok.  I went for two years, after my diagnoses, without much information and not a whole lot of support until I found this forum.  I have learned so much here and feel so much better about all of the things I could not explain, seems we call have a lot in common.  You will also find support with all of these wonderful people because they know what you are going through and they will not judge you.  So stick around and things will be ok wink .

Meggie

Posted 11/2/2008 3:49 PM (GMT 0)
Thanks everyone who has written me back I don't fill so alone now I try to talk to my husband but he seems to close his ears at this time.

big bird
Posted 11/3/2008 11:00 AM (GMT 0)
I'm scared too, bb.
pamela
Posted 11/4/2008 7:08 AM (GMT 0)
I am afraid all of the time, being scared has become a part of me.    sue2z

Posted 11/4/2008 11:35 AM (GMT 0)
hi big bird...
you sound alot like me - I'm 51 - was diagnosed when I was 49. I live in Ohio (were neighbors!) and I too have 3 grown sons (well...the third one is 17 but he is 6'3" and THINKS he's all grown up) I am also in education - I teach 6th grade - and like you -I love it! Loving what you do in life will really help you to deal with fibro. Focus on the joy you find working with the kids and on the good days you will find yourself forgetting you even have it. Its true - on the bad days you might really just wish you could go home and crawl in to a tub of hot water and disappear...but hang in there and know that the good days will come again. As far as your hubby - I have the same problem. He still hasn't figured out that I can't do everything I used to do and he gets frustrated. Keep the lines of communication open as much as possible and let him read some of the info you find on this forum and on the internet in general. Hopefully, he'll come around.
Take care of yourself!
Jenny
Posted 11/4/2008 2:09 PM (GMT 0)

Hi big bird and Welcome!

You sound just like me six short months ago. I was so scared- and thought my life was over! Literally. I ended up with depression and was truly unable to function. Between the depression and the pain it was almost unbearable. Now I can sit here, writing this to you and tell you that life is "good" again and that we can live with fibro- just in a different way than what we are used to.

The most important thing I have learned is you are not ALONE! This wonderful support group played the biggest part on where I am today. They were my strength when I had none.

I also read on fibro until my eyes were crossing- and still continue to learn. Keep posting and in time things will get better- I promise!

Nice to meet you!

GamJill  

Posted 11/5/2008 10:50 PM (GMT 0)
Thank you all so much you have really helped me. I started a daily diary and write down how I feel every day. I feel like a drug store My doctor has me on, Requip for restless legs, Bencar High Blood pressure, Synthroid low throid, Diclofenac, lyrica, Zanaflex for the fibromyalgia.

Big Bird
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