Double Post: Fibro Fog/Muscle Relaxer

Okay so for the first half of my post...

about a week ago I was having a really bad couple of days. I had a presentation to give in class - I couldn't give it because I could barely stand up - I ended up sitting outside of the classroom down the hallway crying for the entire class period because I was in so much pain (luckily my professor is amazing and I'm giving the presentation this Tuesday - and my partner is my boyfriend so its not like he's upset about it). Tom (boyfriend) would slip out of class and check on my throughout the class and at one point I was kind of dizzy and things started to get kind of hazy. Tom sat down next to me - I was bent over looking at the floor so all I could see was his shoes - but I knew it was him - it had to be him - but I didn't know. This is going to be hard to explain but I'm going to try. He sat down and put his arm around me - first off he's the only guy in the entire department let alone the class - it had to be Tom. And he's the only guy that would do that with me. But anyway he sat down and it was like I had no idea who was there. It felt like a stranger. I got really scared and frightened (I hate to be touched at all by people I'm not comfortable around or don't know) and I started to get even more upset. I was really confused and it felt like it took forever to look up and at his face. I looked at him and it was as if I didn't even recognize him. I knew I did - somewhere in my head something knew him but it was like I couldn't place him. I'm not sure if I'm describing this right. It happened about a week ago - I didn't want to post this when he could read it - I didn't tell him - I thought it might upset him to know. Anyway - my point is - could this somehow be related to the fibro fog? I was in a lot of pain - I'm guessing that was a factor - I don't know - has anyone experienced anything this disorienting before? It didn't last too long - only a couple of minutes and then it faded and I let him hug me.

Part 2 -
So I went back to my doctor that I'm starting to like less and less - I had like five things to talk to her about - I even had a list - she was in the office with me for a maximum of ...maybe five minutes tops? Anyway she put me on ANOTHER medication - but this time I'm not so pissed off about it. I mean - I was furious at first. I've seen her twice and she's put me on three new meds. Ridiculous in my opinion. Meds aren't always the answer - especially when she doesn't even listen to me. Stop ranting...okay. focus - haha. So - she put me on Amrix - a muscle relaxer - I told her about how I've been waking up in the middle of the night in a lot of pain - chest pain back pain - lots of leg pain all the time - and...well its helped. The only problem is...I was tired before. Now I'm exhausted. I mean, I said I was exhausted before. I don't know what is past exhausted. I was watching a movie this afternoon - passed out - literally just kinda tipped over and fell asleep haha. Classes are even harder now, but the pain is less - that's the important thing right? But its harder to concentrate - I can't even remember my classes sometimes now - I take notes but sometimes they barely make sense. I feel like I'm having to pick between school or my health and I feel like I want to shout out that it isn't fair and some invisible person will hover over me and put their hands on their hips and say "now child life isn't fair."

SO maybe there is a part 3 - this doctor. I told her that my feet have started doing this tingly thing - like when your foot falls asleep then starts to get feeling back - pins and needles feeling. my feet started doing that a couple weeks ago - then my fingers and once or twice my lips did it. I tell my doc and she says something about nerve damage or something being wrong with nerves....says its weird....then says it might have something to do with the fact that i'm a sign language major and i use my hands a lot.

*blank stare*
i'm sorry ma'am I don't sign with my feet.

anyway that was the end of that. i don't think i like her. i'm also very particular but i don't think that's a bad thing when it comes to my health. i've gone to enough doctors - i think the problem is that i'm not taken seriously. i'm 21 - but i know my body - i know whats normal i know what isn't and this weird (yes doc i know its weird you don't have to tell me) tingly sensation isn't good i don't think and i don't think you should mention nerve damage to anyone and then just brush it off and leave the room okay visit over!!!

alright. this post is really long. I'm done. Have a great week everybody!

I know how you feel about having to choose between school and health. I'm 20 and halfway through the semester I decided I couldn't handle it and have had to withdraw. But I fully intend to go back in the spring. I have a list of different doctors I want to go to while I'm home so that I will at least be able to say I tried, even if I go back in the Spring and nothing has changed.

Sometimes you do have to choose, and it was an unimaginably difficult choice for me to make. But I hope that while I am home I can accomplish what I couldn't while I was away at school - I can go to doctors, get massages or acupuncture, walk the dog, and hopefully recover some of the basic functions that have become really hard.

I wish you the best of luck in finding someone who will listen to you. I'm fighting the same battle.

-Sandi

Lee. the tingling could be fibromyalgia.  I get that in my hands sometimes.  I'm not sure what causes it but I think it's because our muscles, tendons, and ligaments are so taut that they can pinch nerves or it could be neurological from fibro.  I'm just guessing here. 

Do you suffer from anxiety?  That, along with the bad fog could maybe have caused that incident in the hallway.  You were so upset and crying to begin with and if you threw anxiety in there that could have made you feel the way you felt.  Again, I'm guessing.  I've never had that happen to me.  But, I have been driving to a store and honestly couldn't remember how to get there.  I tried to think but it was like a blank page up there (brain)!  This went on for a minute or two and then I knew exactly where to go.  It is frightening when things like that happen.

I hope you have a much better day today.

Sherrine 

Hi Leerie-

That would have been scary not recognizing someone you know- I have not had that happen to me, but the "fog" can do some scary things. Last week the fog was so bad, I couldn't even process a thought in my head! Also, get a new DR.!! 5 minutes is not long enough!! Having a good Dr. makes a huge difference! 

I too have tingling in my feet, hands, lip and face. Try not to let it upset you. I also get numbness. I did not have any of this till I got fibro and all my tests come back normal. If you get the tingling in your feet, try to get off of them and it will go away. If I get it in my hands, I stop and just rest them also, even if it is short while.

Let us know how you are doing. GamJill

 

Leeriesan, I wish it wasn't so far for you to drive to the rheumy I found in Pekin. The two visits I have had with him has been great. I have told my GP that I will not deal with these docs that have a set amount of time to spend with a patient so don't send me to any.

 

Anxiety can have some strange symptoms and I'm sure you were having a lot of it in the hall. It would have been nice to have had a doc to listen to you about it.

 

I have chosen to take as little meds as possible for the fibro. I'm on more anti-depressants than anything but I was on them for anxiety before fibro. I do think the amitriptyline helps with the pain.

 

I do think nerves get trapped in the knots in our muscles that cause strange feelings like the tingling.

 

I hope things gets better for you soon, it has to be so hard trying to go to school and dealing with all of this.

 

luv and hugs

Marlee

I read your post, jhawkfan & wanted to ask if a yeast overgrowth problem is detected by a blood test? Also, would you mind giving the name of the book you mentioned? Thank you.....~sande~