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Posted 11/5/2008 7:57 PM (GMT 0)

Good afternoon,

 

I was recently diagnosed (like a couple days ago) with fibromyalgia from my rheumatologist.  I have been seeing him for a couple of years ever since I was diagnosed with Crohn's Disease.  I am actually on the healing well's crohn's blogs as well.  It may sound strange, but finding out I have fibromyalgia actually came as a bit of relief to me.  I have been trying to figure out why all these symptoms were occurring and was beginning to think that none of them were related, that God just hated me and decided to curse me with every disease imaginable.  I was first diagnosed with anemia, then Crohn's, then periodic limb movement disorder (just like RLS but only at night), generalized anxiety disorder, chronic fatigue, obcessive compulsive disorder, inflammatory arthritis, light sensitivity, night sweats, chronic nightmares, possible narcolepsy, sleep apnea, some sort of REM disorder, dry eyes and mouth, a heart valve regurgitation thing, bladder incontinence,and the list goes on and on... At 27, i felt like I was 87 and was really starting to get pissed!   mad

 

My rheumatologist performed the 18 tension point test and I think I had pain in all but 2 of them!  I know that is not an absolute diganostic test, but with all my other ailments, and basically feeling bad all the time, he diagnosed me.  Is it weird to view this as a relief, that all of this pain and suffering is stemming from the same central nervous system dysfunction? 

 

Well, I dont really know what my goal is in writing other than that I want to say thank you for all your helpful and informative posts.  I have read several of the ones listed under Fibromyalgia 101, and am grateful for them.  I am also anxious to just be blessed with the ability to talk with other women who are just like me and feel like every day is a struggle.  I mean, sometimes I just feel like such a complainer!!!

 

Well, thank you for letting me vent a little.  I look forward to hearing from some of you and to continue communication in the future.

 

best,

Katie

smurf ******************************************************************

27 female

Baltimore, MD

Crohn's Disease, Fibromyalgia, Periodic Limb Movement Disorder, Generalized Anxiety Disorder, Sleep Apnea

Posted 11/5/2008 8:09 PM (GMT 0)
Hi, Katie, and welcome!  You have come to a good place to get your questions answered and also get a lot of support. We have wonderful people on this forum that have good ideas on how to live a full and enjoyable life with fibro.  The bonus is that we REALLY do care about each other!  So welcome!  We love getting new members to our fibro family.

 

I have Crohn's too and it used to be my main health concern.  Now it's the fibromyalgia.  But, I have learned how to control the pain and, sometimes, ignore it so I can live my life the way I want to.  A positive attitude and a good sense of humor, especially with the fibrofog, is very beneficial. 

 

I'm glad you found the Fibro 101 thread.  There is a lot of info on that.  Check out the link about the malic acid/magnesium supplements.  I started taking these last December and they have really helped me.  They don't work for everyone but it's worth a shot to help get some relief from pain and fatigue.  These don't take away the pain but it has lessened it for me.  Read all about them in that link and see what you think.

 

Hot showers and moist heat help with fibro, too.  Many use Bed Buddies that  you heat in the microwave that give off moist heat.  I saw some in Walgreens but I'm sure they are sold elsewhere, too.  Gentle stretching exercises found in the Fibro 101 thread are really good, too.  You need to keep moving with fibro.  If you sit or lay too long you will be stiff as a board and the pain will be worse.  Walking is a good exercise, along with water exercises if you have access to a pool.

 

Meanwhile, read back posts and ask questions.  That's what we are here for!  I'm so glad that you joined in and I hope to hear more from you soon.

 

Sherrine

Posted 11/5/2008 9:04 PM (GMT 0)
Hi, Katie :) Nice to meet you. You will meet many nice people on this forum:)
Posted 11/5/2008 9:28 PM (GMT 0)
Hi Katie,

I am so happy that you have come to the fibro forum. I think I would like to reinforce what Sherrine said, KEEP MOVING. If you stop, you get so stiff and a type of rigamortis (sp) will set into your muscles.

I am sure that you will find this a very informative forum. There is always somebody who can relate to you also.

Keep posting,

Hugs, Karen
Posted 11/13/2008 5:46 PM (GMT 0)

Well thank you all for your encouraging remarks.  I am very blessed to know that this site exists and I can just throw questions, comments, concerns to you all and get some real, immediate feedback.  That is just wonderful.

So without any further ado, I am posting another question in today's post entitled, "Fibromyalgia and Physical Therapy".  Please look there and send any responses my way.

Best,
Katie

Posted 11/13/2008 6:09 PM (GMT 0)

Katie,

Welcome to the forum! This is a great place & has helped me so much in the last year. I hope you enjoy your time here!

I also was relieved to finally get diagnosed. After years of pain and so many different symptoms I was beginning to think I would never find out what my problem was. So, I know how you feel.

You will find the people here to be very caring & so helpful. I've learned that I can ask anything and someone will always be along to help me out. Feel free to vent anytime! We all need to do that every once in awhile!! Hugs!

Posted 11/13/2008 6:20 PM (GMT 0)
Hi Katie and welcome. This is a great forum and so helpful don't know what I would do without it.

 

luv and hugs

Marlee

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