progressive or not ?

I have been wanting to ask some of you that have been dealing with this for a number of years if you have found your symptoms worsen at all over the years. I know that Fibro is not supposed to be a progressive condition, but I have read some material that indicates otherwise. could you please share your experiences with me? Thanks! Hope everyone had a good day.

I haven't had FM for a whole year yet, but I definitely think it has gotten worse over that time. I kind of figure that I'm still in an adjustment period though and maybe it'll level out after awhile.

-Sandi

I have had fibro for 21 years and I am a little worse than when I started.  I also agree with Sera...I think it could be autoimmune also.

 

Sherrine

I was dxd five years ago and it stayed pretty much the same til almost 19 months ago when our oldest grandson was killed in Iraq and it has escalated so much since and continues to. I think age, I'm 58, and profound stress plays a role in how fibro affects you. I do believe it loves vulnerable bodies to pray on. Fibro is a bully that kicks you when your down.

 

My rheumy made a reference to fibro and other auto immune disorders and I forgot to ask him if he believes fibro is an auto immune disorder. My memory is about 2 seconds long and if I don't interrupt people and ask a question at the time I forget. I will write that on my list for next visit.

 

It is hard having a disorder that we know so little about, I hope they find answers for us soon.

 

luv and hugs

Marlee

Thanks for your input everyone. My doctor has told me that it is not progressive, but I have been reading otherwise and from what you girls are saying, the material could be accurate. Marlee, so sorry to hear bout your grandson. I just can't imagine. I know that there are many circumstances that contribute to our symptoms such as stress and weather, but I get so frustrated with not knowing what to believe and the lack of medical professionals knowing about our condition. It just makes everything so much worse! By the time most of us get to a doctor that knows what he's doing, we are in so much pain that of course we are depressed!Then there are so many ways to treat it and so many different beliefs about it, that we are lucky if we are treated correctly but we are just so glad someone believes us, we take their word and do what they say. Well, thanks for letting me rant a little. I have done everything my doctor has told me to do, and I am just miserable and I don't know what a flare is, but I guess that is what is happening to me because of the weather. Nothing is helping. I am seeing him again Tuesday and I am ready Iwith a list too! ) because he is not a big believer in pain meds and I am on Tramado and it is just not cutting it. He called in a weeks worth of vicodin which really doesn't help my fibro pain that much so I need something else until things calm down. I am about to jump out of my sking if I could move without pain. Thanks everyone for your input. You guys really help!