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What type of Dr (s) do you see for your fibromyalgia?

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Posted 11/24/2008 8:27 PM (GMT 0)
Do most people here see a rheumy or a fibro specialist or just a general prac?

I'm wondering because I've been seening a rheumy since May but I just don't feel she

is the right one for me. I just called another rheumy in there area to see how they deal with fibro and was told she usually see's people then refers them out to a pain mgmt center.

Posted 11/24/2008 9:04 PM (GMT 0)
Well as far as I know, there aren't any fibro specialists. Usually rheumatologists are the ones to see for fibro. I saw a rheumy for my diagnosis. He seemed like a good doctor, but after a couple of visits he told me there was no need for me to come in anymore since I wasn't willing to experiment with prescription drugs due to my high sensitivity to them. He told me to call him if I ever changed my mind about drugs.
Posted 11/24/2008 9:55 PM (GMT 0)
Since my Dx in 2003, I have seen GP and 2 rheumy; each rheumy I saw only once. The reason I have not found a rheumy for routine care is I don't feel that I need that level of attention. Since I was Dx, we have moved 5 times, so building a relationship with a GP has been impossible. Each time we get to a new city, I have to start over, and its easier with a GP. I realize that there are many people that have such a horrible case of FM and various atuo-immune diseases that require different levels of care, that are facing much worse challenges than I. I guess my message is- if you don't feel that you are receiving the care you need, don't be afraid to go to the next level. For me, and maybe for others, a large part of my confidence in being able to function as fully as possible is that my Doc listen to me, understand that I am my own health advocate, to take me seriously and provide me with what I need. A large part of getting that from him is that I am always prepared- meds list, questions and new symptoms written so I can remember and give him the answers he needs. We are partners in this and for me it is working.
Posted 11/24/2008 10:16 PM (GMT 0)

   My doctor is a Family Practice physician who has specialized and done research along with writing a couple of books on Fibromyalgia. It probably doesn't matter what type as long as they believe it exists and they have an idea of how to treat it. I  would only recommened that you keep looking until you do feel at ease with whom you are seeing. It is so important to be able to talk openly about your symptoms and your feeling with the person who is treating you. Good  luck to you and keep us all updated.  

      

Posted 11/24/2008 10:21 PM (GMT 0)
I see an MD and it works for me. He does my pain management and I am satisfied with that.

I think what ever works for you is what you should do. If you don't think that your rheumy is working, get another one. Remember that you are hiring them.

I hope that you find the help that you need.

Hugs, Karen
Posted 12/5/2008 4:26 AM (GMT 0)
We have been going to the Fibromyalgia and Fatigue Center since June. They have about 14 offices in the U.S. and you can visit their web at www.fibroandfatigue.com. My daughter is 17 as was diagnosed in Jun after many doctor visits to GP, Rheumy, Children's Diagnostic Group, etc. This is my first time on this sight and I cannot stop crying, as I see what she has to look forward to. I have been crying for the past 3 days because she is getting angry everytime she feels badly and my husband is frustrated because he can't fix this. At this center, you complete a 26 page questionnaire and depending on your symptoms, they draw up to 80 tubes of blood to check your levels of everything. She had 28 tubes drawn. They use natural supplements and some prescription meds for her treatment. She was continually improving from Jun thru Sept and since she was doing so well, the doc took her off some things. Since right after, she has had a constant headache and was sick again. Her immune system is very weak. They are trying to figure out the headaches, but she has had a headache since Oct 2007 when she was in a car accident, which I think triggered the Fibro. The headaches are off and on, but on for the most part.

Genie - Mother of 17 year old honor student with a 4.06gpa, who is wondering if she is going to be able to go to college :(
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