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FLARES, can we discuss what they are please

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Fibromyalgia
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Posted 12/16/2008 8:49 PM (GMT 0)
I have had this fibro for a year, diagnosed at least, and my pain is mostly the same daily. When you say flare what exactly does that mean to you?? Is this a period when the pain is intolerable , worse than normal or what? Personally how long do they normally last and when they are gone are you pain free or just in far less pain?

For me the pain is pretty consistent most of the time; I may have a day here or there that is far better but not often.

Also does your pain tend to move around? I find it may be in the chest, sternum, area at times but generally in my legs and feet. Some days even my hands hurt but that is not as often as my legs. Now most of my major muscles are sore but not in pain.

Trying to figure out if I am in a constant FLARE????

Much obliged, Patsie
Posted 12/16/2008 8:55 PM (GMT 0)
I've had fibro for over 20 years and have not been pain-free since developing it.  I have pain normally.  When I'm in a flare, I have PAIN!  It's a lot worse and makes life quite miserable.  I've had flares last a week and other last several months.  There is no timetable for them.  Also, each person reacts differently with fibro and have different threshholds of pain.  It is too individual to give you an accurate answer.  But, you will know when you are in a flare!

 

Sherrine

Posted 12/16/2008 9:05 PM (GMT 0)
Thank you Sherrine. You explain things so well to those of us trying to understand. I understand what you are saying about pain tolerance. I always had a very high tolerance, subjectively speaking of course. Never needed anesthesia at the dentist but man it is changing. It is as if my nerves have become in over drive, some times I don't even want to be touched. Ever heard of that???
Posted 12/16/2008 9:17 PM (GMT 0)
Yes!  I'm far more sensitive than I used to be.  My children would playfully swat my arm and I would be in tears, thinking I would most definitely have a huge bruise shortly.  Nothing would happen.  I practically have to be anesthasized to have a PAP smear!  I never used to be that way at all.  I do think there is nerve involvement with fibro.  I sure hope they find out what is causing this so we can get the much needed help we need.  Meanwhile, just keep enjoying your life and try to work around the pain.  Hope you feel better soon!

 

Sherrine

Posted 12/16/2008 9:53 PM (GMT 0)
Patsie, mine was the same for the first several years too and I didn't know what a flare was. I sure know now. cry The worse one I have had was the first part of June when I had burning pain all over my body for two weeks. The only thing that I can relate it to is cutting back on the amitriptyline a few weeks before it. Most of the time they only last a day or so when the weather is changing, like this week or when I over do it. Sadly, you will know when you have one.

 

luv and hugs

Marlee

Posted 12/17/2008 8:35 AM (GMT 0)

patsie,

Hello.  My flares usually bring more pain & also burning pain.  My legs & feet will burn & ache.  The pain in my neck & shoulders will intensify.  I also get alot of fog & fatigue as well.  Sometimes a new place will hurt, just for a change of pace, I guess.  Keeps me hopping.  Hugs, Denise

Posted 12/17/2008 3:40 PM (GMT 0)
You will definately know when you are in a flare. You will have much more pain and fatigue. I have been lucky, I haven't had a flare in a long time. I think that the malic acid helps with that. Have you ever tried it? It is something worth checking into. It really does help.

Best wishes for a wonderful day.

Hugs, Karen
Posted 12/17/2008 5:31 PM (GMT 0)
I have had fibro for over 20 years and have not had one day since where I was not in extreme pain. The good days are regular pain fibro days the bad days can't even be properly explained.

I develop severe, burning, aching, shooting, pain all over my body. I get a headache that just build and builds until I am blinded by it. The headache usually lasts for 24 hours or more. the next day I feel so spaced out that I can't think or do anything.

If I start to get one at work i have to leave before it gets too bad or I can't drive. I can tell when it will be a flare up and I feel this sinking feeling because i know what is coming and that I will be in hell.

When I am having these flare ups I can't move, nothing helps the pain.It is so severe that I feel like I am going crazy. it feels like my head will explode... like there is something inside my head ripping its way through my brain. It sometimes feels better for a second when I hit my head against something hard. I can't talk or walk straight. If I need to move I have to crawl. My breathing becomes shallow. I get shaky and sick to my stomach. My hands and legs twitch and sometimes my face twitches too.

This is something I fear. I know they will come and i just don't know when, where or why.
Posted 12/17/2008 6:00 PM (GMT 0)
Dear Tutula, Oh I am so sorry to hear you suffer like that. Assuredly I have not had anything close. It just gave me shivers to read your pain. I stay in chronic pain, rarely ever changing but always there!!

Thank you and God Bless!!!! Patsie
Posted 12/17/2008 7:28 PM (GMT 0)
Thanks for your thoughts. It is pretty bad and I am glad you don't have it like that. I would never wish it on my worst enemy. No....not even her! I don't understand why it is like this. It seems like there is only so much pain my brain should be able to cope with. I don't know how I get through but I HATE it.
Posted 12/18/2008 7:04 AM (GMT 0)
My daily pain is severe. When I have a flare,it is far worse.

Donnaeil
Posted 12/19/2008 5:21 PM (GMT 0)
Yes, pain is definitely worse during a flare! I went one time for 3 mos. with NO pain! I've been keeping a log of everything I eat, exercise, or supplements I take daily. Eating meat & cold, damp air are 2 no-nos for me. Pork is the worst! Drinking a lot of water helps too. Sugar laden drinks will spike a good flare too.
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