ugh, why am I always cold?

Since it started to get cool, and rainy, i am always cold and it sucks,people think Im crazy. It could even be like 16 degrees out, and a fire going in the house, and i still feel cold, im still covered up with a blanket, and again im looked at like im crazy.

This is frustrating let me tell you........

Im sure other people with fibro have had this happen, im assuming that fibromyalgia effects your circulation....

Also too, when i get cold, it takes a long time for me to get warm again, when i do get warm, it happens really strongly but only for a few minutes, and then right back to cold again.

Am I crazy? i must take off and put on my sweater about 50 times a day lol,

thanks again

p.s. Does anyone have or know if there is a link from fibromyalgia to endometriosis, the doc is sending me to a gynocologist, and thinks i may have endometriosis

Kelly

Yeah, I've always been super cold my whole life too. My circulation is very bad, and when it gets really cold during the winter my fingers will go completely numb. My foot even did it one time! They also diagnosed me with Reynauld's Syndrome and I think that's a symptom. Also, are you hypothyroid? Sometimes that can do it too.

I had a recent ovarian cyst removal and the doc thought I might have had endometriosis when I was younger. I've been on birth control for about 7 years continuously though so that might have stopped it from spreading. I also have noticed a lot of FM people have gyno issues. I wouldn't be surprised if there is some sort of correlation between the two.

My doc told me it's the hypothalamus that is screwed up that causes our thermostats to be broken. I can go from freezing with a heater on to turning the fan on in a matter of minutes. I thought I was still having hot flashes but doc said no. I have been dressing in layers for years now. I can't function when I'm cold and it makes me sick when it is too hot.

 

Your doc should check your thyroid when they do routine blood work so I would call and make sure they are.

 

I do get some groin pain on right side sometimes. I have had my appendix removed and my ovaries have dried up nicely ( as my doc put it).

 

luv and hugs

Marlee

I have endometriosis and fibro.  I suggest you do as much research as possible on endo.  You can have a total hysterectomy, and it still most likely will not get rid of all of it.  There is no real cure for endo.  Lupron is another possibility your doctor might give you.  The side effects are like you are in menopause.  My doctor didn't explain anything to me.  He just said this is what we are going to do next.  Screwing around with your hormones makes everything in life worse.  And don't be afraid to get a second opinion before a laparoscopy.  The Endometriosis Association is the leading researcher on endo.  They have three great books out.  I highly reccomend them.  I found them at my local library.  Using a heating pad or the clay heating things (so good) on my abdomen give me the best relief with a narcotic.  Good luck and feel better.

Hi Kelly-

I'm cold unless it's 80 degrees out! Like Marlee said our thermostats are broken with fibro. I have a hard time adjusting the temp of my house now that the cool weather is here. I take my sweater on and off all day too- and if I really can't warm up I hop in a hot bath and that does the trick for me.  

GamJill

I get cold, hot and rarely in between. Everyday the pool is freezing when I enter it. sometimes I can be comfortable in the water and others my teeth chatter. Everyone else feels fine.

At home I can turn on the heat and the air conditioner on the same day.

Donnaeil

Any suggestions for keeping warm in the winter.  It is still nice here in California, but them is starting to drop.  Last year during the coldest months our pge bill was $700 a month!  I cannot afford this again!!!!!  I am determined to take a shower without a space heater and maybe put a timer on my heating blanket, build fires to keep the bill down and wear layers to stay warm, but I am really worried about the cold.

Sue

I am freeezzzing all the time and it is embarrassing.  I too take a long time to warm up.  It seems as if I am easily "chilled to the bone".  I have endometriosis as well.   I have had endo surgeries.  The preganancy with my daughter cured me temporarily.  She is five now and the endo is just starting to come back.  Because of the endo, my iron is really low, causing me to be anemic.  I am not sure if the fact I am cold all the time is contributed to anemia or fibro (or both).  I had a doctor tell me once that "it is just a girl thing" - grrrr.

I am sitting in a perfectly warm house right now with flannel pj's on and I am under an electric blanket!! LOL!! This is my first cold season with Fibro and I am not thinking it is going to be a good one. It is almost like I am cold to my bones! Once I get that cold, it hard for me to get warm again. My doctor also told me that "my thermastat" was broken and that many people whith Fibromyalgia have a hard time controlling their body temps! I am thinking I need to talk my husband into moving away from chicago!!

My first fibro flare was in January of this year. I don't really remember being overly cold last winter, and I think the summer was pretty good. However I am in a full flare that started about a month ago. I completely understand where you all are coming from. I live even further north than Chicago! We get alot of snow and wind and cold. I'm totally dreading it. I too dress in layers, and usually peel the outside layer no less than 4 times a day. Tonight I'm in polarfleece pjs under a blanket, with heating pad on my back, and my nose is freezing! Often, I find drinking something hot will help.

Sorry I don't have any answers. I told my husband that I'm moving to Texas to live with his mom, or to Arizona to live with relatives there! I did read that those two states, along with California are amongst the favorite spots to live for fibro-mites!

Yes, there is a correlation between endometriosis and fibromyalgia. And I have both, lucky me lol. I know that if you have endometriosis, your risk of having fibromyalgia or CFS doubles or triples...it's a ridiculously high rate. I really hope you don't have that because it's not fun. Let me tell you though...if you DO have it, PLEASE do research before you undergo ANY kind of treatment. They will have to do a laparoscopy to diagnose the endometriosis (it can only be 100% diagnosed via visual inspection thru a lap). Before you have this done, please make sure the person performing the surgery is really well versed in endometriosis. The best way to have endo removed is to have it excised...there are all kinds of different ways but excision gets deeper into the endometrial implants. DO NOT let a doctor talk you into a hysterectomy OR having a baby as a "cure" as there isn't a cure. Women who have had children and/or hyst's still find that their endo can come back. And if your doctor recommends putting you on Lupron, RUN!!!!! There are class action lawsuits against the corporations making Lupron as it has really messed up a lot of people. It can happen after even one shot. The biggest pitfall with Lupron is that it can affect your bone density and that's not something I'm guessing you'd want to have along with Fibro.

If you have any questions or need anything, please let me know. I will do my best to help. You can post on here or you can email me directly at [email protected] ...please don't be offended if I don't write back right away...I'm so bad at checking my email.

Good luck to you!

PS - I am the same way as you with the cold. I am always FREEZING and then when I finally get warm, I feel like I'm roasting to death. But only for about 5 minutes because then I'm back to freezing again. I did read that frequent temp changes are a symptom of Fibro...but then again, EVERYTHING seems to be a symptom of Fibro!

hey there, well just to let you all know, i went to the doc today, and he told me that the results for the pelvic ultrasound was normal, there was nothing at all in the ultrasound, does this mean that I dont have endometriosis? Im so sick of this cycle, he says, "well you have a whole slew of symptoms, but nothing is diagnosed except the fibromyalgia.
I also have had bleeding twice during intercourse, a lot of blood too, and it was not my period, because i had no spotting between the two times that we had sex, in 4 or 5 days,
I dont get it, the doctor didnt seem to concerned by that,
ugh, I wish I could just figure out whats wrong with me.........

Hi, the doctor asked if i had ever had a stomach scope, and i said no, would this be a laparascopy? or something different?
just wondering, and thanks again!!
kelly