Can this really be so painful?

I'm sorry for all that you have gone through, physically and emotionally. You are in a good place here - the internet, I mean. It has been a lifesaving tool for me this fall, through a terrible flare that has rendered me unable to work. You are not alone. I am a Christian, and I believe that since God has not taken you home yet, you have a purpose - a reason to be here. It might not be obvious to you right now. But, you serve a purpose in the scheme of things, even with all you are dealing with. Perhaps you can change your prayers a bit, and ask Him to reveal to you the purpose of your pain, and/or to help you find His kingdom good in it.

I am surviving at 46 by learning to accept my new life and understand that it doesn't matter how I got here, "here" is where I'm at, and I need to learn to manage my fibro so it doesn't control me.

You are still beautiful "you" underneath and behind all the pain and meds.

If nothing else, keep typing. It will help you to find others who understand and can offer support. Who knows, maybe you will help someone else by sharing your experiences...?

Bless you,
Julie

Hi, ibLorna, and welcome!  I'm so sorry that you are having so many problems.  You sure have been through a lot.  The stress of only one or two things can bring on the pain big time!  But we are here to help you.

 

I see that Margie directed you to the Fibro 101 thread...the second thread on the forum.  There are links there with good information about fibromyalgia that might help you.  There are some good stretching exercises there that might help you, too.  You do need to keep moving with fibro.  If you sit or lay too long, you will be stiff as a board and have more pain.  Walking is a good exercise and it doesn't cost a thing!

 

Moist heat helps many here.  A hot shower can feel so good and some here use a Bed Buddy.  You can make one yourself.  Just take a tube sock, fill it 2/3's full of raw long grained rice and tie a knot on the end.  This can be put in the microwave to heat up and it gives off moist heat.  (Do not wet it.  The moisture is in the dry rice!)  This feels good on those achy muscles, too.

 

In the Fibro 101 thread there is a link to malic acid/magnesium supplements.  These help some members, including me, with pain and fatigue.  Read about them and see what you think.  I also use ibuprofen (with food) and Tylenol for pain.  Be sure to talk to your doctor before you try anything.  I'm just giving out suggestions here.

 

I'm so glad you found us!  You have come to a great place because we have wonderful people here that have good ideas to help you live a full and enjoyable life.  The bonus is that we really do care about each other, too!  So jump right in with questions, read back posts too.  Before you know it, you will be feeling better and not so alone anymore!  Hope to hear more from you soon.

 

Sherrine

Hi Lorna,
I am a new member here, but not with pain and fatigue and stress. You certainly have a lot going on right now, which does nothing good for the Fibromyalgia pain. You also have CFS and many other diseases that feed off of the stress of the body.
I know things will get better for you, because that is the way life works. My best advice would be to treat yourself well. Take all of the measures to lessen the pain and fatigue. Many people say to fight through the fatigue, but I myself have never been able to do it. I sleep when I need to sleep and try to avoid things that set me off.
Hopefully, in a week or so, you feel well enough to tackle one thing at a time. Try to recognize those things in your life that you have no control over and give it over to God, or some higher power. Then look at what is within your control, and decide which ones deserve attention and assign it a timeframe to resolve. You might find that after your timeframe has expired, that it truly was not that important after all. I only give these suggestions to you because it is exactly what I have to do. I suffer from bi-polar disorder as well, and have had to learn coping skills. And it sounds like you need some coping skills right now.
I wish you all the best, and hope to hear you are doing better in the near future.
God Bless,
Kathy

Hi Lorna and Welcome!

My heart goes out to you and everything you are dealing with. It sounds like your pain is not being controlled, 95 percent of the time is too much to be dealing with on a day to day basis- severe pain can wear you down no matter how positive a person you are. Do you have a good Dr. and does he/she know that you are in this much pain and this depressed? Med changes possibly? You are not functioning, and there is nothing worse!

Having a support group is a tremendous help also, and you have come to the right place-

Nice to have met you, and keep posting, vent, vent, vent if need be, we will be here for you.

GamJill

When I was at rock bottom every night I prayed I would die in my sleep as I couldnt deal with it and I was concerened at what I would do to myself. It took a long time but finally I got a doc who at least beleives although still has no idea of how severe the pain can be, at the same time I saw my second pain spec and he took me on. He put me a narcotoic patch and the pain eased the two thirds so between that and my doc meds I can function again.  In Australia we have services that are almost free, people to take you if you cant drive ect.  You need a doc and a pain spec.  A rheumy wont give the meds although they do help alot of people but to me they just said excersize, hah.  I also have arhtritis and the pain spec treats that as well.  You need to somehow find the strength to try these avenues and it can take several times.If I hadnt recevied the help I shudder to think what would of happened to me.

all the best and feel free to contact me anytime         sue2z