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It's cold and the pain is unbearable....

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Posted 1/20/2009 12:51 AM (GMT 0)
Hi everyone. It's been a while since I have posted anything. Lately, I really haven't felt up to getting on the computer. I live in Indiana, and it has been sooooo cold here recently. It is killing me. I hurt EVERYWHERE, and it is so hard to do the things that I need to do. To make it all worse, a few days ago, I went to Indy with my sister to help her with her oldest son while her youngest was in a doctor's appointment. Then we went to the mall. I was feeling all right except for the cold, and I thought we would only be there 2 hours tops. I was way wrong. We were there for about 7 hours, and I was watching both the boys, and it was just so hard. It was killing me, and I really payed the price for it the next few days afterward.

It is all just making me really depressed. I just want to be able to deal with this illness. I don't have anyone that can help me. My husband is there for me, and he is great, but I don't have anyone to give me any ideas on how to make the pain less, on how to make the depression less. I take pain meds and an antidepressant. But they only help so much. I just feel so lost and alone. My grandma, who also has fibro, went back to Florida, so the only way I can talk to her is on the phone. It makes me feel like I have lost part of my support system.

I know that I need to be in therapy, but my last therapist was such a witch with a b that I had to quit seeing her. I need a therapist who understands fibro, someone who can help me deal. I just don't know where to find such a person. I am going to look it up, but I don't think there are even any support groups that I can go to around my area.

I appreciate you all letting me vent and everything. If anyone has any support or advice, I would really appreciate it.

Posted 1/20/2009 2:56 AM (GMT 0)

Hi,

Sorry you are feeling so bad. I would talk to the doctor about your medication for the depression. Let him know that it really isn't helping. Maybe he can find something else that will help more.

I hope you can find a support group in your area. Just remember you can always come here when you need to. There is always someone around to talk to or to give support. We all need someone to talk to once in awhile.

Good luck and hope you stick around, you'll meet alot of great people.

Hugs!!  Margie

Posted 1/20/2009 3:33 AM (GMT 0)
Hi TikiIsMyKitty.....I'm also from Indiana. I have no idea what part you live in, but I do know there is a Fibromyalgia support group in Anderson at one of the hospitals & another one in Muncie. I'd love to attend one myself, but both places are a little far from me. If you happen to live close to either place & want more information, I can get it for you. ~Sande~
Posted 1/20/2009 3:32 PM (GMT 0)

Hi Tikki-

If it makes you feel any better, "all" of us in the northern states are having a heck of time managing the pain with the winter being exceptionally bad this year. And winters "are" depressing! When its mild out- Minnesota can go for days without sunshine and when it is sunny out the temps are either below zero or in the single digits. Can't win!

7 hours in the mall would have done me in too! That's just too long.

This site and the group has been a tremendous support for me. They have support groups around the cities here but they are few and far between and I would have to drive "miles" to get to one. When my fibro hit, it hit hard and I could not even drive my car. That's when I joined here. I know some people need to be in groups in person and I wish you the best in finding a group in your area, but in the interim join us when you can, that's what we are here for.  

GamJill

Posted 1/20/2009 5:04 PM (GMT 0)
:-) Hi TikiIsMyKitty....I have a kitty named Beauty. She is all black with yellow eyes and loves to curl up on my lap. MMMMmmm sounds good right now (I'm at work right now).

7 hours in the mall with little ones, wow, that's alot to handle. I can only handle 2 to 3 hours on a good day then when I get home I crash. I can totally relate to the depression of being alone with our illness. If you can find a support group close to you give it a try. You've got us here. We'll send you (((Hugs))) whenever you need it.

I have been having a harder time with managing my pain as well. Last time I saw my doc he gave me Fentanyl (patch) and it works to a point but when I take my Ultracet on top of it, it takes a lot more of the pain away. I have been fighting fatigue recently as well, I know that part of it may be drug induced. A price to pay for being able to make it out the door in the morning to get to work and actually doing my job.

Keep in touch with your grandma, I bet she can use your support just as well. Have a good day today and stay warm and cuddle up with the kitty and watch a good movie, they tend to get my mind off of ME for awhile.

Hugs,
Lori
Posted 1/21/2009 3:38 AM (GMT 0)

Binki,
Unfortunately, Tiki kept throwing up all over the place, and we weren't technically supposed to have pets in our apartment anyways, so we had to get rid of her. I had a wonderful cat named Gwenhyvhar (Gwen for short) and we had to get rid of her two years ago. I miss her a lot. She was always really comforting to me. She always knew when I wasn't feeling good, and she was always great for a laugh. I miss being able to have a pet. I have always had a cat around, ever since I was born, and I miss having one (especially Gwen) around.

To everyone else, thank you so much for your support. I know I can always come here when I need to talk. Somedays, I just don't feel up to getting onto the computer. It's nice to have an online support group, because you don't have to go out in the cold. It's just an e-mail away. I like that. I like talking to people live too, but I like that I can just sit around in my pjs (my most comfortable clothes) and talk and not have to worry about being judged or feeling like I don't belong. I know I belong here.

Being only 20 and being diagnosed with a lifelong illness is a hard thing to adjust to. I know others on here were diagnosed when they were young too. But it has just been so hard on me. My son isn't even 2 yet, and how I interact with him is so challenging because there are a lot of things I can't do. Some days, when I want to play with him but can't, I'll just lie on the floor and let him crawl all over me and even though it hurts, I still feel like I am doing something with him. I'm still having a hard time coping with this. Does it ever get easier? Do you eventually learn how to cope to the point where you can at least live a fairly normal life?

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