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Posted 2/12/2009 12:17 AM (GMT 0)
Does anyone have this trouble?  You know when you rub your arms or legs or ribs when cold?  Or when you rub at an itch?  Those things hurt.  It is not just trigger points that hurt, but everywhere that hurts.  Is this a flare or an all the time thing?  or is it impossible to know?   Before I went to Italy I was walking 30 minutes and 2 miles on my elliptical.  Now I can barely walk 11 minutes and I flare up in pain so quickly.   Is it possible that this will fade away eventually?  I am working on increasing my endurance, but it is going slowly.  It is a balance between increasing ability to walk and going overboard and putting myself in pain.  Too many questions!!??  I am full of questions!

Sue

Posted 2/12/2009 3:27 AM (GMT 0)
Yes Sue....I feel the soreness/pain on my arms and my thighs alot. When I'm at work and I need to dust paper scraps or something off my lap....man does it hurt, like they are all bruised up. When I have an itch(think I do) somewhere on my bod. I'll scratch ever so lightly but man, it still hurts like I got socked real hard.

I use to kickbox, jog or walk fast. No more for me, I just can't get past my hips hurting to much now just to walk. Going shopping and working full time is plenty. I do ride a stationary bike (recumbent) so I am in a seated position, it makes a big difference in my hips. I try to do 30min 4x a week, but its not always the case. Sometimes its just 15-20 min. Oh yes, I do include stretching afterwards.

Keep up the good work on exercising regularly, even if it hurts just a little something is great. I know how frustrating it is to not do quite what you did before.

Hugs,
Posted 2/12/2009 3:35 AM (GMT 0)
i have that all the time, even when im not in a flare. if i scratch an itch, or someone taps me, it hurts. just the slightest touch hurts. hope that helps a little. it's always just nice that you're not the only one that it happens to.

-Aliza
Posted 2/12/2009 5:23 AM (GMT 0)

I think I have made my husband gunshy when it comes to giving me a quick squeeze on the shoulder when he walks by me... shocked OUCH, THAT HURTS! is my off the cuff response if he has caught me by surprise.  He's equally surprised that such a gentle touch can send me right through the roof...poor guy...!

Posted 2/12/2009 6:01 AM (GMT 0)

I have the same pain. Some places are worse than others, but it is pretty well there all the time. I describe it as feeling as if there is a bruise there. I am having alot of trouble with pain to the touch on my legs right now. Even trying to rub them hurts. Now I walk aroung trying not to bump into anything because the smallest bump hurts!

Hugs!!  Margie

Posted 2/12/2009 12:56 PM (GMT 0)
Oh Sue, I so feel your pain. I have been a tennis player my entire life since early teens and have had to all but give it up. This past Sunday I merely went out to hit for 30 minutes, no games, and have so suffered from it. A friend just wrote me yesterday that she is convinced tennis is the culprit. Sue, I had been slowly working up to this, light conditioning and it didn't seem to matter :( Cannot tell you the tailspin it has put me in mentally and especially physically. Ah, working again for that happy medium, I will not give up. I HAVE to focus on the things I can do, we all do or scream!!!!

Take care, Patsie
Posted 2/12/2009 1:20 PM (GMT 0)
I have that same problem! It's awful when I scratch an itch or GOD FORBID - sit on my seatbelt buckle when I get in the car. Wow, does that hurt!!!
Posted 2/12/2009 4:01 PM (GMT 0)
I am both sad and relieved to know others have the same pain. I do not wish others to be in pain, but it is also good, as Aliza said, to know I am not the only one. I don't think I am this way all the time . . . or some days are better than others . . .
Thanks for the answers everybody.
Sue
Posted 2/12/2009 4:04 PM (GMT 0)
Sue,

Oh, don't I know this one! Everything hurts to the touch on me. Some areas are worse than others, but for me it's pretty much a constant thing. My kids have had to learn that they can't climb all over me and my hubby's had to learn to be VERY gentle with the hugs!

I'm sorry you go through this, too. :-( I hope you're feeling a bit better today.
Posted 2/12/2009 5:25 PM (GMT 0)

Yes

 I have that all the time. It does feel like bruises with no visible bruising. Very annoying

Posted 2/12/2009 6:12 PM (GMT 0)
I do think you can build up some resistance if you keep at it.  The secret is to start out slowly.  Let's say you walk or hit a tennis ball for ten minutes.  If you are fine the next day, then up it to 15 minutes.  When you reach the point it is starting to cause pain, then hang out at that level for a while and then try upping the time again.

 

I lived is a small ranch home in Ohio for many years.  My home in Florida is 1 1/2 times larger.  When I first moved in I was having to walk more because of the difference in the size of the home.  Well, let me tell you, my hips were killing me and I seriously thought I had made a big mistake buying this house.  But, my body got used to it and I can walk all over the house all day long with no hip pain.  I can now walk my dog for nearly 3/4 of a mile with no hip pain.  So, I think you can get your body accustomed to the exercise but you do have to break yourself in slowly.  Don't let fibro steal the things you enjoy doing!

 

Sherrine

Posted 2/13/2009 6:43 AM (GMT 0)
I to have it everywhere and hugs and the slightest touch hurt so much and for so long, but also the touch of the couch against my back or chair even the bed all hurt where ever they touch,  and clothing can be a nightmare.   sue2z

Posted 2/13/2009 6:11 PM (GMT 0)
Yesterday my granddog wanted to stand on me - a teeny little poodle and it hurt. I was in a flare though and it doesn't always hurt when he stands on me.
Sue
Posted 2/13/2009 8:12 PM (GMT 0)

Yes, I get that too, some days are worse than others..heck some minutes are worse then others.  I'm a big hugger.. I love to give 'em and get 'em.  DH always knows when I'm having a bad day because I'm not in a huggie mood.  Sometimes I couldn't have any other symptoms than the sensitive to the touch thing.. other times I could be shuffling around full of pain and exhaustion but no problem with the sensitive touch thing.  I wish I had an answer for this, I think the reason there are no answers for fibro symptoms is they just don't make any sense at all.

Posted 2/14/2009 4:31 AM (GMT 0)

My pain is not as extreme as these examples, yet, but I have begun to notice that my skin is becoming a lot more sensitive. I used to love my hubby and I cuddling together in the evenings, and he would stroke my hand, arm, leg, face, etc, while we watched TV, and it was comforting. Now, if he strokes the same spot for more than a couple of seconds, I feel like he's rubbing sandpaper on my skin. It's not his fault, and I don't think he fully understands the magnitude of it, but it's getting to where cuddling isn't so cuddly anymore.

Of course, it's not just those instances. At work, I have to reach out to my left a lot to answer my phone (I'm a telephone customer service rep), and I might do that about 100 or so times a day. If I don't consciously lift my arm up off the desktop when I reach for the button, my arm scrapes lightly on it. After just a couple of calls, I'm practically ready to scream. Any time I have physical contact with anything for more than a few seconds, I feel like someone is peeling my skin off. I have become withdrawn from my own surroundings for fear of being in contact with anything that will cause me to hurt.

Posted 2/14/2009 4:36 AM (GMT 0)

absolutely yes, i get that pain and i identify. its awful.

Maz XX

Posted 2/14/2009 5:15 AM (GMT 0)
Sue,

OMG, I feel you on the animals touching you. My mom's cat loves to get on my lap and knead me, and it hurts SO bad! sad Anyway, I've always tried to describe some of my pain to non-fibro people, and they never get it. It's actually refreshing (even though it still sucks) that y'all understand what I mean when I say that I feel bruised all over. Seriously, you can barely touch me most of the time. A few days ago, my thigh hurt so bad when I touched it, I was sure that I had a bruise. But, after investigating, there was no bruise.

Why do I feel like one giant bruise?confused BTW-this doesn't include the other aches & pains I have.
Posted 2/14/2009 1:12 PM (GMT 0)

My skin is sensitive also and wearing anything that resembles real clothing has become a challange.  Yesterday went to the store and the sweat pants I had on made the skin on my legs literally crawl.  Not painful...just annoying.  When I brush my hair, I get shivers all over my body...or pull a shirt over my head...goosebumbs.  I have cut all the labels out of everything.  It's like I can actually feel the texture of the cloth  against my skin.  Flannel and soft cotton...that's my wardrobe! Really Bites, doesn't it? 

Huggies

donna

Posted 2/14/2009 1:57 PM (GMT 0)
yeah same here
Posted 2/14/2009 2:16 PM (GMT 0)
Wow!! Thanks for this post. I thought it was just me. My husband likes to hold my hand while we sit in our recliners and he likes to rub my hand. It hurts like you know what most of the time and I have to pull away. So sad. I wish we didn't have that symptom. A nice little squeeze on the shoulder, arm or hand is nice but oh the pain. It's frustrating. My husband is surprised I hurt so much too from such a simple gesture. I will definitely tell him about all your posts. Thanks for making me feel like I'm not crazy!!!

Have a lpd. God bless and gentle gentle hugs

Lindaloo
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