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Posted 3/11/2009 3:13 AM (GMT 0)
Hey everyone
I am 26 year old male that has been diagnosed with fibromyalgia I've struggled for years with the fatigue, pain, depression and countless other symptoms. This appears to be a good site to be able to talk with others ( that understand ) the problems and feelings.
Posted 3/11/2009 5:11 AM (GMT 0)
Hi Realest,

Welcome to HealingWell fibromyalgia forum. We are so glad that you are here, but you must know that you are totally outnumbered, so expect a lot of cackling hens...Just kidding. We do have some men on the forum.

I am sorry that you have fibro at such a young age, I was in my fourties when I found out that I had it. I had it a year or more before diagnosis.

We have a wonderful group of members here, everybody is so kind and understanding. I think that you will like it here.

Check out the thread called fibro101. It is the second thread on the forum. There is tons of great information there. It is nice here too because you don't feel so alone with this and you do realize that you are sane for the most part. Many symptoms can drive you crazy.

Best wishes for a wonderful day

Hugs, Karen
Posted 3/11/2009 7:14 AM (GMT 0)
I know I'm outnumbered ..... I've read tons of research stuff including some on the fibro101 thread already. I talk mostly to my 70 year old grandma, she has has bad arthritis for years, I seem to have more in common with her than anyone my own age. Feeling alone is what I really struggle a lot with. I think this forum may be able to help me with that.
My relationship with the girl I loved ended a year ago when I was having a flare up of terrible back pain, and couldn't work. At the time I wasn't getting the right treatment and I don't think she could really fully understand my condition and what I was going through.

It has been a long year and support is much needed, I'll also offer up any support, or advice that I have, to be able to help others.
Posted 3/11/2009 10:58 AM (GMT 0)
Good Morning Realest,

At this site it doesn't matter one bit if you are outnumbered. We are all here to share, help and learn all we can about this awful disorder. Yes, it is definitely life altering but there still is life after Fibro. You just have to accept the changes and know it is what it is.

It has changed my life very drastically but I have not given up a lick. I find I can no longer be the hurricane I always was and have to pace myself. Learning this little most important thing has made a huge difference. Even on days when I feel pretty darn good I watch it. Before I didn't and paid the price. It is all about knowing just how far you can push your body and believe me we are all different.

So welcome and stick with us for some great friendship and a few laughs along the way.

Patsie
Posted 3/11/2009 12:59 PM (GMT 0)
Hello and Welcome, Realest!

I am so sorry that you're struggling with this dd, but am happy you've found us. This is a great place to find information and support and there are so many wonderful people here to help. I think there is a misconception out there that fibro is an "older woman's disease", which is terribly unfair to those of us who have this dd who are younger or male, so I can imagine how hard it must be for you to have to deal with this. I am female myself, but also only 36 (and have had symptoms since I was in my late 20's) and I know there are people around me who just don't "get it". I'm fairly young, so what's my problem?? That seems to be the thoughts of some. It can get very frustrating!!

I am also very sorry to hear that your relationship ended because of your fibro. Some people just can't handle it, I think, which is so unfortunate. I do hope that someone comes into your life who will support and love you just the way you are!

Welcome again-I look forward to getting to know you!
Posted 3/11/2009 1:36 PM (GMT 0)

Hello Realest and Welcome!

You are not alone! Once I joined the group here, I felt SO much better and I think you will too. We have members in their teens and up into the 60's here so there is quite a diversity. Sorry to hear about the breakup, and in time hope you can meet someone that will like you fibro and all!

Join us on our Daily Koffee Klatches when you can- it's very informal and Chutz one of our moderators does a great job at picking a different subject everyday. Keeps our mind off of the pain for awhile!

Nice to meet you!

GamJill 

Posted 3/11/2009 1:53 PM (GMT 0)
Hi Realest and welcome to the family. I'm so sorry you have fibro at such a young age. We do have a few brave men among us. We address about every aspect of life on here cause fibro affects every part of our lives. Ask questions, read and we even let you vent when you need to.

 

luv and hugs

Marlee

Posted 3/11/2009 2:51 PM (GMT 0)
Good Morning Realest
and Welcome! It is refreshing to have a young man join us, although we do have some others, you are most certainly very welcome here!

I was diagnosed in my mid 30's, about 20 years ago. So many of us have gone through what you are going through now. The best advice I can give you is to try to come to terms with fibro and not fight it. I fought it for many years, refusing to give in to the fatigue and continued to push myself and I think I just caused myself more problems. I am NOT saying to give up, but as Patsie mentioned, we need to pace ourselves and that's the key to fibro, learning what your pace is, what you can handle. It might take you some time to figure that out, as it sure did me, but you will. And we are all here to support you and help in any way we can. I just found this site a few months ago and my only regret is that I didn't find it years ago. These people have been a tremendous support, and have brightened my day on so many days! Whether you need a cyber hug, or a big laugh, you can find it here.

Again, welcome, and please feel free to ask any questions you have, we our here to support you, my friend,
take good care,
Miriam
Posted 3/11/2009 7:38 PM (GMT 0)
Thanks everyone ....... I was diagnosed 6 months ago ..... but dealing with the pain for almost 6 years. At least now after seeing a rheumy my doctor has given me meds that help me manage I a lot better.

I know over the years I've had to give up some of the things I love doing. Playing sports in particular, I know I can't run up and down the basketball court cause I won't be able to move the next day, and I that if I go play hockey my hips and back will ache for days. I'm canadian by the way. How can I not play hockey.

Does anyone else BRUISE really easily, some of the ones I've had on my legs are as big as my head. Those really impress people.

Take Care everyone.
Jay
Posted 3/11/2009 8:27 PM (GMT 0)
Hi, Realest, and welcome!  I'm glad you found us and decided to join in.  We do have a great group of people on this forum that love helping one another and really do care about each other, too. 

 

I'm sorry you have this illness but you can still have a full and enjoyable life with fibromyalgia.  You just need to pace yourself.  Your body will tell you what you can and cannot do.  It looks like you are already discovering that! 

 

I'm sorry about the sports...especially hockey.  I know that the people in northern US and Canada live for that sport in the winter.  But, I bet you can still ice skate and you won't even lose any teeth that way!  LOL

 

Read back posts, the Fibro 101 thread, and ask questions.  We are here to help you.  I hope to hear more from you soon.

 

Sherrine

Posted 3/12/2009 1:56 AM (GMT 0)
Hi, there. I am 33 and have been in pain since I was a teenager. I understand being yound no one getting what you are going through. Maybe you can find a support group in your area. I am glad you found this place. People here really do care. Good luck.
Angeline
Posted 3/12/2009 12:41 PM (GMT 0)
Hey Realest!!!

Just wanted to pop my head in and say WELCOME!!!!! I've been crazy busy this week and haven't had much time on the forum. I try to always welcome new folks. It wasn't that long ago that I joined this forum and its made an incredible difference in my life. I've learned more about Fibro from this forum, than I ever could from my doctor.

Please stick around, keep posting and again Welcome!!!
Take care!!
Posted 3/12/2009 3:13 PM (GMT 0)
Hello Realest,
Come on down and pull up a chair and welcome to our very nice family..
{{{{{{{{{{{{{{{{{{{{{{{HUGZ}}}}}}}}}}}}}}}}}}}}}}
find yourself a good moist heating pad as they do help.........
and yes I bruise very easily...
once again, Welcome and lots and lots of soft hugz...............
Posted 3/12/2009 10:20 PM (GMT 0)
Hey realist welcome. I wouldnt think you played hockey with out having bruises... Welcome to our home you are welcome here. I found so much support here and I enjoy it so much this is the only forum i have ever belonged to and I keep coming back... We are big hockey fans in my family GO FLYERS....Hey Sherrine can you honestly tell me you never played around of hockey being from way up north.
LeeAnn
Posted 3/12/2009 11:02 PM (GMT 0)
What I say is ..... It's not hockey UNLESS someone gets hurt ...... and that's usually me, lol. I know I'm gonna be in pain afterwards but I'm not gonna let it stop me from going out and playing. I've jumped on the Boston Bruins bandwagon this year. Go Bruins
Posted 3/12/2009 11:24 PM (GMT 0)

PS.. geez I meant to say it earlier..FIBRO FOG alert.. Yes, I bruise very easily, just thinking about hockey gave me a big bruise on my shin!!  LOL!!

Wow, you're a Bruins fan and from Canada!!?  I used to be a big Maple Leafs fan... but that was long ago.  Moved on the the Devils and then gave up completely!!

Again, welcome to the Fibro Fam!!

Posted 3/12/2009 11:30 PM (GMT 0)
Did someone say Hockey!!! Go Penguins!! Well, they're not doing so well this year, but they're in 8th spot right now so hopefully will make it into the playoffs. We also root for the Av's and the Canucks in this house. Hubby used to live in CO and the closest team to us is Vancouver...so there you have it. BTW, I'm in the states...Washington state. ;-)

I too am sorry you're so young and suffering from this DD. You are very lucky to have a doc who's willing to work with you on a treatment plan. So many younger people with fibro are told there is nothing they can give them...but a hard time it appears. Still, that doesn't make your pain any easier to live with.

Pull up a chair and we'll all watch the Stanley Cup tournament together! Pitt is on as we speak...gotta run!
Chutzie
Posted 3/13/2009 12:07 AM (GMT 0)
Realest, I live in Tampa Bay now.   GO LIGHTNING!!  (For those who don't know, we won the Stanley Cup a few years ago.  So exciting!)

 

Sherrine

Posted 3/13/2009 2:28 AM (GMT 0)
Now y'all the Detroit Red Wings are very good...Go Red Wings, yea................
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