Tired of being in Pain and Tired

Hi Pro glo!!!

I wanted to say hi.. I don't remember ever meeting you before. 

I'm sorry you're having such a hard time right now.  I hope we can help you.  I always recommend that if you're having problems talking to your family to go on to the 2nd thread of the forum called Fibro 101.  There's a section on there call "Spoons" its a great way to explain what it's like to have fibro to people who don't understand.  There's also another section called "Letter To Normals" that one is good for those that REALLY Just Don't Get It!! 

If you're not getting satisfaction from your medicines go to the doctor and be sure to let him/her know that they aren't working as well as you had hoped.  Sometimes we get immune to the medicines that we're taking.

I recently went to my doc. and talked to him about P.A. since I have psoriasis.  I came up negative, thank goodness. But I read up on it and its really a terrible form of arthritis.  I'm sure it's very painful.  One thing about P.A. is at least its something people can see, not like fibro - where people can't see your symptoms. 

Though your husband doesn't understand, we sure do.  Please feel free to come here and talk.  Sometimes just getting your frustration off your chest is what you need to help you feel better.

Take care and gentle hugs,

I know how hard it is to have a husband that doesn't understand or support you when you're sick and especially when you are plagued with a chronic illness.  Most people with Fibro have more than one disease or syndrome, I'm sure you might have noticed that in our signature's bio.  If he isn't receptive to the idea of reading any of the links I suggested earlier perhaps you can bring him along with you to the doctor sometime soon.  Maybe your doctor can explain some of your medical problems to your husband. 

Often times spouses have a really hard time accepting their partners illnesses.  I learned this while I watched my mother care for my dad when he became an invalid for almost 10 years.  Dad's medical problems were pretty extreme.  He had an ostomy, that she had to tend to and he had Hepititis C so he had to be handled very delicately.  After several years of these life alturing changes, my mother became increasingly annoyed with him, or atleast that's the way it appeared on the surface.  But as time went by and dad's health declined more and more, I realized that my mother wasn't really angry with my father.  She was angry at his illness and she was disappointed in the direction it took their lives.  I know it was a lot of work for her and she was exhausted by the time my dad passed away. 

I think our loved one's disbelief in fibro is all based on denial.  They don't want someone that they love to be sick (none of us do), they don't want to make the necessary changes in their lives to accomadate someone with a chronic illness and aftertime they get angry at what's happening to their spouse (or other family member).

When I had Lyme Disease I watched just that happen with me and my ex-husband.  In the long run I learned that he just couldn't deal with having his wife be sick.  He was immature and looked at me more as a mother than a wife.  He could barely take care of himself, let alone me and my son.  It took alot of soul searching but when I realized what was happening I knew it was time to move on.  So, I left.   Please don't misunderstand, Im not saying that's what you should do.  I just think I understand why our friends and family members feel and act the way they do. 

I think once they hear if from a professional it changes the way they accept the reality of it all.  And bringing them out of denial is the first step to getting them to understand.

I  hope that helps.

Hope you have a good night and sleep well.

Warm hugs,