HealingWell
Search Close Search
☰

IL Hubby's Wife new here

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/22/2009 5:00 PM (GMT 0)
Hi everyone, this is the first time on the forum. My husband has been on me to join in so here I am. Today is not a good day. I'm stuggling with my emotional well being as well as the pain I'm in. I've been diagnosed with fibro, peripheral neuropathy, RA, carpal tunnel, anxiety and depression, ulcers and degenerative disks. I know what all of you are going through and it's one of the hardest things I've ever had to do. I was always busy and on the go before I was diagnosed. My feet started burning and feeling numb when I would finally sit down to relax or go to sleep. I thought it was RLS but found out it was neuropathy. Everything else snowballed. All my symptoms came at one time. I didn't know what was going on. Finally after seeing a couple of doctors I was diagnosed. Now I'm trying to cope day to day. Any advice that you all have would be appreciated. My prayers are all with you. 
Posted 4/22/2009 5:21 PM (GMT 0)
Hi Il Hubby's Wife,

I just wanted to welcome you to the forum. I hope that you like it here and decide to stay with us. There is the most wonderful group of members here that are so kind and compassionate and full of good advice.

I am sorry to hear what all that you have been through. Fibromyalgia can sneak up on you or hit you like a ton of bricks. And it sounds like it hit you hard. I hope that you have your symptoms under control now and only have a little to deal with. It seems like we are never pain free.

What bothers me the most is the fatigue. We have had some really dreary days with cold rain and I have a lot of pain and fatigue right now, though I have been through a long stretch of feeling pretty good. I do have some things on my mind right now though and I think that the anxiety of that has me in a small flare. I know that it could be worse so I will try not to complain too much.

Please do check out the thread called fibro101 if you haven't already. It is full of good information. I am sure you will find it helpful to read it.

Keep posting and again "Welcome to the forum".

Hugs, Karen
Posted 4/22/2009 5:33 PM (GMT 0)
Welcome IHW,

I'm relatively new to the forum too. I hope you keep coming back, the atmosphere is great here. Lots of great advise and information. And the daily kofee klatch has me laughing quite often.

Thanks for keeping us in your prayers and we will add you to ours.
Posted 4/22/2009 6:02 PM (GMT 0)

Hi there IHW!!!

I remember your husband posting on the forum about a month or so ago.  He was very concerned about you and he wanted to know more about Fibromyalgia.  I can't tell you how happy I am that you chose to join us here on the forum.  We were all very concerned about you, as well, and we didn't even know you.  You'll find that this to be a wonderful forum with very caring people that know exactly what you are going through and will have lots of advice.  Everyone on the forum admired your husband's need to know more and calls for help.  Many of the folks on the forum would love it if our husbands would do some homework and learn more.

Sometimes all of us feel kinda sick and tired of being sick and tired so we have little cyber parties and we have a morning Koffee Klatch that has a different non fibro related topic  everyday.. so feel free to join in on those as well.. we really try to laugh in the adversity of having this horrible syndrome.

I'm sure lots of other "fibro family members" will be along to greet you.  We all have different ways to deal with our fibro and I know you'll learn a lot and make some great friends along the way.

So welcome!!!!  And please keep posting!!  Oh and DO check out Fibromyalgia 101.. the second thread on the forum, it's extremely helpful and can teach you some very valuable coping skills.

Until later.. hugs for now!! 

Posted 4/22/2009 7:05 PM (GMT 0)
Hi, and welcome!  I'm so glad that you found us and joined in.  Yes, fibro can be a real pain!  But, we will give you some ideas to try to help you control the pain and live a full and enjoyable life with fibro.

 

I see you have been directed to the Fibro 101 thread.  There are links to good info about fibro and you can sure learn a lot there.

 

In the Fibro 101 thread, there is a link about malic acid/magnesium supplements. I use these and they have helped me a lot.  They don't work for everyone but they have helped many on this forum.  Check out that link.  It gives info about them and how they work in your body.  Possibly they could help you too.  It's worth asking your doctor about.

 

Hot showers and moist heat help with fibro.  Many use a Bed Buddy, too.  You can get these at Walgreens and other places.  Or, you can make your own by taking a tube sock, filling it 2/3's full of raw long grained rice, and tying a knot at the end.  Pop it in the microwave and it gives off moist heat due to the moisture in the rice.  This feels great on those poor, aching muscles.

 

It is important to keep moving.  If you sit or lay too much, you will be stiff as a board.  Gentle stretching really helps and there is a link in the Fibro 101 thread with some great stretching exercises that you can do sitting down.  These really do help!  Also walking is wonderful for you and is a good weight-bearing exercise that helps keep your bones strong too.  Swimming is great too if you have access to a pool.

 

I'm really glad that you are here now.  Read back posts and ask questions, too.  We are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 4/22/2009 7:35 PM (GMT 0)
Hi Hubbys wife,

Welcome to our family. I started the exact same way with the terrible peripheral pain. At last I have improved and I believe it is the mag/malic acid and D therapy. I am improving and just thank God for the decrease in foot pain. I was cramping so badly too, hard to think straight. Have you had your Vit D level checked? Many of us are quite low.

Have you positively got RA? That is a tough one too so I wish you the absolute best of luck. I spiked with the RA factor but did not have it. The spike has since returned to normal, very strange..

Be as kind to yourself as you can with the stretching etc. that Sherrine mentioned. It all helps a little.

Bless you, Patsie
Posted 4/22/2009 11:36 PM (GMT 0)

Hi, I am new here as well as newly diagnosed. Welcome -  they're a nice lot around here! I was a lurker for a few months while I was getting tested and tested for everything under the sun; now that I have a diagnosis I find it really helpful to read what others with FM are going thru so I don't feel so alone.

Annie

Posted 4/23/2009 12:12 AM (GMT 0)
Thank You everyone for the warm welcome ! Im' looking forward to hearing from people that are dealing with the same conditions that my Hubby and I are experiencing. We are learning to take one day at a time since we never know how Im' going to be feeling.When this started it came like a flood. I cry alot and pray alot. But Im' thankful I have a Hubby that understands.
GOD Bless You All.
Posted 4/23/2009 6:10 PM (GMT 0)

Hi Hubby's wife and Welcome!

I remember your hubby coming to the site too and how concerned he was. Bless his heart, and yours. My fibro hit me like an atomic bomb a little over a year ago, so I can relate. And I figured out real fast too that the fibro is different everyday and that we have to take this one day at a time. It was an adjustment. Now, it's seems normal to me to think that way.

So glad you jumped aboard and I know you will like the group here! Nice to meet you!

Jill

✚ New Topic ✚ Reply