Fibromyalgia and pain meds

 H i All,

 

It's been ages since I've been on the forum.  But I need help and support.  My "pain mangement" doctor has suddenly dropped me.  She was the one who told me that some patients just don't get any relief from other meds. (including me).  I've seen a new Pain doc twice - today being the 2nd time.  I belong to a "Medical Group" so my choices are limited.  I was told by another worker that this particular doctor does not even believe in Fibromyalgia.  She has tried to drop me from 8 (5mg) Percocet daily to zero in a matter of 3 weeks.  I just can't do it!  My pain level is almost at a constant 9.  She is keeping me on Opana which is a long-term pain med (doesn't really work for me).  Believe me, I've tried ALL the other resources I can:  Baclofan, celebrex, vicodan, morphine, oxycontin, Fenenol patch, etc.. NOTHING else works for me.  I'm sooooooooooooooooooooo frustrated and mad that I've been put in this situation.  My primary care doctor will have nothing to do with my pain meds until they are prescribed by one of the pain docs.

 

I have asked for a new Pain Doctor - but there's no guarantee that he will prescribe my percocet.  Get this:  They'e been having me to take #5mg Percocet when there is a #10 Percocet - however, that medication is not in their "proticol."  So here I am, putting my liver at risk to save them a dime!!!   Gimme a break - I had to fight to a year for them to finally prescribe Nexium and generic prilocec is about as good as a sugar pill.

 

I don't know if I just need to vent - what I really want is support.  I see a mental health therapist twice a month and made an emergency call to them last week.  PLEASE somebody help me!  Thank you 

Grrrr. This is the new thing, no pain meds for folks with fibromyalgia.

I have no answers just wanted to let you know I understand.

Donnaeil

"Opana which is a long-term pain med (doesn't really work for me). Believe me, I've tried ALL the other resources I can: Baclofan, celebrex, vicodan, morphine, oxycontin, Fenenol patch, etc.. NOTHING else works for me. "

So I'm not clear here... You have listed the strongest pain medications available known to humankind and stated that they don't work for you... Not morphine, not oxycodone, not oxymorphone... What exactly do you want the pain doctor to do for you? Oxymorphone is a very strong med and should be helping with the pain. And percocet is only oxycodone (which you state does not work for you) plus acetaminophen. What is it that you want to take?

Actually, Percocet IS the only thing that works with me. I haven't heard that they are no longer prescribing pain meds for Fibro patients. That's outgrageous, as we are all in pain! I think part of the problem is the news - celebreties over-dosing on their meds. This makes it so much more difficult for those of us who are in chronic pain.

I suppose I may have known what was coming as I refilled my Percocet days before seeing the new/now ex doc. (I felt a little sneaky, but I know what is best for me). I do have another appointment with a new Pain doc. It sounds like he's most likely the one who will help me. I'm keeping my fingers crossed.

Thank you so much to all of you for listening to me and giving me your support. It means so much to me.
((((((((((((((((((((((((((((((((((((((((((((((hugs to all)))))))))))))))))))))))))))))))))))))))))))))

Lisa

No pain meds for Fibro? Is this new? I have been banging my head against this wall as long as I have had Fibro, after it was diagnosed, I mean. The equation is simple. Follow the money. How much does Lyrica cost? Percocet has been around since the beginning of time. It is cheap as dirt. Groups, HMO's etc. are told what to prescribe by legislators who are not doctors but politicians influenced by lobbyists whom are paid to influence legislation on behalf of hugh conglomerates. Do you have any idea what percentage of the GNP is made up of pharmaceutical company profits, 20, 25, 30 %. Find a doctor who either has pain or understands pain. My doc doesn't believe in Fibro either but he understands pain (Rheumatoid Arthritis, you can see it in his hands), and as long as I stay within his protocol, 8 tylenol 30 mgs. per day, he is very kind this way. I could have MS, Cancer, anything else going on, no matter, he isn't particularly interested, but when I present my empty bottle, and the dates make sense, he prescribes my medicine. It's always going to be a trade-off. I wouldn't change it for the world. I am an in the here and now person, not an immediate gratification person, but I live in the here and now. And if in the here and now, I am in horrible pain, well does anything else matter. That is not a life. Interview doctors, ask them directly if they understand Fibro and what their approach to treatment is. Take documentation. I have a complete set of my medical records up to the time of my being struck by a truck in 2002, plus what immediately followed. I take it to all my doctors on the first appt. One look at the sheer volumn of paper, and pointing out the injuries which spun me from a functional fibromite to a barely functioning fibromite, is enough for some docs. If you don't have this kind of amunition, keep a journal. Write out all the dx's and treatments with commentary about how it went. And, most of all, good luck, persistence, and strength to keep going, to you.