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Fibro and joint pain

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Fibromyalgia
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Posted 4/30/2009 9:32 PM (GMT 0)
I am just curious how many of you that have only been diagnosed with fibro and nothing else have pain in and around your joints? I have pain in my hands, knees, right hip - most of my joints at one time or another have been affected. I have had all of the tests and I don't have arthritis, lupus, etc. Any meds that help with the muscle pains, fatigue and joint pain?  I miracle pill would be great! I'm not asking for too much, am I? smilewinkgrin    I am going to try the malic acid/magnesium but I am waiting until after I get my tonsils out on Monday and recover from that.  I doubt I will want to be swallowing more pills that I already do for a little while.
Posted 5/1/2009 12:44 AM (GMT 0)

Hi - I have the same feeling, I have been diagnosed with Fibro for years, even went through testing for MS...all points to Fibro...been doing pretty good until lately, I don't know if it's the immediate heat (NC) or stress BUT I've had a couple of rough days.   I was wondering today if it's joint pain or muscle pain????  Sure does feel like both.  Muscle hurt, spasms, weakness, etc...BUT lately my joints hurt - wrists, ankles, hips, neck......the list goes on and on....LOL

Have you always felt this way or has it just started as well?  Have you been diagnosed???

Posted 5/1/2009 3:37 AM (GMT 0)
Chronic fatigue will give you joint pains.

Donnaeil
Posted 5/1/2009 3:58 AM (GMT 0)
I've had fibromyalgia for years. I also have Lupus but fortunately I've only been in the hospital once with it. I've been a real mess since Dec. The joint and muscle pain are almost unbearable some days. I couldn's even make it to physical therapy today because I couldn't get out of the bed. My husband has had to help dress me.......it goes on and on. What do you take for pain? The rheumy upped my Neurontin to 2400 mg. a day and I gained 14 lb. in 6 days from edema which I guess was from the change in meds. I tried a low dose of Morphine twice a day but couldn't urinate so that's out. I see two doctors on Tues. and I'm not leaving until one of them have some answers or can help me with the pain.
Nurse2
Posted 5/1/2009 1:35 PM (GMT 0)
I have had joint pain for about 4 years or so - it has gotten progressively worse - not horrible but enough to make me cringe in pain sometimes and take my breath away. I believe I have developed the fibro symptoms in the past 2 years.  I was just diagnosed a few weeks ago. The only meds that I am on are ultram or darvocet - neither work very good at all for the pain. I am supposed to go the a fibro clinic over at Mayo where I will meet with various doctors to help me deal with the fibro between medications, exercise and everything in between but with having to take two weeks off work for the tonsillectomy next week I couldn't afford to take off another two days this week to go.  Hopefully I will get over there by the end of the month to get some help. I believe it is possible that I have chronic fatigue - but I guess I don't know how much fatigue the rest of you with fibro have.  I feel the best in the morning - but maybe that is because I am usually asleep by 8:30 (if I can last that long) and my alarm goes off at 0600. I have had major sleep issues since I was 13. I take trazodone - but lately I am only taking it after my hubby wakes me up to tell me to take out my contacts before I go to bed for the night - this way I only wake up a few times lately instead of 50 times a night. I have slept better these last two weeks than I have since I was 12 years old I think. Maybe because I finally was told that I wasn't crazy and I got a diagnosis?? I know it is possible to have arthritis and not have any test show up positive for years. Who knows. Thanks for the replies. 
Posted 5/1/2009 5:05 PM (GMT 0)

For me, it feels like joint pain but the fingers, legs, etc. move because of tendons, ligaments, and muscles.  THAT's where the fibro comes to play.  So, even though it might feel like it's in your joints, it might not be.

Sherrine

Posted 5/1/2009 5:15 PM (GMT 0)
I must agree with Sherrine. I went to the rheumy complaining of "joint pain" and after tests for RA he said it's fibro and that the pain isn't in the joint itself, it's in the tendons and ligaments around the joint.
Posted 5/1/2009 7:57 PM (GMT 0)
The joint pain makes sense as you two explained it. I appreciate all of the info and insight that all of you can give me. I have a lot to learn about this. Hopefully I will have a better understanding after I can get over to Mayo and go thru their program to learn more about it and what I can do to try to make it a little easier on myself.  Anything is worth a try. I also bought a book but I can't remember the name of it right now - I know it's a second edition - supposed to be a good one for info - memory issues are driving me crazy!

Posted 5/1/2009 8:11 PM (GMT 0)
I get terrible joint pain (or what feels like joint pain) in my fingers and elbows. Sometimes I feel it in my knees, but not as much.
Posted 5/16/2009 2:33 AM (GMT 0)
I also have that "joint pain" it's mainly in my knees, elbows, shoulders, and finger. I sometimes get it in my ankles and feet as well.

I think it's time for a cure-all pill :)
Posted 5/17/2009 10:42 PM (GMT 0)
Just curious about the Fibro Center at Mayos. Which Mayo Clinic are you going to? I am going to the Mayo clinic in Minnesota for a second opinion for my fibro and IBS.
Posted 5/17/2009 10:53 PM (GMT 0)
I have been offline because of the severe joint pain in my hands and feet. It dosen't hurt in my muscles at all, just right in the joint. I am frustrated because its painful and the Vicodan isn't working that well, I take Ibprofen with it too. i haven't been able to walk on my feet at all till today. Hope someone comes up with answers.
Posted 5/19/2009 3:47 AM (GMT 0)
I agree that it definately feels like joint pain. I have it in my knees and hips. My lower back and neck bother me also, but not as much as my hips. I take fish oil and osteobiflex along with my RX meds. I tried to drop the OTC meds but that didn't last long, I got up and could bearly walk. I hate taking off work, but have found it very hard lately to make it to work and function properly. My desk area is not user friendly for me either, so that makes it even harder for me to talk myself into going. When I feel bad to begin with, I know I will come home feeling even worse. mad
Posted 5/19/2009 2:00 PM (GMT 0)
I have bigtime joint issues.  I believe I've got bursitis in my elbows, shoulders, wrists (really bad) and two different locations on my feet.  But I'm sure it's related to this fibromyalgia.  Even tho they say imflamation isn't part of it.  Be well, each of you.
Posted 5/20/2009 8:33 PM (GMT 0)
I went to the Mayo clinic in Rochester.  The doctor that diagnosed me was a rheumy. He referred me to the Fibro clinic that they offer - it is actually located at St. Marys Hospital and it consists of about a day and a half of appointments I guess. Unfortunately I have not been able to go yet - not because I couldn't get in. I am feeling REALLY crummy.  I just had my tonsils out two and a half weeks ago so I was off on disability for two weeks, my son had a bicycle accident last summer and we are still going to appointments at Mayo to finish fixing his jaw/teeth.  Between that time off work and missing work for appointments to try to figure out what the hell was wrong with me - my supervisors are a little pissed off about the amount of work I have missed.  I guess I will have to wait a little longer. I do finally have an appointment in a couple of weeks here in town with the pain clinic to try to get some relief - I can't stand this anymore. I can barely make it thru a workday without tears from pain. My work is right next to the clinic - my supervisors should be very happy.  ******s. wink
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