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Fibromyalgia
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Posted 5/27/2009 8:20 PM (GMT 0)
Hi to everyone. I'm new here and just wanted to introduce myself and meet some people.

I want to be upfront about my health right away. I have diabetes, first of all. Secondly, I have not been officially diagnosed with Fibro. We have no insurance, an no doctor will take payments, it's very heart breaking to me. I do know that I have fibro though. I know the symptoms, and my mother has it as well. I'm not sure if I can even add anything to these forums, I suppose I am just looking for people who can identify. I just want a couple of people who know how I feel when I tell my two young sons that they can't sit on my lap, or someone who knows what it's like to struggle with simple household chores, and the agony of choosing to writhe in pain or be drugged into a stupor. I want to know if there are other people who are so scared that eventually every person in their life will get so sick of them and their pain, that they'll all leave. I guess I just want to know that I'm not alone, because I'm scared of all these things, and I'm so tired.
Posted 5/27/2009 9:06 PM (GMT 0)
Hello Mrs T and welcome,

I'm so sorry for the way you feel. You hit a chord in me when you wrote about people leaving because they are so sick of listening, something to that effect. So often, I wonder about my husband, who has been with me for almost 29 years and 20 of those years I have had this diagnosis. He's never complained, but I can sometimes see it in his eyes. I try so hard not to complain to him, but it's really difficult. Who else can we tell about our pain and being so tired? Really, no one else wants to hear it, no one, well except our friends here and you are definitely welcome here and a friend to all of us.

I just wanted you to know that I do care, and I do understand what you are feeling. I wish you brighter, less painful, more energetic days,

gentle hugs

Miriam

Posted 5/27/2009 9:42 PM (GMT 0)
Hi, Mrs. T, and welcome!  I'm so glad you found us and joined in.  You have come to a good place.  We have wonderful people that love to help one another and, yes, we do understand how you feel.

I'm diabetic also and have fibromyalgia.  It seems that many of us have several other health issues besides fibro.  That's where these forums help a lot.  You not only get support but also some great ideas to help you.

Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia there and you can learn a lot...things that could just help you.

Meanwhile, read back posts and ask questions.  We are here to help  you.  I'm so glad you are here and I hope to hear more from you soon.

Sherrine 

Posted 5/28/2009 1:26 AM (GMT 0)
Thank you all, so , so much. Just logging back on here and seeing that people had replied to me lifted my spirits. I am still new to the fibro life, and maybe for a while need all the support I can get. I'll do my best not to be a whiner :) thank you all once again, it means more to me than you know..or maybe you do know lol.
Posted 5/28/2009 4:14 AM (GMT 0)
Hi Mrs. T!!

Welcome to our family. We are here for you day and night...like it or not...lol Seriously, I am truly glad you joined us because we all have felt what you have at some point in our journey. Pain and fear go hand in hand. But the good news is you don't have to live that way. Yes, you will still have some pain...there isn't much we can do to totally eliminate it. But we can help you with ideas to make your life easier and to lend a shoulder when you need it. I think with your experience you will have a lot to add to our forum. You have made it this far...so you must have something to share.

There is help for those who don't have insurance. One option is to apply for your state supported health insurance. I believe all states have it available. It will mean a bunch of paperwork but there are folks who can help you with it. The rates are on a sliding scale from zero dollars on up. You may be able to get it free. Also, if you can't figure out how to locate these folks just call your local Red Cross and they will link you up. I've seen it happen many times. They are great folks for all kinds of problems.

There are also lots of companies who will donate your medications free if you qualify. People who make things like Lyrica and Cymbalta (I believe) have programs for those who need help with medication payment. Below are a couple of links to get you started. Just ask if you need any other help.

Hugs,
Chutzie

http://needymeds.com/
http://www.themedicineprogram.com/

These manufacturers have free medicine programs. Most all do so look around when you need medications. Don't be shy about asking your doctor for help either.

http://www.lilly.com/responsibility/programs/ (these folks make Cymbalta)
http://www.pfizer.com/home/ This is Pfizer who makes Lyrica)


To locate a Red Cross near you.
http://www.redcross.org/where
Posted 5/28/2009 5:58 AM (GMT 0)
Welcome Mrs. T! You've sure come to the right place for lots of great folks who understand just what you're going through and will support you. about the whining -- it's not really whining..............it's venting, letting go of some of the frustration of this nasty condition and others that seem to also get their claws into you, as if FMS wasn't enough!!! I'm fairly new here, too, and so grateful to have found this friendly, loving place -- I don't feel so alone anymore, and it's a fantastic feeling! Believe me, you'll have plenty to add to the forum as time goes by! Everyone's input is valuable.....
(((hugs))) to you (very gentle ones, of course)
Shash
Posted 5/28/2009 11:04 AM (GMT 0)
Yes this forum is great for lifting spirits. Welcome. I have found a lot of help here.

HARA

Posted 5/28/2009 12:50 PM (GMT 0)
Mrs. T, Welcome. I know you will enjoy this forum it sure has helped me have brighter days. : )
Posted 5/28/2009 2:55 PM (GMT 0)
Hi Mrs T and welcome to the family. I'm so glad you found us. I think we have all lost friends cause they were only fair weather friends to begin with but not everyone will leave you. Educating the people around you can be a challange but some will get it. My 7 yr old granddaughter was sitting on my lap Sun and I indured the pain as long as I could before I had to ask her to get up. Even holding my 7 wk old great grandson can cause my arms and hands to hurt. I know it is only going to get worse as he gets bigger so I hold him as long as I can. But it makes me appreciate the time I can have my babies sitting on my lap or laying in my arms more than most people would. So much of what I use to take for granted are now cherished moments.

 

We are here for you anytime.

 

luv and hugs

Marlee

Posted 5/29/2009 12:00 AM (GMT 0)

Welcome Mrs. T!

This is a great place to have friends. No cleaning the house to have each other over or getting dressed up to go out. Works for me smilewinkgrin

Heh, in all seriousness, it is nice to have people to talk to who understand.

Nice to meet you,

Posted 5/29/2009 2:55 AM (GMT 0)
Once again I thank you all.
Chutz, about the state supported health insurance, is that the same thing as medicaid? If it is, I don't qualify for it, we make $200 too much to get it. If it's not the same thing, please let me know and I will be calling my local Red Cross, as you suggested. As it is right now I go to a Clinic that only charges me $20 a visit. The only problem is, they have very limited resources as far as what they can offer and the times they can offer it. They're only open two days a week for two hours, and it is really hard for me to get there sometimes.
When I first started with this awful pain, I went to the ER simply because getting to the clinic was so hard. Let's just say I was all but laughed out of the ER. That was awful for me. At the time, I just wanted to know what was wrong with me, to have a name for this, some kind of diagnosis, so that I could take that to the clinic...at the end of that ER visit I was diagnosed with "lower extremities" pain (well duh, I could have diagnosed myself). So, any help with finding a way to pay for meds/doc visits/lab works would be so beneficial! I love those people at the clinic, but I am at the point where I need more than they can offer me.

I just want to say that I really look forward to getting to know you all, and hope to make some life long friends. God Bless each of you and your individual needs.
Posted 5/29/2009 4:08 AM (GMT 0)
Hi Mrs. T,

I'm new to these boards, but so far everyone has been very friendly. I'm sure that this is a helpful place to come to for all things fibro.

I know how you feel about having no insurance and making too much to not qualify for the state insurance. That was my situation when I lived in Virginia in 2007... I can completely sympathize with you there. It sucks rocks. I was working two part time jobs and neither supplied any kind of insurance. I also used the ER as a sort of "clinic" when the pain got to be too much, and when I went to the ER, they treated me like I was either attention or drug seeking (even when I told them I can't take opiates!) mad And why would I pay thousands of dollars just to get someone's attention??? Sometimes I wonder where their minds are in the ER... Like you, I just wanted answers.

However, patient assistance - that's the medicine part of it - isn't the same, that's through the drug companies themselves. You need to contact the companies that make the drugs and see if you meet their qualifications. I made too much to get any assistance from Virginia, but I did get my drugs free (I'm talking for my bipolar, not fibromyalgia, which I wasn't diagnosed with until I moved away from VA - just to avoid confusion).

Anyway, I just wanted to say hi from one newbie to another. I'm also new to the fibro thing. My doctors think my car accident in the early part of '06 set mine off. I wasn't diagnosed until last year, some time around April.
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