What's your fibro feel like for you?

Hi Becky, sounds like you are having a hard time.  Hope that this is a flare and will get better for you. 

Sometimes I just feel like the regular flu: achy all over, extra sensitive skin, feeling feverish without a fever, lethargic.  Sometimes I hurt a lot all over and cannot get comfortable no matter what I do.  Pressure anywhere on my body hurts because it feels like there is a giant bruise under my skin all over my body.  The fibro points whatchamacallits hurt way worse.  Somedays I feel pretty good and have mild pain that is tolerable.  Then, for no reason, bam! it will hit me.  Usually that happens when I am out doing stuff like shopping or walking - walking fine one minute - walking like a 90 yr old woman the next.

Sometimes I am exhausted for no apparent reason (except fibro).  Sometimes when people talk to me if feels like the ideas have to get through thick pea soup to reach my brain.  I hear words words words, what do you think?  I brain grasps for a thought and it is not there. 

The other day I had fog pretty bad.  I was (still) working on my thesis and it wasn't going so well.   When that happens I write whatever word I come up with and highlight it so I can go back and fix it later.  For some reason, I was able to think of the words circuitous and indicitive, which is pretty random.  But when my husband asked me where I wanted to go for icecream, I had nothing but blank space!

Sue

On bad days, I'm extremely sensitive to light, noise, movement, temperatures and touch. I feel achy all over and I have a weird headache. Tender points in my inner elbows and knees tend to throb. My feet hurt. I may have anxiety and/or IBS, or a low grade fever. I'm best being left alone in my house, my dog nearby.

On my good days, I only need 2-3 vicodin. On my bad days, I need 3-4 vicodin, 2-3 oxycodone, 3 flexiril. Isn't that horrible. Its not just the fibro, I still have pain in my hips from replacements in 2005 & 2007. I often feel like a druggy. Am I? I would say I am dependant, not addicted.

I also feel like a mac truck hit me on my bad days. The hardest thing for me to do, is unload the dishwasher. Its really weird how loading it isn't as bad.

All in all, I would say I am doing not bad. I like to talk myself into feeling good. It sometimes works. Good luck to you.

Like trolls beat me all night with a meat mallet. But there are good days and on those, I feel like I just got whacked a few times with soup ladle.

Donna

Sometimes like the goblins from Lord of the Rings are drumming constantly on all of my bones.
Sometimes they only drum on my hips or ankles.
Sometimes I can't to anything more than lay in bed and shake.

It's amazing how different it is for everyone.  I was having a bad flare the last 2 days and yesterday it felt like I got sucker punched in the gut.  Don't know what that was about.  I'm on Lyrica.  I don't like it though.  I'm gaining weight and it makes me feel high.   I'm trying Gluten free and I'm going to see Dr. St. Amand.  Oh I also see a chiro 3 times a week who has made me able to sleep through the night.  He'll be starting the fibro therapy on me probably next week. 

On my worst days, every inch of my body hurts. My muscles get so stiff it's difficult to even move. I feel exhausted and like I'm running a fever. I get sweats and cold chills constantly. Sometimes I also feel really sick to my stomach and it will cramp up. The pain is the worst in my back, neck, shoulders and hips, and also down the backs of my legs. On the better days, the worst pain pretty much contains itself in my back, and I can function fairly normally, as long as I take it easy. Everything affects my fibro. Any change in the weather makes it flare up, it gets worse as soon as the sun goes down, and whenever I have my period it is about 100 times worse. I too also work full time, because I don't have any other choice, and also because I want to have an obligation to keep me moving every day (or at least as often as I can manage).

I have been in a really bad flare this week, my worst since our below-zero winter temps. On my good days, I feel calm, alert, perhaps stiff for a few hours in the morning, and am able to pace myself. I will have eaten something for breakfast and at least one other meal. On a bad day, I have to take twice as many meds. On a really bad day, it feels like my body is breaking down. I feel like I'm a mole in Whack-a-Mole and my head hurts. All the little buttons of spine at my neck, all the way down, hurt and burn, can't have anything touch them (no bra! oh, no). Even though I am well-padded, it feels like those bones plus my hips and knees and elbows are about to poke out thru the skin when I lie down. If I try to sleep, everything hurts. I am taking meds but they have plateau'd this week for some reason. I just sit and cry when it hurts the worst, when it feels like a giant is squeezing my bones. Then the pain will feel like St. Elmo's fire spreading across my skin, or electric needles jabbing and burning. I know the pain will ebb and flow, and I will be able to eventually make myself move around a little again, but sometimes I just can't. I am fearful that when I speak I will babble. Tonight I feel like a poorly-assembled bag of human parts, wandering the house in a fog, joints and pieces being tightened and squeezed enthusiastically by an invisible giant. I can't have the dogs or cat on me because it is too painful.