I have to vent before I can help anyone else today!!!!

I had been sitting at my computer for a little while and Krissy had something she shouldn't have so I got up quickly to get it away from her and I got lightheaded, nothing unusual for me, but this time I wasn't close to a chair cause I was in the hall and I noticed my left hand kinda jerking, I guess you could call it, didn't do it very many times but enough to scare me. I got back to the couch and called the doc office and spoke to the nurse, the first thing she asked me was if I was keeping my liquids to a liter or less a day??? No I'm not, I have sjogren's and it is impossible for me to keep my liquids to a liter or less a day. The liter or less is cause of the low sodium problem I have been having. She says to me, "we can't do anything to help you if you don't keep your liquid down to a liter or less a day but if the jerking starts and doesn't stop you need to go to an ER".  I have not had my sodium checked for three weeks, she doesn't even know what it is. She did say she would let the doc know about the jerking when he comes into the office the next time, where is he???

I was livid and in tears when I got off the phone with her and I will never speak to her again. She is not a doc, not even a PA. How dare she dx my problem as being from the low sodium when she doesn't have that right to begin with and doesn't know what my sodium is, it could be back up by now and this could have nothing to do with low sodium.

I already had made an app with my rheumy for next Tues and I will talk to him and catch him up on everything that has been happening with the celiac and the sodium problem and ask him for a referral to an internist in his area.

I was so upset I had to get out of the house awhile and I had a shopping list that I had been making for several days so I went and got that done to relax.

Okay, now I feel better after unloading that on my fibro family.

luv and hugs

Marlee

My second question is.....did you buy yourself another purse today?  That ALWAYS makes you feel better! 

Sherrine

Hello everyone,

As you can tell, I hardly ever post but I read nearly every day.  I had to comment on this topic though. 

I love, love, love my neurologist/pain mgmt. doc but dealing with his staff is a total nightmare.  If I need a refill on something I have to call every day because in the past, they have let me run out of meds that you are not supposed to stop suddenly (like Topamax) even when I called w/plenty of notice.  I've learned that when I leave his office, I have everything i need because if I don't and have to call to get something, it will be a battle to get it.

When I tell him about it, he gets angry but tells me straight up how hard it is to find good help. He'll give me tips on how to try to get around the system next time, but it never works.  He really means well...he's just too busy to keep a handle on what all of his people are doing all of the time. When I tell people what I go through w/his office they think I'm crazy for staying there, but what do you do?  I adore the dr. ya know?

Anyway, Marlee, I can relate to nurses/staff playing the go between in a not-so-helpful way and I'm sorry you had to go through that.  It's always the last thing we need, of course!

Julie

Marlee shops for purses?  Well, I have one I will donate.  It has woodchucks and squirrels on it and is made out of disinigrating burlap.  Plus it smells like gopher pee.  I think it used to be a knitting bag but I think it would look lovely with your new quadfocals.  Four times the beauty as you look at through those all those lenses.

Huggies

Donna