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Posted 9/25/2009 1:35 PM (GMT 0)
who here is able to work full time?  I am missing  about 2 days a week on average and can't seem to have enough "good" days in a row to work 5 days straight.  I work a day or possibly two and then I'm so sore and tired I have to take a day off to recoup.  I work in a group home for adults with developmental and physical disabilities so it can get quite stressful and physical at times.  I love my job but I'm wondering if I need to go to Part time or will this pass at some point so I can work ALL my scheduled hours.

I'd REALLY appreciate anyones and everyones input. 

Thanks to all who respond

 

Posted 9/25/2009 2:00 PM (GMT 0)
Hi megatired and welcome. We have many on the forum that are able to work full time. I am 59 and have not worked since getting fibro and there is no way I could. Even though you love your job it sounds very physically and mentally draining. If you have been trying to work five days a week and your body will not let you it may be time to listen to your body. Fatigue is my biggest problem and if I push myself beyond what my body can do I end up paying for it. There seems to be a fine line between doing all we can do and over doing it. It is frustrating to be in the middle of a project and to have to quit cause you just can't go on any longer but that is fibro.

 

Read the fibro101 thread that is first on the first page it contains lots of great info.

 

Whatever you decide I hope it works out for you.

 

luv and hugs

Marlee

Posted 9/25/2009 2:21 PM (GMT 0)
Hi there,

I wasn't able to work for nine years. But since I started the malic acid/magnesium supplements. I am now working a part time job. Which was like a miracle. I am tired on my days off, but am just so happy that I am working again. So dont' lose faith. But as Marlee says, you might want to start listening to your body. If it is too much for you, you might go into a flare. That would be difficult to work at all if that happened.

best wishes for feeling well

Hugs, Karen
Posted 9/25/2009 4:16 PM (GMT 0)
Hi, Megatired, and welcome!  I really can't offer much here but I, too, use the malic acid/magnesium supplements and they have helped me also.  I also take Vitamin D3 and that, also, helps with pain and fatigue.  Many with fibro are deficient in these vitamins and nutrients. 

 

Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links about these and you will learn a lot.

 

I'm so glad you found us and joined in.  I hope to hear more from you soon.

 

Sherrine

Posted 9/25/2009 4:22 PM (GMT 0)
Well, I personally can't work at all, but a lot of people are able to. I think that it might be a good idea to go to part time for now, and if you feel better and like you can work full time again, then try it. Unfortunately, that's really all the advice I can give you. Good luck.
Posted 9/25/2009 5:50 PM (GMT 0)
i'm one of those who cant work at all any more. i am on full disability. on the other hand i worked for years when the symptoms were milder, so it all depends.
Posted 9/25/2009 8:31 PM (GMT 0)
Hi Megatired,
Welcome to the forum, you'll find it so helpful here. You seem to have a very demanding job. Both physical and emotional! No wonder you're tired. When I was first dx, I took a short term LOA, then went back part time. I had a hard time even then. I had an office job in health care. I thought that by taking the LOA I could try to rest up and get back my strength, but it didnt work. Then my employer wanted me back to full time, but I just couldnt do it. I had private long term care insurance, so I applied for disabitly which I got and not I'm on SSD. You have to listen to your body. The trouble with this disease is that it's so unpredictable, which makes it hard for scheduled work. Good Luck with everything!
Deb
Posted 9/26/2009 3:54 AM (GMT 0)
Megatired, I am kind of at that same stage right now too - I miss one day a week or one every six or seven work days. My boss is very understanding but I am really, really trying to stay on track despite the pain and fatigue because I have a performance review coming up for a raise. On my crying-pain days I dream about going on disability - I've been in a major flare since January and I hope it's beginning to ease up. Otherwise... I'm starting to think about it.
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