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Posted 12/17/2009 6:44 AM (GMT 0)
So today I'm going to break the rules. shocked Yep, I have a question that I would like everyone to answer honestly, even if you have to use the 'P' word. My question is...How are YOU doing? I mean how are you really doing? For many people the Christmas season is busy. Some celebrate other holidays this time of year also. No matter which you do it is likely that the activity level picks up for the next couple of weeks.

So how are you feeling? And how do you manage it?

I'm dealing with a pile of extra pain just from lots of physical movement. smhair Plus the colder weather makes it harder also. I have to remind myself to take breaks, slow down and not take on so much. I'm famous for that one. smilewinkgrin I think I also need to get more ME time. Going to have to work on that one. I've also been a bit frustrated with my young son, 31 and his wife...both whom I dearly love. But that's something that's been ongoing and I'm trying to let it go. (too long a story to go into here) Holidays are a bit sad for me any more...hard with so many family members gone. But I do keep going for the kids and grandkids. If that doesn't keep me young then it surely will keep me work out... smilewinkgrin

So, how are YOU doing? Honestly? It doesn't have to be a lengthy description but please share.

Warm hugs,
Chutzie wink
Posted 12/17/2009 6:54 AM (GMT 0)
Crappy. Guilty at not being able to work. Extremely painful. Sorry for myself. Other than that....!
Posted 12/17/2009 2:56 PM (GMT 0)

Really want to know?  One of my DIL's had ACL surgery two weeks ago.  She has a horse.  The woman who was taking care of her horse until she recovered got kicked in the head by another horse and had part of her brain and skull removed and is still in a coma. (please say a prayer for her...she is a wonderful lady)  My DIL is hobbling on crutches with my son to the stables every night after each of them working 10 hour days, to shovel the poop for six horses. I can't help them which makes me feel terrible.  My other DIL had four ovarian cysts/tumors removed yesterday.  My son, her husband, got a call from his doctor saying there was blood in his stool and he is scheduled for a colonoscopy Jan. 8th.  This is the same day he quit his job and took another job(supposed to start on the 28th of Dec) that he wanted very badly...can't do it now and has to grovel for his old job back or none of this will be covered by insurance.  Then I get a call that my other son (I have three) had heart attack symptoms and spent the night in the ER last week.  Did a second stress test yesterday and found something...can't even think what its called...a valve or flap or something isn't working right.  Except for the son with the 'horse' the other two are 1000 miles away and I feel so helpless.  I can't fly because of Meniere's disease...so...planning a trip by car south through the blizzards of NY after Christmas to see my twin sons.  Yes...I am in PAIN.  But...I have to be there for my kids, and will be no matter what this &*%$ disease throws at me.  So take that...stinkin' fibro.

Oh...and my husbands 12 year old grand daughter just spent a week in the the psych ward at Boston General because something not so nice happened to her at school...still not sure what the incident was because she won't tell anyone.  I can only imagine.

Donna

Posted 12/17/2009 3:18 PM (GMT 0)
((((Littleneck)))) and ((((Donna)))) very gentle hugs to you both. ((((Chutz)))) too, I see that you have been having a hard time lately too.
I'm so sorry that you all have this added stress, especially this time of year.

Me, I'm doing pretty good right about now. (I almost feel guilty writing that) I started on the malic acid again, and can already see an improvement with only 3/ day. I have pain in my hands, back and legs, but I can handle that. I find the malic acid helps with the all over achiness that brings me so down. It's either that, or the weather. Even though it's cold, it's dry.

I still don't have much baked for Christmas, but I keep gettign that thought out of my mind. The only one that is goign to bother is me. I am done shopping, the decorations have been up for a while. All I have to do is wrap. And plan some things for the kiddos starting next week. It's all about the memories :D

I wish you all a little happiness and joy, but especially peace in your hearts and a lightness of body so that you may all enjoy the Christmas season.
Posted 12/17/2009 3:58 PM (GMT 0)
I miss my family in Wisconsin, not being there for the holidays. My hubby originally had to
work and there was no way we could fly to WI. My Dad has hospice set up at their home.
This will be my Dad's last Christmas. I have been flaring, due to stress and cold weather.


Hubby thought I could use some R&R, so he manged to get time off of work and just bought
tickets to fly to Florida to surprise me. His thinking the warm weather would be good for
me. I love him for it but I am feeling bad about not being with my Dad for Christmas.

I was able to fly there in mid October to visit with him and I do talk to him daily.

I know that I can fly there after the holidays and spend some time with him, but I guess
I have put myself on a guilt trip.

While we are in Florida we will be visiting with my hubby's sister. She has no children and
her husband died 2 months ago. We plan on taking her with us on our adventure.

Gentle hugs and prayers to my Fibro family. so sorry for those going through difficult times.

Hugs, Robin

Post Edited (crazykitty) : 12/17/2009 9:06:15 AM (GMT-7)

Posted 12/17/2009 4:57 PM (GMT 0)
Wow so much going on in everyones life. ((hugs)) So far this has been an extremely trying holliday season! Problems in my relationship that are thankfully getting better! Being diagnosed with fibro earlier this month. My bfs unemployment check got dropped 150 dollars a week before Christmas definitely isnt helping my stress level. And of course being that i honestly cannot handle stress emotionally and is a big part of my disability. (couldnt even finish hs from it). I Also feel like a pocrap because i cant work for emotional reasons now i have to try and limit or pace myself better physically as well. The pain is pretty intense and i wish i could find that med i could take along w lyrica to help during the day esp. In the am. wow im done complaining ill stop now. Thanks for letting us all getting this out Chutz :)
Posted 12/17/2009 5:17 PM (GMT 0)
Sorry for people's stresses. I've had some of my own. My FIL died last week, and we had to travel to MN from MI. It was a 14hr drive. We stopped at a hotel in between. We are going back to MN for Christmas next week. All this traveling has me in a lot of pain....but I'm doing pretty well after resting for 2 days this week.

My husband is still having problems with his old business partner. The guy just can't cause enough trouble - besides being a crook. This year has drained our bank account because of it.

I've gotten through this year with lots of prayer.
Posted 12/17/2009 5:49 PM (GMT 0)
I'm sending big hugs and prayers to those of you with such bad problems. My biggest trouble lately has been the new pains in my legs. Previously my knees and hips hurt. Now I have pains in my muscles and tendons all up and down my legs, front, back, sides. My Rheumy says it is probably my back, but the chiropractor says only some of it is my back. The only time I ever feel pain free is right after my massage, but then I have to get up off the table and the pain comes back.

Also, this is good stress, but still stress. All the family is coming for son's wedding on New Year's Eve and my mom is convinced we'll have to cancel the wedding because the weather will be so bad. That's her general attitude toward everything. Smile, everyone! Diane
Posted 12/17/2009 6:21 PM (GMT 0)
you all dont know alot about me.i joined about 6 mo ago i have not filled out the profile yet.im not good at typing all the meds and stuff.but i fell i have to respond to this.how am i i doing.i lost my mom 23 of dec lost aunt 25 of dec lost an aunt that was like my second mother the 6 of jan.lost my husband the 30 0f dec 1 yr later.now in dec of course i have a mass or lump in my left breast on my way to dr now for mamagram.how do i feel it takes more engery to feel sorry for my self than to have the out look what will be will be.maybe im to set example for others.i will deal with what ever life has in store for me .and you better believe i will give it a run for its money through the pain and what ever i have to face      char
Posted 12/17/2009 6:35 PM (GMT 0)
turn okay here goes I have been running around doing Christmas shopping and not giving myself any me time. I am starting to feel it now.  Plus my son who is 38 came home because he is getting a divorce. This was long time coming. My stress level is very high right now so my body is reacting. My headaches seem to be everyday now plus my legs and arms are hurting real bad. The effexor works and then doesn't. I am going to a new doctor in January and hopefully he will help me. The doctor I have now is not very talkative so I didn't even know I had fibro until I looked at the paper he gave me to give to his secretary and it was written on it.  How bad is that. He diagnosed me 2 years ago and never came out to tell me. So it is time I move on to another doctor. Other than that I am doing okay. Hate to complain and vent but I had to. Thanks for listening also thank you Chutz for the ribbon, I received it today in the mail.  That made my day believe me. Thanks again 
Posted 12/17/2009 6:36 PM (GMT 0)
Well, I am doing ok. The pain is at a managable level. But I am a little stressed out. I have a lot going on right now. My sister wants me to have Alex open his presents from us over at her house. Well, we're not going to do that. I don't really care if it upsets her or not. We also have my husband's mom's and dad's Christmases (sp?) to go to on Christmas day. So that is going to be busy. Alex and I will be going over to my sister's house on Christmas Eve, while my dh goes to his grandpa's. My mom is having her Christmas the day before Christmas Eve. That day, Alex has two therapy appointments, one right after the other. My dad and his new wife will be here late this Saturday night, and they will be here for a week. I've got a therapy appointment early Christmas Eve morning. Everything is going to be really hectic. I fell really tired. It just hits me all at once. I will be fine and then BAM! I just about collapse from being so tired.

Also, I am really stressed out because for some reason that I don't know, one or two of my neighbors is telling one of my other neighbors that I have been saying a lot of crap about him to them. Which isn't true. I only say that stuff to my hubby. This guy makes me mad a lot of the time, but I don't talk to everyone about it. Just my dh. I don't know why people are saying all these things that aren't true. I just don't get it. I don't know if it is that one of my neighbors is mad because I asked her to have her bf and his friends be quieter in the hallways at night. I sleep in the living room because I just don't sleep when I try to sleep in my bed. I hear them every night at ALL HOURS of the night. I just asked her nicely to ask them to be quieter. If she did, they aren't listening. So, I don't know if she is making this stuff up because of that or what.

I hate not being able to have friends or trust people in our building. I just want to get along with everyone, but apparently that isn't possible. So, now, I really don't have anyone to talk to. It just really stresses me out and makes me mad and sad.

One more thing that is stressing me out is that my dh's brother owes us money. He said he would pay us last week, but now he is saying that he isn't going to pay us until he buys a car, which is stupid since he doesn't even have a permit, but, whatever. He owes us $60, which we could really use right now.

Sorry this was so long. I didn't mean for it to be, but I just got into ranting about all this stuff that is stressing me out. On top of all that, the cold weather makes me hurt. But, I am going to leave it alone now. I'm not trying to write a novel. So, sorry if this is too long.

Posted 12/17/2009 6:37 PM (GMT 0)
Wow, my heart and prayers goes out to all of you with so much going on in your lives right now.

 

I finished cleaning the house this morning and pretty much ready for all the kids who will start coming in tomorrow evening for our long Christmas weekend. I am tired and have a horrible headache but I'm done, finished and quit. I have a couple of treats I want to get made but if it happens it happens. Still haven't gotten any cards out and they will probably be late this year.

 

So besides the fact that my DH has to have a heart cath done Mon morning I can't complain too much. Hopefully, all will go well and he will be home Tues. If we make it to my sisters for Christmas Day fine and if we don't fine.

 

I just want to feel good and have little pain til I get him home and then if I fall apart from all that I've done so be it.

 

luv and hugs

Marlee

 

Posted 12/18/2009 6:31 AM (GMT 0)
I am a bit taken back by all of the misery going on with all of us, but I am very glad I asked this question today. I think it's better than to pretend that everything is just fine. Every Christmas without my son is hard no matter how long it's been but like many of you there just isn't anyone who I want to talk to about it. No one wants to hear it after all these years.

Char...I'm so glad you decided to post today. And even more happy that you are part of our family too. Being together, especially when times are so hard, is so much of why we are all here. It's why I offered to help out and do some mod work...because it helps me along the way.

There's no way any of us can work magic to life everyone's problems but I think all of us have each other is our hearts now and know each other just a bit better. If you are inclined to pray then I think this is a great time to offer prayers for each of us here. If you have some type of higher power then do what works for you.

Thank you so much for sharing...I know it's not easy. You are all, each individual, are in my prayers tonight.

Hugs,
Chutzie
Posted 12/18/2009 3:35 PM (GMT 0)

Chutz,

I read the post yesterday, but I just couldn't respond. I don't know how much better it is today, but I will try. My DH's health situation is extremely upsetting, he has to go back to heart hosp for stent, but he is dealing w/ low kidney function right now and I'm scared. We are running from one dr to another. The med bills are coming in fast and furious. My sister is pulling her end of the yr crap as far as my mother and me - I can't deal w/ screaming. I have been cleaning and eliminating as much junk as possible. We may have to sell our home. My son is moving into his 1st apt at the end of the month, normal thing, but I will miss him. It was recently the anniversary of the loss of my precious nephew, I still can't get past that.

Those are the bare bones, I can't deal w/ all the details right now.

Then reading about all the sadness of our friends here, it just seems like way too much is going on. I wish we could just have a large, stretched out  'group hug'. It does sound like we need it.

I have been so tired and so sick to my stomach. I feel like I'm going through the motions. I guess it isn't any better today. Sorry to be such a downer. I will pray for strength for all of us.

God bless.  Alice.

Posted 12/18/2009 4:13 PM (GMT 0)
(((Hugs))), (((Hugs))), and more (((Hugs))) to all who responded and are going through such tough things right now. I'm in lots of pain and struggling with some mild depression, but for now that is all I'm dealing with. I'm keeping you all in my prayers.

Austen
Posted 12/18/2009 4:22 PM (GMT 0)
I'm not sure if I should be able to respond to this plus I'm a day late. I don't have FM, but am on here for support because my 14 year old daughter has it. I don't have the pain she does but I have stress. So I guess I'll write. This Wednesday was the worst. We found out that day she has heavy metal poisoning. I have a brother w/ MS who still lives on his own. He needs assistance nearly everyday & he is at a crossroads with needing constant help, we're looking into it but it's complicated because he makes too much money to get assistance paid by insurance. Both of my parents have macular degeneration and are legally blind. They are in their 80's, live alone still, do quite well. Dad has heart disease & diabetes. Anything they need done, I do it. I have 8 siblings but I'm the only one who lives in town, besides my brother w/ MS. When siblings come around they are just full of advice & then go back to their world. I try to do my parents errands one day a week so it's not consuming my life. The requests are constant "when you get a minute, we need ..." My teen age son has been sworn into the military & will leave in 3 months. Wed night he said "I promise you will not be part of my life after I leave." He was mad and acting like a spoiled child but his remark came at just the perfect time. I only work part time but the job is totally engulfing because I'm the secretary at our church. We've had a lot of painful stressful changes in staff. I don't make much but I don't have time to work full time. My daughter is sick plus I'm homeschooling her. I feel guilty because all the people I've mentioned are blind, sick or crippled & have it much worse than me. My husband is great but works full time & has aging parents of his own. He is stressed about our daughter but is thankful he can go to work to "forget everything". I'm about to go nuts with all the mental stress. I pray & know the Lord helps me but I'm still totally stressed! I don't have time to work out to get it off me.
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