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Fibro, RLS, and medication...

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Posted 12/24/2009 2:16 AM (GMT 0)
I have been diagnosed with RLS for about ten years. No medication has worked accept the narcotic line....therefore I have been dealing with it without medication for almost the whole time I have had it...Now just diagnosed with Fibromyalgia...I am on Flexeril and Elavil.....

When I take them it drives my legs crazy..and I usually end up sitting on the edge of the bed half asleep cuase the meds put me out and half awake cuase of my legs hurting so bad...Does this sound like anything any of you deal with...? (kind of hard to walk the floors for releife when your falling asleep!!!!

Posted 12/24/2009 2:23 AM (GMT 0)
Hi Issybog,

I use to take mirapex for restless leg syndrome.  Do you have restless leg, or do you just have pain?    Restless leg would keep you awake at night, even with the sleep meds, if it were effecting you.  You would want to walk, that is really the only thing that relieves it other than medication. 

Check out fibro101, it is the second thread on the fibromyalgia forum.  I do believe it does have some posts on resltess leg if I am not mistaken.  If not, I am sure others will share with you what they do.  I am just not clear as to whether you have it, or if you just mean the pain that you are experiencing. 

Flexeril should be relaxing your muscles, which should make things better for you.

I hope that you feel better soon.  Keep posting, as we are all here for you.

Hugs, Karen

Posted 12/24/2009 2:28 AM (GMT 0)
its restless leg....the meds seem to make it worse..like the more relaxed i get the worse my legs feel...same thing happens with any pm medicines...
Posted 12/24/2009 2:34 AM (GMT 0)
Oh no that's horrible! I have RLS myself but its pretty well under control with Requip. Though strangely enough, it does seem to act up during the day sometimes. My best advice is just not to give up and keep working with your doctor. Good luck and I hope something helps you soon!
Posted 12/24/2009 2:36 AM (GMT 0)
requip and other meds for my legs are kind of out of the question right now..as I dont have insurance..so Im trying to fight this and work with my doc....all on little to not enough...I did try the requip....and was not succesful....
Posted 12/24/2009 2:40 AM (GMT 0)
Oh no that makes it even harder. Ugh..I hate how complicated all of this medical stuff has to be.
Posted 12/24/2009 12:00 PM (GMT 0)
You know that's funny, because the more relaxed my legs get the more uncomfortable, crawly and kicky they get. Last month or so when I had to go to the ER for that vertigo episode (ocular migraine), when they gave me the IV full of medicine to relax me, my legs were out of CONTROL as I lay on the gurney - so crawly and itchy. I almost preferred the pain, it was so strange-feeling. My arms as well- I have twice in a row now woken myself up with both my arms shaking. I'm at the point where I think I'm going to talk to my regular doc about adding a medicine or changing one to include something for RLS.
Posted 12/25/2009 3:50 AM (GMT 0)
You might want to include your pharmacist in this discussion. He/she may have more insight into the drugs' interaction in your system and possible ways to avoid these problems. They might also be able to suggest alternative meds for your doctor to prescribe. Just my 2ยข.
Posted 12/25/2009 4:51 AM (GMT 0)
I was on Mirapex too... didn't seem to due to much to help. When I have a RLS attack, I slap on my Lidoderm Patches! They work great! I don't have to take a med constantly.. just use them when I have a RLS attack. You can only have them on for 12 on & 12 hours off, or your body gets use to them. I don't have RLS issues everyday so this works really well for me.

Hope this might help :0)
Posted 12/25/2009 5:15 AM (GMT 0)
When I suggled with RLS, I tried mirapex, and it made my legs worse. I felt like things were crawling on them.
Posted 12/25/2009 1:30 PM (GMT 0)

I was dx'd with RLS years ago after complaining about crawling/tingling sensations on my legs when I sit too long or lay down.  It happens in the daytime too and the only time I don't feel it is when I'm walking around.  At night I move my legs all over the bed, but I don't have the jerking movements some people describe.  Anyway, I was put on lexapro for fibro and it made the RLS worse, and given valium at night just so I could sleep through the crawling 'bug's on my skin.  I stopped taking the Lexapro about three months ago as it did nothing for fibro pain. (that's onother story...never just stop taking an SSRI) and just take valium at night.  It helps.  My doctor did not want me to take Requip or Mirapex...said the side effects were worse than the symptoms so I don't know if those drugs work or not.  I have a friend with severe RLS and she takes Kolonopin and says it relieves all her symptoms.  It sure is an annoying disorder!

Huggies

Donna

Posted 12/25/2009 4:27 PM (GMT 0)
I remember when I had it, I just wanted to get up and run so far that my legs would give out. But of course didn't have it in me to do that. So I got up and walked around the house. They say that is the best thing to do if you can. But yeah, it is a frustrating thing to go through.

Hugs, Karen
Posted 12/28/2009 1:36 AM (GMT 0)
My doc has me on amitriptylin for my RLS...it also puts me to sleep and keeps me asleep all night. I'm having a bad time now - but it was working for me. I guess they give this drug to people with amputations - it helps so they don't have phantom itches.
Posted 12/29/2009 1:29 AM (GMT 0)
One of my first symptoms was RLS, and I thought I was imagining things. It didn't exactly hurt, but it was so uncomfortable!

amitriptyline for RLS? I didn't know it was good for that too, but that would explain why my symptoms of it are so much better now.

I read a tip a while back here that I tried for RLS. You know how sometimes walking doesn't really do it, it's not enough? This poster would rock really hard in her rocking chair, I mean really pound down on the floor. I tried it and it felt really good... good thing i don't have any downstairs neighbours ;)
Posted 9/16/2010 9:15 PM (GMT 0)
Does it make sense to have your hair hurt with Fibro? The top and back left side of my head hurts....but not on the inside....like on the scalp. I ruled out any inside brain issues with CT and I have to laugh when I say that my "hair" hurts. I have multiple other aches and pains, to include leg pain issues that sometimes keeps me awake most of the night. I had a 6 mo. bout with vertigo...I think that happened prior to the hair hurting. I tell ya...mid.-50's is not the most pleasant time of ones life. I've gone back and forth between my PCP and a rheumatologist with my symptoms...even my gyne, as some of my aches were where the sun doesn't shine (TMI)...no one diagnoses me with anything in particular. I've been in this pickle now for almost a year. Does anyone relate to this?
I take only Atenolol for HBP and synthroid for hypothroid condition. Occasional Advil PM with an Alleve to sleep at night.

Crazy in AZ
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