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Aunt Wilma Died

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Posted 1/25/2010 2:55 AM (GMT 0)
Not asking for condolences, just wanted to let you know that for the first time I heard the word fibromyalgia mentioned during a funeral service yesterday. She was married to my hubby's uncle so we weren't super close but she was a neat lady. She was so surprised when she found out that I have fibro because she hadn't heard much about it. For the last few years at every family function and picnic I've given her all the benefit of the things I've learned here and I hope I made her last years a bit more comfortable.

At the service my husband heard the "WORD" said out loud, discussed, used as in "suffering" and "pain" and "coped" and "fought"... and he gently put his arm around me and I could see he was thinking... hard. It isn't written across our foreheads in big green letters... we groan a bit and fight just to get out of a chair at times but mostly we don't complain. It was nice to have someone else mention it, and speak highly of the woman who lived her life to the fullest even though she had this dumb disorder.

Like I said, I don't want condolences or pity for Aunt Wilma (although prayers would be nice!) and I certainly don't want pity for myself, just some understanding sometimes would make it a bit easier to bear this crunchy lifestyle.
Posted 1/25/2010 3:55 AM (GMT 0)
Jeannie, I am sorry for your loss, sending gentle hugs and prayers. Jeannie you can feel
good to know that you were able to help ease some of her pain with the advice you were able
to give her. I'm sure Aunt Wilma appreciated your concern and understanding, sometimes
that is what a person needs most.

Hugs, Robin
Posted 1/25/2010 4:36 AM (GMT 0)
Jeannie...

Thanks for mentioning this wonderful woman and her story. It does give validation to us and something for our loved one to think about. I am sorry for your family's loss but maybe by her remembrance will help others know about fibro.

Hugs,
Chutz
Posted 1/25/2010 2:05 PM (GMT 0)
I'm sorry for your loss and sending hugs and prayers.

We are a sisterhood of fibromites, and when one of us is validated, understood, taken seriously, comforted, etc. it is a victory for all of us.

Hugs - Austen

I had to edit this to include all of our "brothers" out there. You are part of this crazy fibro family too.
Posted 1/25/2010 2:20 PM (GMT 0)
Jeannie, I just want to say how very well written your words were. Understanding is all I am hoping for too. This makes me feel we are becoming more recognized for our daily battles.

Thank you for the post.

Patsie
Posted 1/25/2010 3:11 PM (GMT 0)
Prayers for the family.

 

I do believe if fibro was talked about at a funeral like that it would get a lot of family member's attention.

 

I like to watch the TV show "Hoarders". I have an interest in any mental illness. Last week one of the hoarders had fibro.

 

There are reality shows about everything else maybe we need one to show what life with fibro is really like.

 

luv and hugs

Marlee

Posted 1/25/2010 3:23 PM (GMT 0)
Jeannie,

I just want to say that I am sorry for your loss. But it sounds like Aunt Wilma was a wonderful lady. And I am glad that you were able to be with her and help her with this disorder. You are a wonderful person.

Prayers are going out to you.

Hugs, Karen
Posted 1/25/2010 6:34 PM (GMT 0)
I am sorry about Aunt Wilma but your story was wonderful.  I do think people are starting to understand a little about this illness.  Most people hadn't heard of it but now quite a few do.

 

There is a new commercial done by a fibro group that seems excellent.  I don't understand what it is saying, but the people with fibro are real fibro patients.  They aren't hopping around like the Lyrica commercial.  One woman has tears in her eyes as she talks about her pain.  So, the message is finally getting out and that should help all of us.

 

Jeannie, thanks for sharing this touching story.  I know I will remember this and I will offer up some prayers, too.

 

Sherrine

Posted 1/25/2010 6:52 PM (GMT 0)
I have seen that commercial too Sherrine and was surprised that it showed what fibro is really like. I'm thinking it had something to do with fibro centers, I don't think it had anything to do with meds.

 

luv and hugs

Marlee

Posted 1/25/2010 7:10 PM (GMT 0)
You are right, Marlee.  That's why I said it was a fibro group that produced it and I do think it is fibro centers.  I just couldn't remember the name.  Hmmm....I wonder why?  mad

 

No, the medication  commercials make fibro look like a walk in the park to have fibro if you take their medications...that's if you can get over your dizzy spells and lose enough weight to be able to walk again!  devil

 

Sherrine

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