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Fibromyalgia
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Posted 3/10/2010 8:53 AM (GMT 0)
Hello all. I am 36 years old and have had signs of fibro since I was around 18 or so. I did not have much pain,but had the numbness,fibro fog and other "stroke like" symptoms. I started getting the pain around 2 years ago and I am on Cymbalta and Topamax. Anyway, my question is does your pain ease off for a time and then come back with a vengence? My pain will be tolerable (unless I do a lot of physical activity) and then all of a sudden it will hit me and I will barely be able to move for days or weeks at a time. Just wondering if anybody else has this happen to them?
Posted 3/10/2010 11:48 AM (GMT 0)
Welcome to the forum Triggerluvr,

You have found a very good place to come for answers. There is a thread called fibro101 that you should look over. It is the second from the top. I am sure that you will find a lot of information there.

I think what you are describing is what we call a fibroflare. When you over do things, this can happen. And it sounds like that is what is going on with you. Learn to pace yourself, even when you are feeling good. We tend to get as much done as possible on the days that we feel better, which ends up putting us into a flare, where you are much more exhausted and in much more pain. So all things in moderation, even work.

I hope that you get to feeling better soon. Know that all of us here understand what you are going through. And will help you as much as possible.

Have a wonderful day, and again, welcome to the forum!

Hugs, Karen
Posted 3/10/2010 3:19 PM (GMT 0)
Hi Tiggerluvr and welcome. This is great forum. You described what happens to me. I'll be feeling pretty good and then WHAM!.. Weather really affects my pain. I can go to bed feeling good and wake up with horrible neck, shoulder, hip, leg and head pain. I'll look outside and sure enough, some kind of weather change has occurred. Rain and windy weather really is a trigger for pain. The pain will last for days.

You'll get lots of help and support here. Have a wonderful, and hopefully painfree day.
Posted 3/10/2010 6:16 PM (GMT 0)
Hi, and welcome!  Yes, if we overdo, our body will scream at us.  You have to pace yourself.  You can't do the same things in the same time frame as you used to.  It is important to keep moving, though.  You can't be inactive for a while and then decide to work out at the gym.  You will usually end up with a flare if you do.  That sounds like what is happening.

 

I see that Karen directed you to Fibro 101.  There are links to good info about fibromyalgia there and you will learn a lot.

 

We have a wonderful group of people here that love to help one another so you have come to a very good place.  Don't hesitate to keep asking questions because we are here to help you.  I hope to hear again from you soon.

 

Sherrine

Posted 3/10/2010 8:57 PM (GMT 0)
Thank you for the welcome and your advice. I quess I am having flares but I don't know what I did to cause this one. I did some house cleaning on Sunday,nothing major,and by that evening I was in terrible pain. It hasn't gone away since. I am a 911 dispatcher and I continue to work but I sit down and dont have to do anything really physical at my job.It does have a major stress factor to it and I know that can add to the body not feeling well. I am so thankful that I found this site and can come to you guys for helpsmilewinkgrin
Posted 3/10/2010 9:39 PM (GMT 0)
You don't have to do anything for a flare to start!  That's happened to me more times than what I want to remember.  Just try to keep the pain under control.  I use over the counter meds to  help me with that. 

 

There are some good stretching exercises that really do work that are on Fibro 101.  These are done sitting down.  They were designed for long flights to help prevent blood clots but they work great for fibro, too.  So, you can do this at your desk at work and it might just help you some.  You do need to be moving somewhat to help with the pain.

 

I hope this flare leaves as fast as it came.  Feel better!

 

Sherrine

Posted 3/11/2010 12:15 AM (GMT 0)
Hi Tiggerrluvr and welcome. There is no rhyme nor reason behind a fibro flare sometimes. Today there was a big temp change and by all rights I should be hurting from head to toe but I'm not but when I least expect it here comes a flare. Stress does have a lot to do with fibro and pain.

 

Keep asking questions and we are here for you.

 

luv and hugs

Marlee

Posted 3/11/2010 2:46 AM (GMT 0)
Lyme disease can alco have monthly flares. you may want to rule that out.
Posted 3/11/2010 1:02 PM (GMT 0)
Merrygirl-I have been tested for lime disease,and almost everything else you can imagine,they were all negative. They thought for a long time that I had MS because I had numbness and slurred speech and would have fibro fog but really didn't have much pain. The pain is relatively new to me. When you look at the list of symptoms for Fibro I have pretty much all of them but the pain came last. I quess I just had to be different.LOL
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