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Please Help me, I know I keep posting but I am scared and crying!!!!

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Posted 5/12/2010 12:59 PM (GMT 0)
Ok I have been under severe stress for a year now with numerous medical conditions. So now as you all know I have this pain all over currently it is in my right shoulder blade running down my arm into my thumb, also my knees and the indises of my ankles. Is this the pain you all experience and what tests did you have to rule out more serious conditions. Last night my feet hurt so bad I couldnt do anymore housework. Also my hips hurt and upper and lower back. Did your condition start after a stressful event.? Thanks so much I just dont know what to do anymore. Oh also when I was cleaning the floor the other day my hand hurt so bad to lean on it. Oh and what meds do you take and did the reumatologist give them to you? 
Posted 5/12/2010 1:39 PM (GMT 0)
Hi Mary,

Yes... my fibromyalgia did start after a traumatic event.  My dad passed away suddenly.  I was very close to him and he was only in his fifties.  A couple of months later, I was diagnosed with fibromyalgia.

Were you just diagnosed?  It is all very overwhelming and scary at first.  The hardest part is accepting that your life IS going to change.  You will no longer be able to do everything you once did.  Scrubbing the floor is something I know is still beyond my ability to do, and I feel like I have improved considerably in the past year.

As far as pain meds go, I took Ultram for quite some time, until it seemed it no longer helped me.  Now I just take ibuprofen and Tylenol when I need it, but prefer to try White Willow Bark capsules first since they are easier on my body.  What worked for me might not work for you or others, but then again, some of it might.  I simply try to eat as naturally as possible.  I totally avoid sodas, refined sugar, and white flour.  I severely limit fast food and convenience/packaged food.  I make it a priority to get all my fruit & veggie servings (through a supplement, since I don't like many fruits & veggies otherwise wink ).  I work constantly to improve our indoor air quality, and I use all non-toxic cleaning & personal care products.  All this has helped me considerably.

I have heard of others being able to find relief through the guaifenesin protocol, through working with their docs to lower their TSH (thyroid stimulating hormone), and increasing their Vitamin D.  I think it is well worth each fibromyalgia patient looking into diet, lifestyle, and other factors for themselves to see if they can see any improvement in their condition.

Hope you feel better soon.

 

Post Edited By Moderator (Sherrine) : 5/12/2010 11:47:39 AM (GMT-6)

Posted 5/12/2010 1:49 PM (GMT 0)
Mary, your stress is getting the best of you. Fill a warm bath and soak and concentrate
on your breathing. Tomorrow you will be seeing your rheumy. Sit and make a list of
questions. I bring a list with me everytime I go because I tend to forget (fog bigtime).

Sometimes there is no ryhme or reason for fibro, We are all differant. Some might tell
you it was a stressful event that triggered it or others had surgery. The important thing is
to do what you can do to feel better. Long soaks in the tub or hot showers help make me
feel better. Using my bedbuddies, I have several that I use at the same time. Relaxation
therapy is a must for me or I hurt all the more.

Meds are differant for all of us too, what works for one might not work for another because
we tolerate things differantly. Our pain levels differ. Our fatigue levels differ. Meds are
trial and error. I take Savella. It keeps 2 of the neurotransmitter levels in the brain up.
I also take Flexeril(cyclobenzaprine) which is a muscle relaxer and both drugs were
prescribed by my rheumy.

Taking one day at a time is very important. I hope you have a restful day. Try to get
some exeercise in, maybe walking it is a wonderful stress reliever and great for fibro.

Wishing you good days ahead, Mary!

Hugs, Robin
Posted 5/12/2010 2:18 PM (GMT 0)
Stress can do many things physically to the body......trust me I know.

I have really good days and days that are not so good, it's those days I need a nap which drive me crazy.


I have been dealing with this for 5 months and not many answers yet, I know you are scared but you have to get to the point of surrendering. I have and am in your boat.

My started after getting sick this winter and loosing weight, then went into a depression because I knew something was wrong. I do have pain in my hands and arms, shoulders that come and go. Muscle twitching and my feet hurt at times. My neck/back will there is pain everyday but I believe that is from a car accident several years ago.

Don't stress, I know it's hard not to but it doesn't help only makes everything worse.


I agree vit d helps, many are low in that area and it can cause muscle pain. I am on an axiety med which helps with the twitches not the pain though, lol.

((hugs)) will be praying for you.
Posted 5/12/2010 3:38 PM (GMT 0)
Mine came on gradually. Washing floors?? That's a thing of the past. Windows, tubs, vacuuming, taking out garbage - no more. I learned the hard way - too much stress on the muscles to push on them that way. Now I just wander around the house, bring a couple of pairs of jeans down at a time to put in the laundry, unload a few things from the dishwasher, bring in a few grocery items from my trunk. Then I sit again for awhile.... but I do walk now, usually about half a mile a day. My doctor says that's the most important thing to do. At least this way I'm getting some cardiovascular exercise, and they say you use all the muscles in your body when you walk. I still have pain but not as intensely (usually.)
Posted 5/12/2010 7:49 PM (GMT 0)
I'm sorry you are hurting and scared and crying.  I feel so badly for you.  This disease is quite hard on the body sometimes, but there is light at the end of the tunnel. 

I want to give you a little bit of history about myself.  I am 58 years old and was diagnosed at 28.  No unusual stress, no accident.  I had flares about every six months or so.  Now I suffer with pain every single day.  Those who say this disease is not progressive are not truthful.  Now don't get me wrong.  It is not progressive for everyone, but for some it is and I am one of those.  I use to see a rheumatologist for many years.  Now I see a pain specialist and I take percocet every four hours for the pain which is in my arms, shoulders, legs and feet and back and hips.  I can't do much housework anymore and my love, my sewing room, is often unused because of the pain I suffer.

But there is always hope.  There are many different drugs and treatments.  Hot baths, relaxation techniques, pain medications --it is different for everyone.  You have to trust in your doctor and get the right treatment for you.  If you do not feel your doctor is in sync with you, get a different doctor.  Don't give up.  And please continue to post here.  This is a wonderful site with so many wonderful people here.  Keep coming back and you will see the support you get here.

Take it easy on the housecleaning.  If you can afford it think about a cleaning gal to help you.  I have one that my dear  husband pays for.  Take rest times, naps if you have to.  Can you walk for a little?  Do that to keep the muscles moving.  And read the thread Fibro 101.  There are lots of good ideas there and comments on different supplements to try like Magnesium.

I wish you well and God bless you.

Lindaloo

 

Posted 5/13/2010 1:39 PM (GMT 0)
I understand the panic. Pain can scare you, it does me too. My FM was not triggered by anything, it just happened over time. I think it started when I was a teen actually.

When I first started down this road I had everything checked out, heart,brain,kidneys...everything. I thought surely I am dying. Everything checked out ok and I was left with the diagnoses of FM. Once I learned more about it I was not as afraid just very disappointed that this was gonna be my life.

Sorry you are feeling so bad, I understand. My pain is out of control too.

I hope you feel better soon.
Posted 5/13/2010 1:50 PM (GMT 0)
My fibro went into effect (so to speak) shortly after the birth of my son. I went through a lot of different tests to rule out everything else before I was sent to a rheumatologist. I know you are having a hard time, but you need to try to de-stress. Take crazykitty's advice and take a nice hot bath and just soak. Maybe read while you are in there. I know it helps me to read in the tub when I am really stressed. You are seeing the rheumy tomorrow, so just relax. Definitely make a list of questions you want to ask. It will be ok. I really hope everything works out for you. Take care of yourself. Hang in there and let us know how your appointment goes.
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