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Worry because not had exclusion

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Posted 6/11/2010 9:23 PM (GMT 0)
Hey all angels, I met with an old friend who now has Lupus. After talking it seemed the symptoms of fibro are very alike to Lupus. I am really worried because it wasn't a rheumatologist that diagnosed me but my psychiatrist. All the pain, the recurrent bladder pain, the chest pain, I am starting to panic that I have something worse than Fibro ( I know it cant feel much worse) but if anyone knows what tests I am entitled to can you reply please. I am in Uk and under NHS which is cost effective so i dontknow what i am entitled to smhair bit sad tonight. Everyone have a good weekend.

Gentle hugs

smhair
Posted 6/11/2010 9:32 PM (GMT 0)
Making a list last two years: 40 + weight gain, joint, back, chest,muscle pain, breast pain (inflammation?), lung problems (smoker) possible copd, swelling of ankles and fingers with pain, bloating, migraines, extreme fatigue, recurring bladder pain after treated UTI, disequilibrium, orthostatic hypotension, recurring ear problems (inflammation?) pain anywhere everywhere, bruxism, muscle spasms and weakness, atypical seizures, numbness in face occasionally, jaw pain, yeast infections, gum disease....at the point where everything seems to be going wrong. Can it just be fibro and cfs doing all this? Can you share some light on this, appreciate it need to fight for rights here in some ways .... hugs
Posted 6/11/2010 9:32 PM (GMT 0)
You should make an appointment with a doctor that believes in fibromyalgia.  When you call, ask if they treat patients with fibro.  Meanwhile, go to Fibro 101 and print out the log and start writing down how your pain is when doing things.  There are pain charts in Fibro 101 that will help  you describe your pain.  Take this with you to the doctor.

 

A doctor needs to run blood work and other tests to rule out other illnesses.  Fibro has many of the same symptoms as other illnesses and this shoud be done before a diagnosis of fibro is given because these other illnesses are treated differently.  Your psychiatrist really shouldn't have diagnosed you without testing, which I'm quite sure they didn't do.  At least the psychiatrists in the US only deal with psychological problems...not physical ones.

 

In Fibro 101, there is a link called, What Else Could It Be.  Check that out.  Apparently you haven't had time to read Fibro 101 but it would be well worth the effort. 

 

I hope this helps you.

 

Sherrine

Posted 6/11/2010 9:34 PM (GMT 0)
Check the list of fibro symptoms in Fibro 101.

 

Sherrine

Posted 6/11/2010 9:42 PM (GMT 0)
Thanks Sherrine on my way ... hugs
Posted 6/11/2010 10:09 PM (GMT 0)
After talking with your friend with Lupus I think your stress level went sky high and
now you are worrying about the possibilites. First try to relax. I agree with Sherrine
that you need to see a doctor to have blood tests run to exclude the possibility of having
a connective tissue disease.

Doctors will run diagnostic bloodwork to check for antibodies for the CTD's. They will
also do a complete blood count, comprehensive metabolic pannel, check your Sed rate,
check for a rheumatoid factor, do a urinalysis and do a complete physical exam. Your
doc should check trigger points for tenderness. They may check your thyroid.

Your doc will also take your entire medical history, and all your current symptoms.
You will have to wait for an analysis of the results of your lab tests and might need
further testing. It takes time to get a diagnosis so you will have to be patient, In the
meantime do what you can do to keep your stress level down.

Be sure to write out questions for your doctor so you will not forget. Good luck to you!

Hugs, Robin
Posted 6/11/2010 10:28 PM (GMT 0)
Thanks all and your e right Kitty I am thinking all the pain is damaging me and making myself anxious. But it is meant to be a diagnosis of exclusion. So far all I have had is CBC bloods and at my FIRM request a treadmill test which showed no heart disease. It's just hard to keep pushing when you are already tired so I am going to write down what you have all contributed and take it to my doctor, ask to be referred to pain specialist and if he doesn't respond in my favour I am going to go straight to ER and cry. I will tell the doctor this then maybe he will understand how hard this is when I only have a diagnosis based on a history of PTSD. Thanks all. Much love.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Fibromyalgia/CFS, Hypermobility Syndrome, Post Traumatic Stress Disorder ,Anxiety,Depression,
Somatization Disorder, Sciatica, Carpal Tunnel Syndrome, Hypothyroid

Sodium Valproate, Diazepam, Thyroxine, Citalopram
Posted 6/12/2010 12:00 AM (GMT 0)
Ohsofibro,

Could you take some of the little squiggly marks"~"in your signature? It is making the posts become too wide. If you just take out a few, they will go back to normal.

Thanks,

Hugs, Karen
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