Do you express your emotions?

I think it takes more energy to keep all my emotions bottled up than to release

them. A good cry is sometimes needed.

I'm open and honest with my husband and have expressed my feelings and fears.

It is OK to tell others if you are having a bad day. There is a differance between

dwelling on how bad you are feeling and discussing it. If you do feel hoplessness

telling your doctor is important.

Learning to cope is easier if I'm active in doing what I can do to help myself.

It is up to me to establish my new "normal." I know there are many activities I can

no longer do, so I had to find new activities to replace them.

Still taking one day at a time.   Tomorrow will be one year that I've been here.

Thank you my fibro family for all the caring support you have given me!

Hugs, Robin

Yes, my dear Robin...you have been an inspiration to all of us.  I think I keep my emotions bottled up to the point that it may be unhealthy as so many of our friends are still very active and still have no clue what I feel like.  Over the 4th of July, my son and his family visited from out of town and one of the things on their itineray was to go down this half mile hill (straight down) to a secluded beach on Lake Ontario.  It literally was 100 degrees out. My DIL took pictures of us all and posted them on facebook.  I am grimacing and holding my hip in every picture and I actually cried when I looked at those photos.  I asked her to take them off.  I didn't say anything as we made this trek.  Going back up that hill about killed me.  I find it so hard to keep coming up with what I perceive as excuses for not being able to participate in the most simplistic endeavors.  Yesterday, a bunch of 60 something friends played tennis then went swimming in this heat.    I sent the hubby by himself.

Oh, I am rambling, but you get the picture.

Huggies

Donna

I'm glad we all found this place too. I feel such a bond with my fibro family. It is

one place that I know where everyone "gets it". There is a understanding of pain

and all the trials and tribulations that go with it. Life in general is complicated

enough. I know that many of you have alot going on right now regarding your own

health or family members health and I continue to keep you all in my prayers!

"Miracles come in moments. Be ready and willing."

 

Hugs, Robin

 

Robin, you really are an inspiration. I'm so glad you're here!

I tend to let my emotions out except that I'm not very good at expressing anger. That is, unless I'm defending someone (human or animal) defenseless. Then I become much more aggressive and the champion of the downtrodden and people get a little freaked because they're used to thinking of me as this mellow and meek little person.

Ok Im going to take a run at this one becaese I feel so hard about this subject. It takes me along time the even write these posts and I feel so bad for not answering much of the time. Its like go a word and backspace another word or two and backspace and sometimes for every word I type. First of all want to say thanks to Robin fr bringing this up and having a shoulder to cry on when so many ppl have needed it.

As many of you know Ive had several strokes,Ive been able to get myself back to mostly who I had been but this last stroke has been so unforgiving. Today for the first time in my 50 years I had a birthday party thrown for me. My family had said "y9our taking the day off. There will know body asking you for anything all day" The day started off good with my Mom actually getting on time. She is 78 and always give her plenty of time for whatever she needs. I told her yesterday when they came to walk over to the clubhouse she was going to ready right? and she said she was taking her shower and laying her clothes out and yes, she wuld be ready. I didnt have anyone offer to get her today. As a matter of fact they all told me walk over and get her. When I showed up I was limping badly as I was having a major flare in my right ankle and on my right side I also limping with that planters (and I cant remember the other part) hurting in my heel and had fallen 3 days ago and my sciatic nerve was flaring my my right hip and all down my leg. They saw me and then they ask??????I of course go to do it and no,my Mom wasnt ready. In fact she wasnt ready till 11(darn I cant remember the lil thing yu put in for between the numbers) 30 so was off by an hour and a half. Im trying to get her moving and shes goes maybe im a il lady and no one wants me go waaaaaa yes she was being a major drama queen so we get there and everyone was saying oh I was wondering what was taking so long?

And thats pretty much my whole day went. My daighter was stressed from her husband and my brother was stressed from his wife and so on and so on. Then they wondered why I was crying threwout the day? Normly I dont show my emotions and I feel like I have to fix everyone,even my daughter will problycome here to see what I am sayng(yes she googled my posts and read every word I ever wrote about her) so its like there is no place I come to even vent because she will even see this and be po'd about it. Its like I am hurting much of the time and ppl look at me like Im stupid because I cant taked great anymore. I stutter and slur my speach and even my own daughter will say"well get to I dont have all day" or she will gesture me to tell me what Im saying. I dont even know what this is all aboot and I am so frustraited with my life,Oh and some of dont know the best part of all of this.....I walk around with vessel that can rupture any time because of a bunch of stupid rules for medicaid"oh we are sorry Ms. whatever your name is but we dont cover that surgery." Ok I just remembered what this post was about lol Oh I dont know I guess Ive said about all I taken up valueable space dang how do you type "valuable"lol. but really do so much appreiate? yo9u hearing me helping me through hard parts of my life. Whewwwwwwww

Hugs'
Karen

Karen...Happy Belated Birthday. Hoping your wishes come true!

Karen, Sending big gentle hugs! It must be so frustrating for you because it is so
difficult for you to speak...to be able to get your emotions out freely.

I hope that you can eliminate some stress in your life too. You don't need added
aggravation. Come here whenever possible and let your emotions flow. We are here
for you.

hugs, Robin

This is a great topic.

Also - Happy Anniversary, Robin. :D

It helps reading what you all have to say about this. While we have this illness in common, it helps hearing about your social struggles, because those are different for all of us.

I grew up in a family that never ever says anything loving, or positive, never hugs. Expression of any kind, whether happiness, love, or sadness, is not allowed. I learned early on that explaining what is going on in my life only gets me in trouble. If something good, or something terrible happens to me, there will be blame placed on me and I'll be sorry for opening my mouth. Self preservation has taught me to keep my mouth shut, about everything large or insignificant. You just have to.

On the flip side, I talk to my b/f daily for several hours by phone. (We're long distance.) I let out pretty much everything to him, but I try to curb it just enough not to overwhelm him. I try not to dwell, but just release the info. Sometimes that's not enough for me. So, I also keep a private blog. Only two people have access to read it - two old online friends. It is more of a live journal - so sometimes I'll add to a days entry 5 or 6 times to get my frustrations out. It helps. Yet, it isn't the same as living a healthy life.

I'm sure this hurts my health. But until I can find a way to support myself and be safely tucked into my own home, this is how I have to live. I'll make it somehow.

Post Edited (TheChickenPrincess) : 7/18/2010 10:55:15 AM (GMT-6)

Karen - Happy Birthday, sorry I'm offering it late.

It is a shame that your daughter must follow you around the internet and read your posts. That's very childish of her. I used to belong to another forum where another woman had this same problem. Her daughter could not understand the boundaries of privacy - nor understand that every living human being DESERVES their own space. To invade that space is cruel and rude. I hope she stops doing this to you.

Maybe your words don't come out the way you'd like when you speak, but it is clear your thoughts just fine.

Sending gentle hugs your way.

Thanks very much, Robin. :)

I want to thank you all for being here for me. And I d9o need to say that my daughter and my hubby and my brothers family did get together and are buying me a laptop for my b-day. I was so upset that i didnt say it then and I guess its them doing a nice thing like that that throws me off. would give it back when I get to have just one day they can begin to know how I feel. I guess if they want to know one day I be ready to "talk" I lo9ved hearing all yur stories here and always read the posts even if I cant always write stuff back. Thank Yu for the late birthday wishes.

Special Hugs to You!!
Karen