What would yyou do?

So since my last dr's apt two weeks ago when I started the Savella my pain and fatigue has been so intense I cant get out of bed. Seriously i'm in so much pain I cant concentrate on anything.Well I called my dr yesterday because I hadnt slept all week even though I'm tired aand I havent been able to eat anything in over a week. They told me come right in

So I go in thinking they'll do something for me.I see my dr tell her what's going on and how bad I am she takes my blood pressure and she's like you're severly dehydrated are you even drinking anything. i told her I was as much as I could. I've lost 5 more pounds as well. So then she starts talking about wanting me to go to a cancer and blood dr because of my weight loss. umm ok

I did tell her withthe savella my jaw isnt hurting as much but that was it. so she goes onto say well what has worked for your pain before(since the tramadol isnt working at only 50mg) i told her vicodin and percocet has worked. i dont mind taking them as long as you're still looking for whats wrong with me. She spends about 10 minutes typing things into her computer turns around and says well let's try lexapro because it will make you feel like you've just exercised and you'll have energy ummm ok?

I thought she'd have me head over to the hospital to get rehydrated but she didn't this is all she did! I went into the ER this morning they basically told me if I would've come by ambulance I'd be seen right away but I wasn't an emergency(my bp was 98/66 today) and that I'd have a long wait.She then told me i should go see a specialist in Vegas. I told her we only have state insurance and we live in AZ (vegas is the closest big city to us we're on the border)this is all the triage nurse.

I'm just so mad!I dont want to come in ny ambulance just to be seen but it looks like thats what it's coming down too. I've been drinking liquids all day(but I was before too)You could tell the triage nurse didnt believe me. I thought ER was supposed to go by importance? the other people in there didnt look any more hurt then me oh i dont know i'm just so frustrated.

I have my nuero dr apt on the 13th and i'm just so hoping he has some good news that he can find SOMETHING!no other dr's right now are taking any new patients. I'm at a lost.

Please read the post by Moonmatrix that is half way down the first page...does it sound familiar to what you are experiencing?  I would not start adding more drugs to the mix until your issues are under control...just my opinion.  Savella causes weight loss in many people and other symptoms you are describing.  Lexapro is just another SSRI and should not be taken simply for fatigue...it is a powerful antidepressant with its own set of side effects.

Donna

Java - ditto what Vestabula / Donna just said! Please go read Moonmatrix's topic about Savella. Here it is: www.healingwell.com/community/default.aspx?f=24&m=1886335

I had NO IDEA when you posted about being so terribly bad off this week that you had just started the Savella. Ack. Not trying to be an alarmist, but I guess that's how I'm sounding, please take a look at her topic - look at the side effects of Savella on drugs.com - and then see another doctor asap.

Being dehydrated is serious. They should have put an iv drip on you right in the doc's office treatment room. They can do that. Idiot doctor! Until you can get to a doctor, have your hubby get you some gatorade (the one withOUT artificial sweeteners) - the one that is named G, but NOT G2. Drink some. My docs were adamant that I drink a LOT of it and a lot of water even after I had two separate episodes of getting IV drips last month. I'm still drinking some each day. It replaces elecrolytes - and all the water in the world won't help if your electrolytes are screwed up. If you can't get any gatorade, then eat ripe bananas - they have loads of potassium - which you may be low on if you're dehydrated - not sure since I was having different problems which is why I lost potassium (ibs), but I think it can't hurt for you to have some at this point.

((( Java ))) Let us know ?

Post Edited (TheChickenPrincess) : 8/28/2010 9:30:03 PM (GMT-6)

I JUST read moonmatrix's post and had to not start crying it was hard. Yes I still dont have a dignosis that's what I'm waiting for and the only reason the lexapro was subscribed was to give me energy. and nope nothing for the pain. i just dont feel right about layering so many psych meds. even if it's only 2 i dont feel safe. I read up on lexapro for fibro and most the people on their said it did nothing for their pain and made some of them even MORE tired.

I think i'm going to make my own bed buddy or find one at walgreens.

I have my next appt with this dumb dr on the 9th but i seriously tink i'm going to call her monday and tell her nothing is better go in there and tell her if she's not going to take this pain seriously i'm finding another dr. it's all because the first dr in that clinic put depressed in my file. i'm sure of that.

i knew they could do the iv in office so why didnt she?


wondering if i should go into a walk in where no one knows me and see what the dr does for me? if the nuero apt is just as quacky then i'll try and find a new dr but they're so few and far between here. thanks ladies for letting me vent and yeah that other post scared the you know what out of me!

Cajun I read up on it two nights ago and just didn't like what I read. of course can't remember now what it was but something set me off on it. Hoping the cymbalta works for you i know for me it just sent me to bed to sleep.

Is it nerve pain or muscle pain? or both. I started this with nerve pain going down my neck and into my left shoulder and arm and into my left breast. First thing he gave me was a steroid and antibiotic. The next week he wrote out Etodolac, Vicodin, Skelaxin. Spent 5 months on that with little relief and he put me on Savella which DID that a month and a half to relieve the pain and in that time was able to stop most doses of the above to eventually get to where I didn't need any of them. It did give me some side effects at first and I was able to work past them. Savella can cause depression on it's own though and found once I stopped 7 months later that it felt like a cloud was lifted. My breathing isn't as shallow either. You could be hurting worse because your going through a flare? But yeah... you need a dif doc and maybe going to the clinic where no one knows you is a good thing to do. I assume since he is sending you to a Neuro that most of your pain is nerves.

The only thing that helped me at all was the Vicodin AND Muscle Relaxant because the nerve pain caused the muscles to tighten up something fierce. Only took the Vics at bedtime but took the muscle relaxant twice a day.. Bedtime and mid morning.

Sending you to the Oncologist is for needed blood work to rule out Cancers and Leukemia's. Make SURE you get copies of those results! Hell.. make sure you get copies of all blood work and x-rays as well as any MRI's. Keep them safe in a notebook.
Now Lexapro hmmm.. I am one that couldn't take that. so hope it works well for you. It didn't do anything "symptom" wise but be careful for added depression. You have to do that anyway though. Tart Cherry Juice if you can find it will help with some of the pain if any of it is Arthritis related and may help you sleep.

thank you everyone. I will be getting copies of ALL my tests. Smoeone asked what my pain is and it's BOTH nerve and muscle. Like right now the top of my hands hurt like heck. I didnt sleep at all last night and just woke up from a two hour nap. I refuse to take the Lexapro this is gettin gridiculous.

This morning I'm going to try my best to maintain positivity and stay out of bed for at least 4 hours. I guess I'm just going to have to challenge myself everyday. I know that's what most of you do. I WILL be picking up the supplements once my check clears. I just feel like I'm taking everything into my own hands ...

The one thing I dont like is this dr hands out so many samples. Which if they're doing that no way can a pharmicist tell you what is bad together ya know? yeah i'm so scared of the serotonin syndrome. like i said i'm waiting for my check to clear and then i'll be going to get the supplments suggested on here and start those to see if they'll help.

I WISH I could find a good dr. Every dr I go to though it seems like they're a dud. Even the dr's at the hospitals!

Amen, Sherrine!  I was given Lexapro blister pack samples with no directions from the doctor, nor was there any drug info leaflet in the box...oh...'Store at room temperature".   That's a big help.  No where did it mention anything about weaning, or not stopping abruptly...and that can be the problem with 'free samples'.  Having never taken any RX drugs for fibro before I thought the doctor would know best.  When I complained about withdrawal symptoms, he told me he had never heard of them before and to reinstate, as these drugs are a 'lifetime committment' and fibro is a 'lifetime disease.'  NOOOO...the drug made me an emotionless drone and ruined my vision and I gained 22 pounds...why would I stay on it??  Plus it did nothing for my pain.  Wanna know what pain is?  Going off it without weaning properly...I have been in a horrific nine month flare.  I will never ever put another drug in my body without doing my own research.

Donna

I'm glad you're not going to just blindly accept what this doctor says, Java. 

Many years ago, I was at my ear doctor's office, getting my ears cleaned out or tested or whatever, and I casually mentioned that I get bad headaches (this was before I found out they were migraines.)  He said, "Oh! That's cluster headaches....here, let me write you a prescription for ___________."  I DID have an idea what cluster headaches were, because a family friend got them, and I'd heard them described.  NOTHING like migraines, nor like my symptoms!  Lucky I happened to know this, so I didn't fill the script.  But another example of - what was he thinking????

Another time I was seeing my then-regular doctor for a really bad migraine (before I'd found something that helped.)  He offered to give me some kind of shot, but when I asked to read the side effects, I could tell he was put out.  I decided to forego the shot, and he said, not in a nice way, "It's your headache, honey."  Doctors can be such buttheads.

Power to the patients!!!

Debbie

I was on Klonopin at a 2mg dose many years ago for panic attacks. I started feeling better with an anti-depressant that was given to me and wanted to stop taking the Klonopin since I was feeling better. My doctor at the time told me to just stop it. I asked about withdrawal effects and he said that klonopin wouldn't cause that. Well, I listened to my doctor and could not get out of bed for five days. I had the creepy crawly feeling and everything. It was horrible! I had to get back on the Klonopin and slowly wean myself off. I would break a piece off every few weeks until I was down to a tiny little piece. I don't understand why these doctors don't know more about these things.

Going off topic a little - but have any of you ever met with a doctor and felt like they were self prescribing? Seriously. I had a woman nurse practitioner and a woman doctor - two separate times - and both acted higher than a freakin' kite and unable to focus. Scary.

Java, I was happy to read that you were feeling a little better yesterday.  How about today?  You just might be in a bad flare.  This time of year is the worst for me and I can have so much pain.  But I do know it does get better.  I'll have better times and I'll have horrible times but I can make it through the horrible time...taking one day at a time...because I know it will pass.  You will find what helps take the edge off the pain without giving you terrible side affects.  I know I have!

 

Sherrine