Progressive

Mine has definitely gotten worse.  I can lift less and less without triggering pain.  People always say, "be more active," but they don't understand - I haven't gotten less active.  I live the same life I have for years, and in fact, I'm much more consistent in my walking.  I do that mostly for overall health, though - cardiovascular system, immune system, etc.  It doesn't help my pain at all.   

My doctor says that studies have shown people do tend to get a little worse with age.  I hope there are lots of people for whom that isn't true - well, actually, I'm hoping for a cure!  My husband always tells me, "someday, they'll invent a pill, and you'll be just like your old self."  It's like a bedtime story by now, just hearing that soothes me....

Debbie

Well wishes!

(((Hugs)))

Carley

Mine has certainly gotten worse even with the rx's, being the reason the doc has added to the rx's originally prescribed.  about a year ago in my doc's office crying due to the pain so bad it was difficult to walk across the room I asked her how it could be getting worse if it is not progressive.  This is what she explained:

She said the medical research and information does not consider fibro to be a progressive condition because it does not cause actual harm/deteriation to the muscle or bones of the body.  However, that those of us that live with fibro do know that over time our daily pain and flares can get worse and in that sense it is a progressive condition .

Grace

I totally understand you on trying not to be resentful.  I was very angry at first when dx'd.  It kills me that I cannot pick up my grandson, or play sitting in the floor with him for any length, that I cannot keep him for the weekend if my husband has to work because I cannot do it on my own.  Yet I ran a childcare business for 14 years and held and played with all of those little ones, and now cannot do the same things with my first grandson I long to do.

It's difficult that as active as I once was, and as good of shape I once was in.... I cannot do the things I love to do the most.  I'm working hard to shift my interest to other things I can still do.  I can't tell how many times during the day I say a little prayer asking just to help me make it through another day.....

My coworkers do not say anything to *me* about the things I cannot do, but I'm always worried about asking them to assist me with those things.  I try to make it up by taking on more of the things I can still do but doubt they see it and appreciate it.  I even apologized not so long ago to the boss for having to ask for something to be done and told him I really hope it's not an issue because I worry about it.  It's hard because they've never actually seen my pain.  It's invisible to them and I worry they do not believe me.  None of them ever ask me to work extra for them, which is good because I know I cannot and would have to say no.

My family didn't understand and thought I was making excuses until I was finally dx'd.  They've actually seen how much pain I've been in.... and having the dx really helped a great deal in their understanding.  Thankfully they no longer pressure me or try to make me feel guilty anymore like they once did.