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I'm gonna find my happy place today, right?

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Fibromyalgia
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Posted 9/24/2010 2:47 PM (GMT 0)
Still feeling pretty bad today.  I guess the shot (or whatever did it) has put me into the first flare since I've started the Lyrica. It's pretty disappointing, frustrating, irritatings..blah blah blah. I had a REALLY anygry day yesterday. Felt sorry for myself pretty much all day. I'm waking up feeling pretty much the same but today I am struggling to get (at least) in a good mental state of mind. We had several families near where I live lose their homes yesterday when a bunch of townhouses burnt to the ground. Makes my problems seem a little small at the moment.

 We are going on vacation in a week and MAN I'm gonna just cry if I still feel like this. I was so looking forward to this visit (to the in-laws) because the last 2 times I was there, I was in pretty bad pain. The first visit I just had pretty extensive sinus surgery and I also have some feeling that that's what started all this mess with the fibro. The second visit I was just in pain all over with no explanation as to why and just popping pills to take all the pain away (which nothing ever did...). OK, I'm gonna start packing today, getting my house in order (daily task for me) and just feel happy today right?? Happy happy...  (OH and now I am getting ANOTHER migraine. I feel it coming on...day 5 in a row...  tell me again why it's so hard for people like us to get SSDI?? I can't work like this..) happy happy happy.. i feel happy...

Posted 9/24/2010 3:10 PM (GMT 0)
Sorry you are feeling so rough right now. I will be praying that the pain is much better by the time you leave for vacation.
Gentle Hugs
Shirley
Posted 9/24/2010 3:12 PM (GMT 0)
Mrs. Mike, migraines are the pits!!! Sorry you're having such a tough time.

But actually, people like us have a hard time getting SSDI because we're just trying to take the easy way out, didn't you know? Nobody could really have all those different pains for no reason, that change from day to day, especially when all your tests come back normal! You must be depressed....sometimes that can make you THINK you have pain when you really don't, see?

Don't hit me! Just kidding!

Debbie
Posted 9/24/2010 3:40 PM (GMT 0)
Take some time out for deep breathing and meditation. It helps relax the mind and
body. I focus on the positives and a happy place while I'm doing this. It has helped
me through the difficult days when pain wants to overwhelm me. The mind-body
connection is very strong. I think I would hurt all the more if I didn't take the time
to relax. I know our pain is very real and believe we have some potential to lessen
it. There will be days when the pain wins out, but I know from experiance that
sometimes I'm able to alter the level of pain by bringing down my stress level.

Hope you have a wonderful vacation and that you will feel good!

hugs, Robin
Posted 9/24/2010 3:59 PM (GMT 0)
I'm definitely baby-steppin it today. Thank goodness I got the house pretty clean yesterday (despite the crapiness I fealt then too). And it's friday and my husband usually ops for some kind friday food like pizza or wings (which I don't eat but I also don't have to cook...). I've got my salad stuff already chopped up, just have to toss the ingredients together and Waalaaa - dinner. I'm in a toss up right now for the migraine medicine. I have lots I want to do but sometimes when I take my medicine, I feel like a space cadet. If I don't take it, however, I will be concentrating on the pain and not packing. So, I think I'm going to take it, be a space cadet, and hope I don't pack things like the shower curtain or the living room pillows... haha. You all are really wonderful. You really are! Thanks!
Posted 9/24/2010 4:26 PM (GMT 0)
I'm sorry to hear that you are having such a hard time since the injections. I most definately agree with you that even just the little things that happen to us as far as just a small cold can start a horrible flare up. I think that is what happened to me as well. I had to have 4 surgeries for a huge kidney stone and ever since then I have been in horrible pain to where it has been really hard for me to work, too.  I am just counting down the days till I see my new Rheumy, hopefully there will be a little hope and relief there, but not over hopeful. I will be praying for you to be feeling better so that you can enjoy your vacation with your in-laws. Hopefully it will be nice and relaxing for you!

 

Well wishes!

(((Hugs)))

Carley

Posted 9/24/2010 9:18 PM (GMT 0)
My heart goes out to you I also suffer from migraines snd and on top of the pain from the fibro you start to wonder what did I ever do to deserve all this pain. Nothing. Take the meds for the migraine don't let thst get out of conrol as well as the fibro.
One thing I have tried that works for me also helps with all the stress, as my DD says I go to my happy place, I learnt this trick at the pain clinic. Lay down and go to some where you feel safe and peaceful. Just close your eyes and go to that place, relax letting go of the pain.
For me it is sitting by a creek with water running over rocks with a tree bent over me and that tree stops the pain from getting to be then there is a kingfisher diving into the water I lay and watch that for hours some times but it relives the stress I am under and the pain stops taking over my life. Kingfisher is a type of small but pretty bird we have arounf here.
The example they used at the pain clinic was a hotair balllon riseing up to float away from the pain, another example of which I used was going through a gate into a beautiful gsrden and I left everything at the gate as I walked throught the gate then walked touching all the plants you get what I mean.
My prays are with you
Kathy

Kathy
Posted 9/25/2010 2:13 AM (GMT 0)
Somedays, it's like the little engine that could: I think I can, I think I can, I think I can. Not making fun of u, I know how u feel, hope u get to feeling better.
Posted 9/25/2010 2:53 AM (GMT 0)
And now, at the end of the night when time has run out to accomplish anything, I lay here feeling like a million dollars. Well I won't say that much, maybe 50ยข. But better than I've felt all day. But guess what I AM supposed to be doing right now and can't?? You got it! Sleep!! So I thought I'd check on some friends! I'm gonna start a new post lookin for advice/info on what defines a "flareup" cuz this really has me discouraged.
Posted 9/25/2010 2:59 AM (GMT 0)
I noticed you take Midrin - me too. I haven't known many people who've taken it. What do you think of it? It was a Godsend for me when I used to get terrible migraines. Now I rarely do, and it takes the edge off.

Debbie
Posted 9/25/2010 7:44 AM (GMT 0)
I know it sounds simple but I take 4 exedrine and a cup of strong coffee and that takes care of most migraines. Its like the caffine and the asperine do the trick. Might be something to try? I hope you are feeling better by the time you leave.

Hug's
Karen
Posted 9/25/2010 9:23 PM (GMT 0)
Hi, Debbie,

Midrin actually works differently everytime I take it. Most of the time it works to some extent. Occasionally it doesn't work at all. It's really weird actually. First thing I noticed is, it's not worth my time to take only one at onset. If I take 2 on an empty stomach, it can work in like 15 minutes (which is most of the time, actually - who can eat with a true migraine??). Pain is gone but I feel like somewhat of a space cadet. But I can work thru that. Just have to pay more attention. If I take it in the middle of the day when I've eaten, it's a crap shoot. It will either work (after like 2 HOURS!!) or it won't work at all. What sucks about when it doesn't work?? There's not much I can do after that except wait it out till the next day when I can start over with a different kind of migraine medication. I've actually got a laundry list of migraine medications at my disposal but the only one I use religiously is the midrin so that's why I listed that one.

Karen, I've done the strong coffee/excidrin bit. Trouble with that for me, I only get like 2 hours relief with it and it comes right back. After all that asprin/caffiene, you have to wait till the next day to try something else. I gave that route the good college try, like several times. Learned my lesson the hard way :-)
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