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Posted 9/30/2010 4:51 PM (GMT 0)
yes I am a newbie and proud of it. Thank you for letting me find you I have had fibromyalgia for years and have really hit so many dead ends. I would try to find help and then give up wait 2 or 3 more years and then try again and then give up again. So you know how happy I am that I possibly have found a site that understands and maybe can give me some answers. I was diagnosed in 1990 with anklyosing spondilits which is a spine disorder in which your body tells your brain to deposit calcium onto your spine which in turn makes your spine cease up, ok can deal with that but then in 1994 or 95 was diagnosed with fibromyalgia and things started happening that for the life of me, I couldnt understand like my skin hurting,feet swelling,and so on and so on the latest one has been my scalp. I used to have a head made of steel nothing hurt me but now even the wind blowing my hair in a direction that it isnt going into hurts a lot and forget about going to a hairdresser just fingers pulling on damp hair drying it is amazingly painful but the funny thing is that it doesnt hurt in the same place all the time moves around so if anyone has any info on this I would so grateful. I have just started to walk for exercise again which is one thing I really used to love and am hoping to find that happiness in it again its happening slowly but I think that I will keep it up. I also saw something about vitamin D helping and would like to find out more about that because I just started taking it. I welcome any response and promise to be more short winded in the future. Thank You. confused

I just added a subject line for you.  You will get more responses that way!

Post Edited By Moderator (Sherrine) : 9/30/2010 11:50:19 AM (GMT-6)

Posted 9/30/2010 5:12 PM (GMT 0)
Hi there and welcome to the forum. I would recommend you read the top post called Fibro 101. It will give you tons of information on Fibro including symptoms and possible treatments.

Are you under a doctor's care right now? Are you on any medications?

Glad you're here, keep posting and hopefully you'll find some answers.

Pam
Posted 9/30/2010 6:03 PM (GMT 0)
hi ms Bunky thanks for the quick response yes I am under the care of a doctor for my spine problem and was seeing a someone for pain management for fibromyalgia but really wasnt connecting with this doctor. I really wasnt sure if I was ready for the diagnosis, was seeing him 2 hrs a week for about a year had to travel 2.5 hrs everytime so that probably had something to do with stopping seeing him. I was only having problems with skin pain then and thought that I could handle it I guess not sure what was going through my head at the time and that ended in 2005 or 06 in my first post got the years wrong about when I was diagnosed with fibromyalgia it would have been 2004 or 2005 not 1994 or 95 wasnt paying attention sorry ok here goes with what drs have diagnosed me with anklyosing spondilitis, reynauds,IBS,fibromyalgia and have been perscribed only meds for AS supedol and oxycontin and muscle relaxers and sleeping pills and water retention for the swelling in my legs and feet. I have read the fibro 101 and found it very informative also for AS I go for a infusion every five weeks and get a medication called remicade primarily used for RA, chrones,and AS. thanks for the welcome
Posted 9/30/2010 6:03 PM (GMT 0)
Hi, ldyd, and welcome!  I'm so glad you found us and joined in.  We have a wonderful group of people on this forum that love to help one another and, as a bonus, really care about each other, too!  I think you will like it here.

 

I have the tender scalp issue, too.  I do get my hair done but I told her to use the pads of her fingers instead of her nails on my scalp!  She would scrub with her nails as I was scrunching down in the chair.  It felt like my scalp would be bleeding after she got done with me!  You just have to train your beautician!  smilewinkgrin

 

I'm so glad to see that you are starting to walk again!  That's wonderful.  That has helped me a lot.  I had to start out slowly but built my stamina up and now I can walk pretty far.  I start out my day walking my dog for at least a mile.  I don't feel like doing it but I know I will feel better by the time I get back home plus I have more energy, too.  I also swim for exercise.  If you have access to a pool, that is wonderful for fibro.  Any GENTLE exercise is good for fibro.

 

I see Pam directed you to Fibro 101.  There are links to good info about fibromyalgia there and you will learn a lot.  There are links to some good stretching exercises that do help, link to symptoms, and also links to info about Vitamin D3 and also Malic Acid/Magnesium supplements.  I do use both of these and they have helped me with my pain and fatigue.  The links will explain it all to you and how these things work in  your body. 

 

You will find what works for one might not work for another for people with fibro but we have great suggestions for you to try, with your doctor's okay, and I think you will find what works for you to help control the pain.  I use ibuprofen with food and extra strength Tylenol along with the vitamins and supplements I just mentioned to help me.  Add the gentle exercise and I do have control of the pain.

 

I'm happy you have joined our family.  Don't hesitate to ask questions because we are here to help you.  I'm looking forward to getting to know you.  Hope to hear more from you soon.

 

Sherrine 

 

 

Posted 10/1/2010 12:02 AM (GMT 0)
Hi Ldyd, and welcome to our fibro family, as Sherrine said we have alot of great people here, and Im sure you will fit right in. I have always had really thick hair and never had any problems with my scalp hurting until after having a treatment of chemo after alot of it had fallen out then my scalp started hurting just as you described even the wind blowing caused alot of pain. I thought it was from the chemo and shaved the rest of my hair to ease the pain. well it worked lol but now Im wondering if the chemo caused it or the fibro. I have read alot of others that have tenders scalps with fibro. Dont know if it has anything to do with how thick ones hair is either but I do know that it is really easy to take a shower with no hair. LOL Not suggesting you shave yours though I will be glad when mine comes back. Now that its getting cooler outside its alot harder to stay warm even with a hat on. Oh well this too shall pass. Sorry Im starting to ramble here I hope you will keep posting and dont hesitate to ask questions, Vent or offer advice.
Gentle Hugs

Shirley
Posted 10/1/2010 3:18 PM (GMT 0)
Nice to meet you, i think that you will like it here it is a wonderful place full of supportive people. I too have Fibromyalgia and i gedt weird things to. This is a wonderful place for advice guidence and just support. Welcome!
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