thank you Sherrine

Try massaging your scalp when you are sitting watching TV.  It will hurt at first but it helps get the blood flowing and you will see that you can massage and it won't hurt as much.  I have one spot, especially, that really hurts...it's like I burned my scalp.  I do massage that area and it feels a little better.  ]

 

Don't let any beautician rake through your hair with a comb or brush, either.  They need to use a good cream rinse.  I use something called Saturation by Brocatto.  I found it at a store called Trade Secrets and I also bought some at the beauty shop.  Here is an online link, too.  It says it's a leave in conditioner but I always rinse it out.

 

http://www.amazon.com/Saturation-Leave-In-Conditioner-8-5-oz/dp/B000P1PT3C

 

You hardly need any.  I have very short hair and I use a pea-sized amount on my hair.  Your comb will slide through your hair....unless you have really long hair.  Not sure about that.  So you might want to give that a try.

 

Also, find a style that is easy for you to handle.  I have to wash my hair every night.  In the morning, I just spritz some water on it and it takes about 1 1/2 minutes to dry and style.  I even use the low heat, too.  The high heat hurts my scalp.  I made sure that what I chose didn't require curlers, either!  YIKES!  I have had styles that use a curling iron but I got rid of that, too!  My hair is short and "spikey" now and I love it!

 

Hope this gives you some ideas!

 

Sherrine

Hi ldyd, welcome to the family!! I think there are a bunch of us that have that very sensitive head thing going on. Since I was a little girl, my head has been soooo sensitive. If my hair was long and I had a ponytail, as I let it out at night it hurt! If I moved my part from left to right, it hurt! I couldn't stand headbands or clips, I had to take them out of my hair. I had long curly hair and my DM would just pull that comb thru like we in some major rush. Oh the pain!! She never got how much that hurt, her hair is straight, my father would always do it so gently - he had curly hair and 'got it'.

I have had my hair really long the past few yrs, after having it very short for almost 30 yrs. Last month I decided to change from my long white hair to a shorter white hair 'do'. I told the girl I would like it to about my chin, she measured my hair and said that would be about 16in to come off, would I be interested in donating it to make wigs for cancer patients. I hadn't even thought of that, I immediately said yes. Since there were no chemicals or such in the hair, and it was such a light color, she felt it would be perfect for a child's wig. The two of us got very emotional about this whole thing. We even hugged as I was leaving. All I could think of was my mother after her breast cancer treatment and our three wonderful ladies here on the forum who are so bravely dealing w/ cancer.

I don't let the ppl at the shop 'set' my hair, they wash or wet my hair, cut and I go home and wash, condition and blow dry. I can't deal w/ the pressure someone else may use on my head. I have had almost endless headaches the past couple of months so I don't need extra touching or pressure on my head. I let my hair air dry for about an hr, then I use the blowdryer to 'try' to make my hair do what I want! HA HA! If one spot of my head/hair is touched too much it feels like the hair is cutting into my scalp.

You are not alone. Hope you're having a good day!

God bless.  Alice.

I really appreciate all of your stories, I am sitting here almost crying because I feel for all of you. I do have an amazing husband who tries to understand and tries to be sensitive to my feelings and he listens to me about the pain but never quite gets the magnitude of the whole thing. I will try the massaging of my scalp and good conditioner and believe it will be very helpful but far beyond that I hear from all of you that there is hope and maybe a better quality of life which would be amazing for me. I also had to give up my job just couldnt continue with the pace I am a chef and that is a busy job always on your feet and always carrying boxes and things that when you are holding them actually hurt from the pressure, but that is not a problem any longer so that is good I did 5 km walk today and pretty much the past 2 weeks have walked that much or more. Can anyone give me some input on how to deal with the fatigue some days after I quit work I would just sit pretty much from morning til night and really I was feeling exhausted and I didnt even do anything but I am trying to turn that corner and try to get back in shape again. My hair is also short couldnt handle it longer cannot even handle it this long really wish a had a nice shaped head cause it would be gone today no just kidding I like hair but like you where saying cant wear bands clips anything and not pay for it with pain and headaches. I really do want to thank Acheybody and Irish babe, and sherrine for all the advice hope to hear from you all soon have a good night talk to you soon.