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Posted 10/26/2010 6:49 PM (GMT 0)
hi everyone, i am new to this, but thought i would give it a go and see if anyone has any advice, or anyone who just wants to chat.

i am 23, have only just been diagnosed with fibromyalgia, to start with i thought the rheumatologist was trying to tell me it was all in my head. but after having done some research ive realised that more people have it than i first thought.

i had no idea what it was and some of the info on it, i dont quite understand idea

i have been having a terrible few days, im just wondering how you all cope with it and get through each day? i am not on any meds, as i have not been offered any as yet, so im just having to deal with it the best i can.

i hope to hear from u soon and would be great to have a chat.
Posted 10/26/2010 7:16 PM (GMT 0)
Hi Badamz and welcome,

    I too am new at this and this forum has really helped. Check out the link for fibro 101. It has a lot of helpful info. Any of the links here are great to check out. I dealt with this for 10 years before I was diagnosed (I always gave the excuse that my pain was "work related aches"). In that time, I found the best help for the pain was gentle massages done with MSM lotion, heating pads, and warm baths with epsom salt. I have also found that if I sit around because I hurt it will make it worse. Moving even just a bit throughout the day will help ease the pain. I have started doing yoga for relaxation about 10 minutes a day and if I feel well I will follow that with a gentle yoga for beginners/fibromyalgia.You can find great free yoga classes on youtube. I hope some of this helps you and you start feeling better soon. If not, I would definitely schedule a follow up with the doc to discuss meds. I started with Savella, Robaxin, and Ultram combo and it seems to be working well. Get well soon and welcome to the family!! tongue

Gentle hugs & Lots of Laughter,
Ivey

Posted 10/26/2010 7:26 PM (GMT 0)
thankyou so much for the message ivey. im sorry u have had this for so long now.

i will be trying all the things that you have suggested, i do try to keep as active as i can, but i also find that doing too much brings it on worse, is this normal?

i have heard that some meds are worse that the cause, have you had any probs with meds?

gentle hugz

amz
Posted 10/26/2010 7:36 PM (GMT 0)
Keeping active is very important, but only you know your limits. You never want to push yourself further than your threshold. If the activity is causing you to much discomfort, STOP! You can make it worse. This is why I have started the gentle yoga. It allows you to work the muscles that need it without over doing. As far as meds, I have been on them for a month and I feel so much better!! When I first went in I could not even get out of bed. The pain was so severe I mostly cried. The pain would wake me up and I would realize I had even been crying in my sleep!! The meds took that away. The first week or so the meds made me a little sleepy, but after allowing my body to adjust, the pain eased as well as the depression the pain causes. I am still not pain free, but I don't think any of us are. We have good days and bad. Always remember to pace yourself and don't be afraid to tell people no. You will learn your limits. This is a great place to have your questions answered and find useful info. If you have any questions or just want to vent, please feel free to post it. The responses and support are always great!!!

Gentle hugs & Lot of Laughter,
Ivey
Posted 10/26/2010 7:45 PM (GMT 0)
its great to know there is something out there that can help with the pain, its just hoping they put me on something.
i have pushed it too far a few times while trying to do the housework etc, and i have paid for it afterwards. my husband is very supportive and he helps me with anything he can, but i like to be independant, but i suppose its just something im going to have to get used to.

can fibromyalgia run down in families? i havent really been able to find that out on the internet.

i have been experiencing something which is really horrible, after every meal, no matter what it is, i always feel nauseous. it takes about 3-4hrs to get rid of the nausea.

gentle hugz
Posted 10/26/2010 8:33 PM (GMT 0)
Hello badamz,
I am 35. I wasn't diagnosed until 2005.....unfortunately my husband was not supportive and wanted me off of his insurance policy so our seven year marriage ended in 2010. I live with family members now who are much more supportive.

I'm not a medical professional but you might have a slow moving stomach which could be causing the nausea. try eating small meals eight times per day. And by the way my sister presents most of the same symptoms as I do so I do believe it can run in families - she will be seeing a specialist next month.
Posted 10/26/2010 8:40 PM (GMT 0)
hi livnlearn, i am so sorry your huband was like that, but i suppose you knew what he was really like deep down. my husband has been the best i could ask for, what with the tiredness, fuzzy brain, all the appointments and having to look after me. im glad you have the support of your family now, it makes it alot easier when you have someone to help you be kinda normal.

should i speak to someone about the stomach problems? im hoping it will go by itself.

well me and my family have never heard of fibromyalgia, it wasn't until my rheumatologist said about it, that i realised. but my mum has been reading up about it aswell and she has very similar symptoms. but she's so stubborn that she wont go to the gp :/

Amz
Posted 10/26/2010 9:00 PM (GMT 0)
Hi Badamz, and welcome to our fibro family, sorry you have to be here but Im glad you found us. You have gotten some great advice from Ivey, Not much I can add to it. As far as running in families I do believe it does. I firmly believe my 20 year old daughter has fibro but she hasnt been diagnosed yet. I also believe that there are others here that have family with fibro so Im pretty sure it can be genetically passed down. As far as the nausea that is something I havent heard of before. Have you talked to your Dr. about this. How long have you been having this and I hate to ask but is it possible that you could be pregnant. Im sorry if Im being too inquisitive here and maybe others suffer from this too its probably just something I havent had. Well anyways welcome and I hope to hear from you again soon.
Gentle Hugs
Shirley
Posted 10/26/2010 9:17 PM (GMT 0)
thankyou shirley for your message, im very happy to of found this family for support and to moan lol.
i think i am going to have to have a little talk with my mum and try to get her to go to the gp eventually.

i have not spoken to the dr about it as yet, but if it carrys on then i will be going to see someone about it. there is no possibility that im pregnant as my husband has had the snip and i have had a endometrium ablasion, so thats a big no no lol.

hope to hear back from u soon

gentle hugz
amz
Posted 10/27/2010 1:16 AM (GMT 0)
Hi amz and welcome. I'm sorry for your recent diagnosis. I'm pretty new at this too, but everyone here is great at offering advice and have some great knowledge. Make sure to check out Sherrine's Fibro 101, very helpful info. Take care!
Posted 10/27/2010 10:19 AM (GMT 0)
thankyou kristaM, how long have you had fibro?

thake care & gentle hugz
Posted 10/27/2010 11:49 AM (GMT 0)
Hi badamz, and welcome to our family! Sorry for your pain but you have found a great place here. It helps to chat with others who know what you are dealing with. I hope you stick around. Take care!
Posted 10/27/2010 11:52 AM (GMT 0)
hi shannon, thankyou so much for your warm welcome, i will be sticking around. u cant get rid of me that easily lol.

take care & gentle hugs
amy
Posted 10/27/2010 1:14 PM (GMT 0)
Hi Amz,

I just got diagnosed this month but I'm pretty sure I've had it the last 2 years at least.

Gentle hugs,
Krista
Posted 10/27/2010 1:16 PM (GMT 0)
do you mind me asking how old you are?
i have only been diagnosed this month and im pretty sure i have had it for about 5yrs, but i put it down to stress, working out too much, all different things that i couldnt really explain.

gentle hugz
Amy
Posted 10/28/2010 2:04 AM (GMT 0)
Hi Amz,

Welcome to our fibro family! Sorry for your pain we all know about pain you will have your good days and your bad days but we are always here when you need us I hope you stick around.

Gentle Hugs
Stacy
Posted 10/28/2010 2:34 AM (GMT 0)
Hi Amy,

I'm 36. And since my kids, I've had numerous health problems, and really, even before that. I've heard that you can get fibro from a stressful event, but I also think it is hereditary...maybe it's in your genes and then something happens in your life and that triggers it. Who knows, I'm not a dr. All I know is my grandmother had it, I'm pretty sure my mom has it-she was diagnosed with lupus but I think she has fibro,and I do. Mine started up real bad after my husband and I temporarily seperated...I don't know if it directly relates to that because I had some symptoms before, but it got way worse after that.

I hope that you find some excellent ways to deal with it-your young, so stay active as much as possible and hopefully you don't have too many problems. Wishing you pain-free days!

Take care,
Krista
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