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fibro and ibs

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Posted 10/27/2010 11:05 AM (GMT 0)
hi all, sorry to burden you with another post.
like i said before, i have recently been diagnosed with fibro, but i also have terrible ibs. i always feel really nauseous after i eat and everything i do eat seems to come straight back out.
i have been to dr's about my ibs, but they say i have to cope with it as theres no meds they can give me. since i have been diagnosed with fibro, my ibs seems to of got worse.
i have tried eating bland, not spicy, not fatty foods, but it doesnt seem to help.
my husband keeps saying i may aswell live on the toilet, but he has no idea what its like.
i am also getting really bad cramping pains in my upper belly, it feels like someones put their hands in there and they're trying to strangle my insides. sad

sorry to moan about my bowel problems, but i dont know who else to turn to.

if anybody has any suggestions for what i can try or anything, then please help me out.

thanks all
Posted 10/27/2010 1:26 PM (GMT 0)
Hi amz,

I've heard of alot of people with fibro and stomach problems do a gluten free diet. It has done wonders for my co-worker. I know even a small amount of gluten makes her very ill. It's not an easy diet, because you can't just cut down, if you do not tolerate gluten, you have to completely remove it from your diet. Perhaps it might be worth trying....good luck and I hope you figure out what is causing this soon.
Posted 10/27/2010 1:46 PM (GMT 0)
i wouldn't even know where to start with that, i know the drs have said about a gluten free diet for me to try ages ago, but i just thought it would pass, but after yrs of suffering its just getting worse.

thankyou so much for the advice, i sure will give it a try because ive had enough of the stomach probs now.

thankyou again
gentle hugz
Posted 10/27/2010 2:31 PM (GMT 0)
Badamz, have you been to see a GI? Perhaps it's not IBS, but an inflammatory problem in your gut, like Crohn's or UC. Hope you find a solution!
Posted 10/27/2010 2:35 PM (GMT 0)
oh, please dont worry me more than i already am :/ . i havent been to see anyone about it, does anyone happen to know the symptoms of crohns or uc?

thanks kazbern
Posted 10/27/2010 9:18 PM (GMT 0)
You should see a gastroenterologist about the stomach issues. You should have some tests to rule out other problems. You need to know what you have so you can get treated for it. Even if it is IBS, a specialist may be able to help you.
Posted 10/27/2010 9:36 PM (GMT 0)
thankyou dagger, im going to be going to the gp on friday, so im hoping he will be able to help me out with whats going on.

hope ur ok.
Posted 10/28/2010 2:40 AM (GMT 0)
Amy,

A gluten free diet is difficult...that means you need to read every label, because it's in everything! And no restaurants, prepared foods, etc. Some restaurants these days are offering gluten free meals I notice because it is a big problem for a lot of people.

You may want to try it...who knows, maybe you can solve your problem without doctors!

Just google gluten free recipes or gluten free diet and I'm sure you'll find tons of info.

Good luck to you!
Posted 10/28/2010 2:42 AM (GMT 0)
Hi Amz,
I have ibs to i found out by going to a GI he has helped me a lot. I go back to get a endoscopy on the 5th so i will let you know what he suggests. hope you feel better soon by the way gluten free might be the way it has helped me a lot.

Stacy
Posted 10/28/2010 4:15 AM (GMT 0)
Hurty,

Everyone's body is so different. Going gluten-free just made the constipation I already had MUCH worse...who'd have thought?? But, I was in so much pain I couldn't stand it! It really is important to be checked out. (For me, eating more soluble and less insoluble fiber was a big help, but that's not for everyone, either.)

Debbie
Posted 10/28/2010 10:09 AM (GMT 0)
thankyou all for your suggestions and replies. Stacy you will have to let me know what happens, hope it goes well.

thankyou all again & i will post again tomorrow and let you all know how i get on at the doctors 2morrow.

Gentle hugs
Amy
Posted 10/28/2010 4:37 PM (GMT 0)
Hi Amy,
I have IBS and I saw a naturopath for it. She put me on a licorice tea and an herb called slippery elm bark. I ate a bland diet (alot of jello and applesauce) and used hot packs on my tummy. I felt better within a few months. I know naturopathic medicine isnt covered by most insurances but she gave me answers and things to help when a regular doc couldnt.

Good luck!
Posted 10/28/2010 6:30 PM (GMT 0)
hi lost,
thankyou ever so much. im hoping to get some sort of answers tomorrow when i visit the gp...hopefully anyway.

gentle hugz
Posted 10/29/2010 3:20 AM (GMT 0)
If the "runs' to the toilet greatly outweigh the constipation there is a prescription drug called Lomotil., I credit it to saving my life when I first got sick. now I have the opposite problem but this is now 14 years later.Good luck
Posted 11/1/2010 8:07 PM (GMT 0)
I must say that I have been through exactly what you are going through. The GI was not helpgul at all. Gluten free, low sugar is the way to go. Even an excess of fiber can irritate mine so I have to really watch the fiber as well. Insoluble fiber is awful for IBS. Gluten free is tough especially this time of year, because holiday gatherings are primarily gluten full. I usually eat something small before I go and take dish that is gluten free so at least I can eat with everyone. Do your research so you know what to order at resturants and read labels, It is tough on the family as well, because they can eat it and you can't. there is an adjustment period but when you see how good you feel you won't regret it. Makes it hard to lose weight though, because contrary to popular belief you need carbs from whole grains to lose weight and many gluten free foods are high in the the wrong kind of carbs.
Posted 11/2/2010 1:11 AM (GMT 0)
While going gluten free is has a large learning curve, I do not consider it a hard diet to maintain. We have been doing a gf lifestyle for 7 years now. We have been corn free for 3 years. (My husband can not have corn, foods with high salicylates and lots of other things he popped a positive for on the allergy testing.)

There are so many new foods on the market that are labeled gluten free now. If you like Asian foods, you can really enjoy their markets and make sure you get the gf soy sauce. Indian markets are wonderful in finding gluten free foods. Even WalMart and local grocery stores now stock many gluten free foods that were not available 7 years ago.

It might not be gluten that is aggravating you, it could be casein from milk and milk by products. Soy can also cause distress and flare IBS. If you use the sugar substitutes, that can also send you running with cramping.

you can eat buckwheat and there are many higher in protein flours now available in the health food stores. I purchase a good many of my groceries through Amazon.com because they are much cheaper on the products I like.

If there are any questions that I can help you with if you want to try the gf diet, I will be glad to assist where I can.

Eating out can be difficult. You need to ask lots of questions, but it is not impossible to do.

Jason's deli and Mellow Mushroom now offer GF foods. Outback Steakhouse has a GF menu as well.

I hope you find a solution to get straightened out. as others suggested, seeing a gastro dr is your first step to getting to feel better.
Posted 11/2/2010 6:06 AM (GMT 0)
Hello depressedfibroamz

I'm a 47 yr old and from the UK too. I've been up since 3.00am with IBS pains. Decided to look at what the problem maybe that is causing my IBS to flare up at 3.00am. It looks like it's a random thing that happens every now and again, probably defined by what I have eaten the night before.
Looking through the site, I found your symptoms are the same as mine...BPD, IBS, Fibromyalgia, depression, anxiety, fatigue, low energy, but I don't suffer from panic attacks anymore. I found the way to coontrol them is to know in your mind for a fact that your not!!! going to die.
I notice your on Citalopram this is good but I have found it is not as effective as Risperdal keep that one in mind when Citalopram stops working for you. For your diet make sure you have a handful of Allbran every morning with your regular cereals to make sure everything works alright in the bowel area. Try not to eat anything with Gluten in it. Take little exertive exercise as the more you do the more everything especially the Fibromyalgia flares up! Take up Yoga in other words as this will give you the necessary exercise. Try to cut down from the Tramadol (which is causing you more problems) to Co-Dydramol which will give you the pain relief you require. Stress is something to be avoided at all costs. You must get your husband to accept the fact that you are unlikely to ever recover from this problem unless there is a miracle cure. Sorry for that but I have suffered with this since 1987 and to date there is nothing that works except plenty of sleep and rest. You may require 14 hrs sleep a night and very little work at the worst of times but, there is a life for you as long as you conform to the restraints put upon you by these illnesses. Above all think positive and love your partner as I love mine for being so understanding.
Best wishes for your future...
Runckle
Posted 11/6/2010 4:07 AM (GMT 0)
I was told there was nothing that could be done about it from age 6-27. Finally after having to turn around on the way to work every day for a week, a doctor put me on Bentyl, and it controls both ends of the spectrum. I only have a few tummy issues if I drink carbonated beverages and around my period now. It's made a huge difference.
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