I AM GOING TO DISNEYLAND

our kids and grandchildren and spending a few days in

Disneyland. My kids are aware that I cannot do what they

can do and I am hoping that just having some park benches

around will be all that I need, to just take a break and sit

for a while. Any suggestions from anyone? I appreciate

any information...thanks so much

Miriam

I take ibuprofen every six hours and Tylenol in between the ibuprofen doses.  But, when I went to DisneyWorld, I decided to take it every four hours while I was there.  I figured it wouldn't kill me to do that for one day and it would keep the pain really under control.  I didn't want the pain to kick in and then take longer to get it under control.  I hope I'm explaining this good!  LOL  But, it worked for me beautifully.

You have a great time!  Sounds like a lot of fun!

Sherrine

Well, I did get off the subject, didn't I? Anyway, I cannot say that I am feeling great about traveling, but I am better and I know that I can do this. I just keep focusing on the images of my grandsons' faces, to see their joy in Disneyland, to be able to spend time with them and have the younger ones get to know us. Somehow, I will get through Disneyland, as long as there are benches, I think I will be okay. And like Sherrine suggested, I will take my pain meds a little earlier than normal; it's only for two days, so that shouldn't be a big deal. I'll do whatever it takes.

Thanks again...knowing how busy everyone is this time of year, I really appreciate you taking the time to write,

be well

Miriam

If you get one, use Orange County Wheelchair (If you want, I can look at the bookmark on my work computer later, to make sure).  The chairs at Disneyland are wobbly and unpredictable (like fibromytes).  Orange County delivers to your hotel, cost is only $50, you have it for your walk to the park, it is sturdy and you are sure to have one.  I have used them twice.

The wheelchair was a huge help in line-standing because the static standing is very very difficult for me.  But if you are not going to ride, then that may not be an issue.  It was nice, too because I could get out and push it after sitting too long, and others could sit in it occasionally. 

It was also nice for getting around because family members go faster than I can, even when I am taking enough meds, not flaring a lot,  or use a cane.  If you do not use a chair, take a cane or a walker.  I prefer a cane, personally.  You can use it for support when standing in line and when you sit on a crowded bench, people are more understanding. 

There were a couple of drawbacks to having a chair, but they were minor.  People run right in front of you and it is hard to get momentum back up when you have to come to a screeching halt to keep from running over someone.  Also, people don't always see you because you are lower to the ground and they are not used to looking down to your level. 

My family took turns pushing me, and I took turns pushing myself.

Tips: 

• If you get a chair, bring bike gloves - they are helpful for going down hills and self propelling
• do not self propel the whole time - it hurts fibro arms
• they have single-rider passes, so if only a couple of your party want to go on a ride, they can go to the front of the line.  Some teens abuse it and their whole group goes, but that is rare
• if you use a chair at the fantasia water show, do not sit right in front because you will get all wet from the spray and you will not be able to back up because of the crowds.
• get a bag to hang on the back of the chair for sweaters and purchases
• I had a lot more fun and did not fret about pain. 

Have fun!

Sue