SuziQ462 said...
CrushFibro said...
I tried it for awhile, but did not receive enough relief to justify the out-of-pocket expense. In addition, I did experience a slight weight gain while on it. Everyone is different, so we all have to try things to see what (if anything) works for us.
I recently had to discontinue my Savella because of intolerable side effects, which was unfortunate because this was the single med that provided me with the greatest pain relief. I guess I'll have to wait to see what they come up with next, but in the meantime I wish you well in your journey.
I'm just curious, what kind of side effects did you have while on Savella? I had a few in the beginning but nothing major. My hands were extremely shakey for a few weeks and I experienced some nausea, but it all subsided after a while. Are you taking anything now that works for you???Immense jaw pain/tension (around the clock -- far more exaggerated than my usual TMJ symptoms) and horrific headaches. The first time I tried Savella in September it felt like they were squeezing a vice-grip around the back of my head and tightening it more and more each day until it was ready to literally explode.
I read about
people on SSRI's that had similar symptoms which were relieved when taking the SSRI in conjunction with buspirone. Mentioned it to my doctor and she decided we could try the Savella (SNRI) with the buspirone. It did take the side effects down a notch, but still they were at an intolerable level. We titrated very, very slowly and I think this time I was on it about
4-5 weeks before I gave up.
Both times I went on Savella I had some nausea, but I could deal with it. The first time I had lots of sweating -- not as bad the second try, but still there. As far as if I have anything right now that works? Unfortunately, no -- other than taking percocet when the pain is at its worst, and I'm completely paranoid of addictions with meds like that so I really try to keep usage at a minimum.
Like many of the rest of the people here, I'll just keep plugging along and see if I can find "my answer" in the midst of all the trial and error.