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Posted 1/13/2011 9:46 PM (GMT 0)
Hey friends I am trying to sort through the different meds for fibro and haven't found the right combination. If anyone has any ideas or have found something I can try please let me know.

Help confused

Posted 1/13/2011 9:50 PM (GMT 0)
I use 50mg amitriptyline at night plus 50mg tramadol. If you can survive the drowsiness from the amitriptyline (Elavil) for the 1st 10 days to 2 weeks, it works very well. Many give it up early on as they are too tired by day, but the drowsiness effect goes away within 2 weeks.
Posted 1/14/2011 10:36 PM (GMT 0)
Rhonda,
I keep reading on here what everyone else is doing for their fibro to see what works for them, but I haven't found the right combination for me either.

Since August 2010 this has been my whirlwind of trial and error:
Was on Prozac for years (previously Zofolt for several years and an unsuccessful course of Lexapros)
D/C Prozac in August; placed on Savella and Ambien (for the first week or so this was the best I had felt in 20 years, but it didn't last)
Given short-term prescription of Ativan (following sudden death of a 3-month-old great-niece) -- in the midst of a major fibro flare at this point

D/C Savella due to side effects (severe vice-grip headaches and jaw clenching/pain/tension)

Tried glutathione shots -- major painful reactions (called Herxheimer reaction... owie!) so then they went to daily glutathione packets with ATP co-factor that is supposed to help body absorb the antioxidants

Back on Prozac... only to now have new side effects from that -- headaches that I never had before
D/C Prozac

Given a prescription for Flexeril (but not much relief, other than it puts me to sleep)

I think Amitryptilene was next -- stayed on it 3-4 weeks but wanted to sleep around the clock, so that wasn't the answer
Lyrica prescription followed... not much relief there

New information suggested that a combination of Savella and buspirone might help alleviate previous side effects; no luck... had to quit again from headaches/jaw pain

I have percocet for the worst days of pain.
I did weekly B12 injections for six weeks and now monthly (also supplement with daily B12).
I take magnesium, Vitamin D, Omega, general multivitamin and chiropractic care. I have a jacuzzi, heating pad and heating blanket that are my best friends on tough days.

All in all, I have far more energy than when all the treatments began in August -- but my daily muscle pain is as achey as ever. I try to stretch and move around, but I'm not doing a regular exercise program.

Still waiting for my miracle and praying that everyone else gets one, too!
Posted 1/15/2011 12:09 PM (GMT 0)
confused  Hey crushfibro,

I know the feeling, I mean I just feel like every doctor is playing me for a guinnea pig and the whole while I am hurting so bad. I am now at the point of having so much pain at the knees I feel like it is a matter of time that I will not be able to walk any distance....I am so frustrated. I have restless leg syndrome (which is a symptom of fibro) and let me just tell you something. I have not been to a movie in 15 yrs. I also cannot fly without taking strong pain medicine. Every night as soon as I retire and try to lay down it begins. I do leg lifts, move legs, walk around the house, apply heat; try everything under the sun. The doctor just put me on Repro but I think either the dose is not strong enough or it just isn't working. I am tired at all times of day because I don't get adequate sleep. I am so frustrated I just don't know where to turn. Sometimes I feel like I want to sleep forever. I want to be strong, but sometimes it is very hard. Hopefully I will find a good combination soon and can finally get some relief. Good luck to you as well, and hold your head up!

Posted 1/16/2011 5:22 AM (GMT 0)
I liked Darvocet for when my pain flared, but - well - they done banned it :( so now I'm taking Tramadol (3 times so far) and I think it makes me a little more out of it (bad) and helps the pain a little less (also bad) but I don't think my pharmacy will magically find me Darvocet again, so .....

My other meds are listed here, and they do keep my pain down to a dull roar. You've already heard it, but it can't be stressed too much: we are all different.

Debbie
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