Fibro ? Could this be related?

I'm running this by the Fibro forum. I'm new here and posted in other sections. The idea of Fibro did cross my mind last year but from what I read, it seemed possible but far fetched. After reading Fibro 101, I'm not sure anymore. I'm waiting for a Lyme test next week. Neuro ruled out ALS or other motor neuron disease.

Jan 109-June 10:

repeated sinus/chest infections.

anxiety attacks

unable to take a deep breath

depression

dry eyes, mainly in left (normal eye exam, except dry eye issue)

left-sided abdominal cramps and hard-to-describe cramping-like pain

hypersensitive to medications, seem to impact me harder

tingling and numbness down left arm, wrist pain

sudden all over feeling of a sunburn, painful to tap me on the back or around the waist

hypersenitive skin went away in four days. Took an Imtrex and it came right back for a few days. (Took a big mental note of that)

migraines x four years now

tension headaches

IBS (for many, many years)

TMJ (severe)

*normal bloodwork, normal eye exam, normal CT of sinus and lungs, normal pulmonary.

This all stopped over the summer and returned in Nov. 2010. I took Imtrex after and didn't have the problem.

Nov 4, 2010

Passed out on the couch with a headache (started mildly at night and wake up with a ranging headache). Awoke from couch, slept all night with hands behind my head and legs dropped over the end (heavy shoes on too). Horrific headache and nasuea. Took Vicodin. Didn't work. Took Imtrex, which eventually worked, took a few hours. My neck was very, very sore and stiff.

Next day:

Tingling over right shoulder blade that turned into "locked muscles) and huge knots, terrible pain and couldn't get relief from it. Pain down right arm like tennis elbow, could barely move arm. A week and this went away, moving into left arm and growing in intensity, then down left left. So far, no problem with right left. Muscles tense and muscle ticks pop up all over my body. Tingling and numbness in fingers, strange sensations, such as hot spots on my legs, shivers on one side followed by feeling of cold water over same area, generalized and roaming musle twitches. Major neve pain down back of leg and into ankle making walking uncomfortable. For awhile, felt like my left good was asleep even though I was walking on it. When the nerve pain starts (thinking the muscle contract and really make the nerves go crazy). Joint pain and stiffness. Runs of weird heart arrythimas, grinding teeth bad, hand and foot cramps, cramps around left lower breastbone.

Mind you, this hits different areas and not all at the same time. But, there's a great issue with the left arm and leg; however, left arm did feel better today but then flares. Eye twitches, twitches have even run up and down my neck and felt as if they were in my ear canal. Sensation of heat on the left side on my face.

I assumed Fibro impacted both sides of the body at once so I dismissed this as a possability. I do have disc herination in my neck but not idea about the back. Today i developed a super sore lower back on right side, like someone punched me in the kidney or something. I also get these odd spots that feel like bruises but there's not bruse. I'm in pain, yes, but not in the way I've always read the Fibro sites describe. I'm sore and feel like I've been running or something, even when I do minor work. Even wearing heels made my butt hurt for two days.

Today, I have spot on the inner part of left knee that is such a pain point, like a bad bruise, which of course isn't there. I get joint pain and feelings like my left arm is swollen, it's not, it's painfull nerves but not swollen, but what kicks, it makes typing really hard.

I actually feel better when I'm up and moving, like I have this nervous energy that has to go somewhere.

Been taking Neurotin and Xanax, which help a lot. I can type all this without feeling that carpal tunnel feeling because of those drugs, fingers work great when those drugs kick in. The muscle twitches calm a bit but they're still there.

But, this isn't going away and keeps morphing into other things. I had a very bad panic/anxiety attack fearing I was dying of something but once the neuro didn't find anything, that panic calmed (just a bit) but the problems are real and not going away. With all this, it's easy to see why I'm saying, this isn't right, something is going on.

I used to take Vicodin for my bad back but I can't take the stuff, it makes my muscles hurt more, I have some weird response now  to that.

This is really freaking me out, naturally, so I don't mind posting just to see what others things, another member suggested it and it can't hurt.

I'm so tired of this. This keeps changing and it won't go away.

Hi metalcompass and welcome to our fibro family, alot of what you are describing definitely sounds like it could be fibro, I would make sure all other things are ruled out first and then ask your dr. about it. Hopefully you have a dr. that believes in fibro. I will be praying for you that you get answers soon, I know how frustrating it can be to know that something is wrong and then they find nothing. Please keep us updated on what you find out.
Gentle Hugs
Shirley

I only recently learned in this forum that it can be one-sided pain.

Have you seen a rheumatologist? They are usually the ones that believe in fibro the most. I hope you find some answers and get relief soon!

Thanks for the feedback, honestly, I thought I was crazy. This doesn't makes sense and no matter what I research, nothing points me in the right direction. I was reading the information on Fribo you find via a Google search and while many of the symptoms I have seemed to come up, nothing said it could impact one side so I figured I was just wrong. I'm glad to know that's not the case but all my searches kept coming back to that. I guess I need to find a doctor who will take this in serious consideration. To be honest, it's not all one side, the nerve pain is on that side; however, I get get eye twitches on the right and my back muscles on the right are very, very sore. So, it's both sides but the left is way worse. It almost feels like I'm being ripped apart, twisted apart...weird way to explain it but...that's how it feels. The left side of my face and body feels hotter than the right, is that something anyone else has experienced? I am guessing it's the sensory stuff. Touching my arm, just stroking it, hurts. I get shakey too but that's probably nerves from this going on so long. And I was thinking...what if I ditched all the meds and just let this hit me full force and see what it has...not sure, the pain was pretty bad and I hate to back there again. Man my nerves are just shot. I had two cups of coffee today, I think that's bad news right now, it seems to really bother me and I've been drinking coffee everyday for 20 years with no problem, not anymore.

I do get nerve pains too. They scare me so bad sometimes. From what my doctor has told me they can hit any nerve at any time. There are so many new "weird" things I learn about fibromyalgia everyday. I have TMJ which is one of my symptoms of fibro. And it affects the ear/jaw/neck/chin on a daily basis. I also get the eye twitches as well as twitches and spasms everywhere else. Again I hope you find some answers.

By the way, I have TMJ too, wicked bad, I don't think my jaw has any bones left that are in the right place, you can hear them clicking and loose in there. There's a lot I can't do because of that. :) I've had TMJ for 20 plus years, it's the worst when I'm under stress, but I've done so much damage already that even my teeth have vertical stress cracks. In fact, there's a few teeth that when I need to replace the filling, I may lose them because of it, so the dentist said. I've had mornings where I thought I had lockjaw! Like I said, I've had TMJ diagnosis since I was 18, that's 23 years.

Neurotin, I think, is working.

Hi Bridget. I just went the same route you did. My mother has MS and they did find a few brightspots; however, he said that might be normal for me and is for many people, so he wouldn't go the MS route. He told me to come back in two months but all the EMG studies and nerve stuff, the MRI was normal. I left there confused. He said, "my staff tells me you're a nervous person...." That was a nice way of saying, you're doing this to you. I'm not. And darn right I'm nervous, I have a young child with disabilites, I just bought a big old house that needs rennovations, I run a business with my hubby, our finances are tight and I'm sick! Yes, that's cause for being nervous no doubt. What a dumb thing to say, huh? Like I want to be in his office spending money I don't have for a disease or a process or syndrome that he can't find. I was scared, I admit it, because when you google muscle twitching, up comes ALS, I nearly had heart failure. The only thing he did say to me was, "you don't have ALS." Thank God for sure. But, I would like to know what is wrong. I was really shakey today, like I'm plugged into an outlet, I find that sensation totally odd and unsettling. The allergist/immunologist won't test me for Lyme. I think I'll go to a rheumatoid doc and turn that rock over next. He will do all the tests I need, I'm guessing. I am totally fustrated at this point because I have to keep looking. Everytime I go to a doctor I have to reveal this huge history of tests and that makes me look crazy to them. I don't know what this is but my gut tells me to keep looking because it's important.