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Posted 2/3/2011 8:29 AM (GMT 0)
hi everyone,

i just wanted to ask if others have experienced constantly changing symptoms with fibro? i was told by my GP that he suspects fibro and was given amitryptelene but not had much success with them. main symptoms are all over body ache, muscle tension (like flu symptoms) and tingling/numbness - but I am also going through menopause and have read that peri-menopause can cause said symptoms along with the hot flushes and poor sleep.

my real question though is do any of you have ever changing symptoms?? I have had burning tongue & lips (lasted 3months now gone), itchy vagina (no infection just drove me nuts for about 1 month), issues with memory (improved somewhat at the moment but comes & goes), emotional down times for no reason (appears OK at moment), dry gritty eyes (fine now but lasted about 4month) and many others which i have now forgotten LOL!

i find it frustrating that my gp's attitude is treat symptoms dont worry about cause as i want to be able to work with my problems not fight against them - i go to the gym 3 x a week and do pilates and zumba -not sure if im doing good or bad!! but my head feels better for doing it (maybe im my own CBT therapist LOL)

looking forward to some responses cool
Posted 2/3/2011 3:51 PM (GMT 0)
hi

how interesting that you are noting the ever changing symptoms

firstly i think that we are a very sensitive type trying to make sense of it all.

symptoms are ever changing for me, and just when i think that i have come to terms with a pain, ache, flush,memory lapse,etc it goes away... only to be replaced with another one!

exercise helps, but sometimes there is a rebound effect that is a real pain!

the type of weather, kind of mood affect us too.

i have no happy pill to reccommend, nor a therapy that resolves the issue.

i have given myself the right to feel awful, and give in to the pain of the day.

im not sure what the answer to it all is, but i would also love to know what others think of their pain management. blush

Posted 2/3/2011 5:17 PM (GMT 0)
Welcome, Jaxx.   :-)    You've come to the right place for honest talk about fibro.  None of us are quite the same, but we all struggle with many strange symptoms that come and go and trade places.  I'll leave the bulk of the good advice to others who are more adept...they'll be here soon!

Debbie

Posted 2/3/2011 5:47 PM (GMT 0)
Hi, Jaxx, and welcome!  I'm glad you found us and joined in.  Oh, yes, things change for me all of the time.  I'll have something last months and then usually gradually disappear.  I find that if I wait long enough, things go away but something else takes it's place.  Right now I"m having problems with one foot.  Every winter, one of my feet have problems but it clears up in the spring.  I can't figure that out since I live is a warm climate. 

 

Be sure to check out Fibro 101... the first thread on the forum.  There is good information about fibro and you will learn a lot there.  There is a list of symptoms that could help and you just might see yourself there.  It might answers some questions you may have, too.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon. 

 

Sherrine

Posted 2/3/2011 6:16 PM (GMT 0)
Hi Jax just wanted you to know that you definitely arent alone with the shifting tides of fibro. I think I have had it in every area now and it is starting over. I used to just cry at the frustration of pain in a different area than what I had gotten used too. Now I think of it as this too shall pass.
Hope you feel better soon.
Gentle Hugs
Shirley
Posted 2/4/2011 12:27 AM (GMT 0)
It's funny you should mention the ever-changing symptoms of fibro. The other morning I was laying in my bed thinking that the symptoms seem to "hang over my head" every day. And when I wake up in the morning I wonder which symptoms will "drop" on me today. Will it be exhaustion and muscle pain? Will it be anxiety and heart palpitations all day? Or maybe muscle weakness to the point where my legs just drag and my joints feel like those of an 80 year old woman? Maybe my hands will refuse to work and my hair falls out worse than usual in the shower.
Some days it's all of the above.

Sorry...didn't mean to look on the dark side. I'm still learning how to cope with all this. I usually take it day by day--and sometimes night by night. Lately my pain seems to be worse at night and when I wake up in the morning. I'm guessing it's because I don't move around very much while I'm asleep. Wish I knew what to do about it...
Posted 2/4/2011 10:46 PM (GMT 0)
Hi everyone,
thanks so much for all your comments -i guess im one of many with this confusing "tide" which does help. it's just that im now confused as to what is menopause problems and what is fibro!

im gunna have a good browse round as im sure there are some great ideas and some great support to be had idea
Posted 2/4/2011 11:24 PM (GMT 0)
I wouldn't worry about it too much. You have nothing to compare it to as we only go through menopause once. And it can take forever. Just take life one day at a time and make the best out of each day. That is the best that you can do. That is really all you can do, as you don't know how you are going to feel from one day to the next.

I have somewhat got my pain under control. I am going through menopause too. I still have pain, and sometimes bad, but it is much better than it once was. For that I feel fortunate. I take life as it comes. I have gotten use to the limitations. And I hope for the best each day. Keep trying. It tends to level out and once you have had all the symptoms, you get use to them.

Best wishes,

Hugs, Karen
Posted 2/10/2011 8:02 PM (GMT 0)
been back to GP re flushes and poor sleep pattern -he still reckons all the pins & needles, aches, exhaustion, weepiness are linked to menopause -has upped my clonidine to get flushes back under control!
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