HealingWell
Search Close Search
☰

Forgotten

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/16/2011 3:25 AM (GMT 0)

I have not been diagnosed with fibromyalgia,  Infact I dont really beleive in diseases that you really cant prove like depression.  Well lets just say my opinion has changed.   I have always been tired since i was 18.  I couldnt keep a job because I couldnt focus on anything for long.  I always thought that i was not normal because every few months i would spiral downhill and feel like crap and then one day i would jump up ready to take on the world again and the cylcle would repeat.  I didnt have a whole lot of pain back then just some in my lower back and neck where i have bulging disc but nothing i couldnt typically handle with otc meds.  When i had my second daughter thats when things started happening.  I wake up in the morning and take a pain pill and lay in bed for half a hour. When the pill kicks in i get up still in pain but the edge is off sometimes my right ankle and knee feel sprained sometimes it changes to my left.  3 weeks after having the baby i found a knot on my spine the doctor told me it was a muscle spasm and prescribed muscle relaxers they seem to make my fatigue worse and hardly do nothing for my spasm.  It has been 8 months since i found it and now i have 5 more.  sometimes the pain in my back and neck have me curled in a ball on my bed for hours even with pain medicine.   My doctor says he will not prescribe a higher dose of pain medicine because we cannot figure out what was wrong with me.  So i take two percacet 5/325 and 3500 mgs of ibprofen a day.  Needless to say my liver enzymes are out of wack and i have ulcers at 26 years old but what else can i do i have a 8 month old and a 4 year old i wish that i could stay in bed all day but i cant i swear my children are the olny reason that i have lasted this long.  So i still take the ibprofen to make it around the house.  I dont even drive anymore sometimes i feel ,like my mind is in a coma but my body is still fuctioning i have mild blackouts where i will forget a whole ten minutes and i will never remeber it. its just gone and it is just too risky to drive my children ariund.  my hair has also been falling out and breaking off. i used to be really pretty and now i am just ashadow of my former self.  I also feel like i am being suffocated like some one is squeezing my ribs in giant bear hug.  I dont even want my husband to touch and i love him more than life itself i feel like im trapped whenever he hugs me and i know it hurts him when i push him away from me but it almost seems like an automatic reaction.  We are typically a playful couple and one day he tries to hit me in the but with a bouncy ball instead it landed in between my two shoulder blades and i dropped to my knees and saw black i thought i was going to faint from the pain. thats when i decided something had to be done.  I am losing my family and they are my world.  S you are probally wondering why i wrote all this.  I want to know from diagnosed fibromyalgia patients if my symptoms sound similar to theirs or not.  If doctors cant help me i have to help myself i would like to go in  my doctors appointment next monday and have a solution to my problems. please help i feel so alone in this. 

Posted 2/16/2011 2:55 PM (GMT 0)
Hi misplaced, welcome to our fibro family. It sure sounds like fibro to me. and the pain around the ribs sounds like costchondritis. You might want to check out fibro 101 at the top of the forum. Sherrine has compiled a list of links there to help us. One of them is what else could it be and the other that I think you would really be interested in is Symptoms of fibro.
I am sorry you are in so much pain but you really have found a wonderful place with loving and caring people here. Please feel free to ask questions, vent when you need too and offer support to others when you can. Hope to hear from you soon.
Gentle Hugs
Shirley
Posted 2/16/2011 3:09 PM (GMT 0)
Fibromyalgia is very real. And so is depression. Depression is a disease, even though you can't see it physically. Often depression takes on symptoms like fibromyalgia. You can get pain and fatigue. So it is hard to say which one you are dealing with because they can go hand in hand.

It sounds like when your husband threw the ball at you that it hit one of your tenderpoints that you get with fibromyalgia. The doctor touched one of mine once and I came off of the table.

It may take awhile to get a diagnosis, as they have to rule everything else out. Unless you are already past that point. I wish you luck. Know that everybody here is very kind and compassionate. We all understand what you are going through.

I am glad that you have the percocet. It does help. Your pain may never completely go away. But if you can keep it at bay and down to a minimum, you are lucky.

Best wishes,

Hugs, Karen
Posted 2/16/2011 3:40 PM (GMT 0)
Refer to Grumpy's post "Just me and how I feel"

Grumpy I had to delete your post due to forum rules, no duplicate posts.
--------------------------------------------------------------------------------
Fibromyalgia DX June of 07 December of 08 i got to have a vacation in the hospital with blood clots in my legs and abdomin meds I have tried them all the only thing that even remotely helps me is oxycodone 15 mg and thats all i take i hate meds trying to get disability since June of 05

Post Edited By Moderator (getting by) : 2/16/2011 11:25:35 AM (GMT-7)

Posted 2/16/2011 3:46 PM (GMT 0)
I HAVE BAD SPELL WHERE I GET ANGRY AND YELL ALOT THE PAIN IS SO BAD AND EV3RY THING SEEMS TO BOTHR IT. I HATE TAKING THINGS OUT ON MY FAIMLY MY BIGGEST PROBLEM IS I HAVE NO WHERE TO GO TO HIDE WHILE THE PAIN IS AT ITS WORST I TRY TO GET MY WIFE AND KIDS TO LEAVE ME ALONE IN MY BEDROOM WHEN THIS HAPPENS BUT IT NEVER WORKS OUT...I CANT WAIT TO GET MY SSDI KICKIN IN SO I CAN HAVE A ROOM BUILD ON WHERE I CAN GO AND LOCK THE DOOR WHENEVER I GET THAT BAD.........THAT IS THE WORST PART OF ALL THIS INSANITY......EVEN WORSE THAN CRAWLING TO THE TOILET JUST about HALF THE MONTH USUALLY.......STAY STRONG CUZ A WEEK MIND WILL NEVER EVER EVER DUE......ONCE YOU GIVE UP AND GIVE IN THEN THE DISEASE HAS WON AND YOU CAN NEVER EVER LET THE DISEASE WIN...
Posted 2/16/2011 4:52 PM (GMT 0)
Hi, misplaced, and welcome!  I'm glad you found us and joined the family.  It sounds like fibro but it also can be other illnesses to because fibromyalgia has a lot of the same symptoms as other illnesses.  I see you were directed to Fibro 101...the first thread on the forum.  There is a link there called What Else Could It Be.  Read that.  These are the illnesses you need to have ruled out before a diagnosis of fibro is given.

 

If I were you, I'd find another doctor.  I see a board certified Internist but many see a rheumatologist.  Whomever you see, ask if they treat fibromyalgia patients before you set up an appointment. 

 

I'm not a doctor but I do know that my doctor says that 2,400 mg of ibuprofen is the highest safe amount to take.  Online I've seen 3,200 mg as the highest amount.  No wonder you have ulcers and that can be very dangerous.  I have taken ibuprofen for my fibromyalgia for 24 years.  I did get one ulcer but that was because I was taking it without food.  You need to eat something when you take it to help protect your stomach.  Anyway, when I got the ulcer, I was put on Prevacid for a month and only took extra strength Tylenol for the pain.  I tried to only use Tylenol for about eight months but I needed the ibuprofen...badly!  So, my doctor now has me taking Prilosec.  Prilosec, he said, will protect the stomach against ulcers 70% of the time.  I liked the odds so I'm doing that and so far so good.  But it is important to get those ulcers healed up. 

 

When my children were little, they would fool around and give me a playful swat.  Well, it felt like they hit me with a sledge hammer and I thought I would be bruised for sure.  Nope.  Never got bruised, so I do know what you are talking about.

 

I, too, get the knots in the muscles.  I see a massage therapist who gives me a GENTLE massage and it really helps me a lot.  My MT is a member of the American Massage Therapy Association.  In order to be a member, they have to continue taking classes and learning many different techniques in massage.  Right now she is taking a course on massaging cancer patients.  So, these therapists are really good.  Here is a link to find one in your area if you are interested.

 

http://www.amtamassage.org/findamassage/index.html?utm_source=%2Ffindamassage%2Flocator.aspx&utm_medium=web&utm_campaign=redirect

 

Be sure to read Fibro 101.  You will learn a lot there.  There is a link to Symptoms.  Also links to malic acid/magnesium supplements and vitamin D3 supplements.  These have helped quite a few on this forum.  It's worth talking to your doctor about. 

 

I'm looking forward to getting to know you better.  I hope to hear more from  you soon.

 

Sherrine

 

 

 

 

Posted 2/17/2011 7:28 AM (GMT 0)
     Thanks everyone for the welcome.  I was diagnosed today by my family practioner.  I went in to the doctors appointment chest puffed out shoulders straight and told him i was not taking no for a answer.  i even wrote a letter to him and read it out loud in the doctors office so that i didnt leave anything out.  I told him i am not a drug addict but i feel like you are treating me like one, when i am being ignored or overlooked.  I already receive a prescription  for percocet so if i was a addict why am i still complaining.  He said he was sorry if he had done anything to make me feel like that and yes according to all my symptom it looks like fibro and he would try to hurry my specialist appointment through, but it could still take months.  And please dont judge me wrong because i am excited to be diagnosed with this incurable disease maybe the shock hasnt hit me yet, but im just happy to be validated.  I think ever one who has fibro felt a little scared  that it was all in your head. I know I am one of them.  So thanks peeps from the bottom of mhy heart for giving me the strength and confidence to stand up to the doctors and say I may have not went to medical school but i know when something is not right in my own body.  which in truth i should have known better cause i have been misdiagnosed twice already.  Once for carpall tunnel which im sure yall can guess was actually the fibro starting. had surgery fo no reason on that. and once me and my first daughter almost died from toxemia because the experts once again said nothing is wrong.  I guess doctors are people to and make bad calls all the time. Maybe it wouldnt be like that though if they didnt treat you like a manufacturing line.  Can you imagine "Hey this person is defective send her to quality control or stock her in that bin there until a specialist can see her" haha god that sounds terrible but it is kinda how i feel.  so anyways he put me on gabapentin 300 mg he said my insurance wouldnt  cover lyrica has anyone tried it and can tell me what to expect.  I am also on percocet for pain ranitine for ulcers dicyclomine for stomach spasm or something to do with my gallbladder.  he said he wanted to start me out slowly on the meds that i will start taking especially because of my stomach probs anyways he is putting me on colanzapam for sleeping and aniet maybe my hair will quit falling out and he said NO MORE ibprofen haha so i chunked them in the disposal. well it is late so good night peeps remeber to stretch them muscles in the morning and have a good day.
Posted 2/17/2011 7:51 AM (GMT 0)
I had almost the exact experience when I was dx. I think that doctors should be psychologically evaluated before they are allowed to speak to the first patient, and thrown out of the program if they have no compassion, it should be against the law to make patients feel like that. I also know how you feel about feeling relieved that you are really not a lunatic, you really are sick! And I believe you. You deserved better.

I was dx a long time ago it was thirteen years ago, now the doc says I shouldn't still have so much pain, after all this time, he has never gone up on my pain meds, or changed my med for pain. I have some other conditions that cause pain like ulcerative colitis, psoriatic arthritis, gerd, and some others, so he says now he understands that I could actually be in this much pain. I'm looking for a dif doc. I hate to go anyway. It's like begging for pain meds, and feeling like an addict, and people in my family don't think I should be taking pain meds this long either. I try not to complain to them, try to keep it to myself, they roll eyes, make comments, it's not worth it. Sometimes family is less supportive than a group like this. good luck

Posted 2/17/2011 6:26 PM (GMT 0)
Thank goodness you stuck up for yourself, I have not tried any of the meds for fibro yet but who knows what the future holds.
✚ New Topic ✚ Reply