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Do you have thyroid disease and fibromyalgia?

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Posted 3/5/2011 12:13 AM (GMT 0)
Just wondering how many out there have both FMS and thyroid issues.. have been reading lately about thyroid treatments and it's mentioned when thyroid levels are stabilized, that FMS symptoms are not as bad... I have both FMS and Hashimoto's thyroiditis...
Posted 3/5/2011 1:21 AM (GMT 0)
Yup, me too...I took synthroid for about 20 years, then it was decided I didn't need it for about 20, then they found incidentally that my function was low again. Now I'm back on it, but a generic brand. (My pain isn't any better, but then they haven't found the right dose yet. For some reason they started me at 100 mcg, then 75, 50, and now 25.) What would life be without our constant questions?? jk jk

How is your treatment going?

Debbie
Posted 3/5/2011 2:02 AM (GMT 0)
I can't do T4, it's like poison in my body. I'm on Armour thyroid 180mg. Having conflicts with HRT but it's been way worse.
Posted 3/5/2011 12:03 PM (GMT 0)
I don't have that problem but there are quite a few members that do have thyroid issues.  One time I tested positive for hyperthyroidism but then the next time they checked, I was fine.  My doctor watches that carefully.  So, no, you are not alone.

 

Sherrine

Posted 3/5/2011 5:40 PM (GMT 0)
You are definitely not alone. I was dx with Hasimoto's at 18, been on Synthroid ever since. I can say that my thyroid levels and FM pain don't particularly seem to go together. One can be 'great' and the other horrific, sometimes they are both bad, sometimes both as good as its gonna get.

I did find that the latest upage of my synthroid has help with my weight a little, but its also making me HOT all the time. I've spent the whole winter in NJ in T-shirts.

I hope you can find a good combination that will work for you!
Posted 3/6/2011 5:31 AM (GMT 0)
luv2ride,

What is T4?

Debbie
Posted 3/6/2011 6:22 AM (GMT 0)
thyroid function normal, awaiting bloods on pmr and ffibro. mon afternoon i see the qwack. will advise. jamie
Posted 3/6/2011 5:29 PM (GMT 0)
I too am hypothyroid for years and years and years and every so often, my TSH level goes way off, like off the charts high and they have to adjust my medication. During those times, my FM gets awful. Since we have flares, it takes me a while to figure out that it might be my thyroid. So many of the symptoms of both are the same, muscle pain, fatigue, etc, etc. My TSH and T4 have been normal now for about two years but I still deal with the symptoms of FM, it has never gone away. Has it gotten better? Hard to say. Just during the times my thyroid is off, it gets much worse...hope this makes sense

Miriam

Posted 3/6/2011 5:50 PM (GMT 0)
T4 is the most commonly replaced thyroid hormone.. it's in the Synthroid, levothyroxine, levothyroid, etc... it only has the T4 portion of the thyroid hormone (stored form) that is then converted to T3 (usable form) in your body.

Armour thyroid and Nature-throid and Westhroid and Erfal thyroid have T1, T2, T3 and T4 in them, derived from porcine thyroid glands.

Some cannot process the T4 effectively to the T3 usable form. I'm one of those, so I take a replacement that has the T3 in it. The T4 only did NOTHING for me except make me feel awful. Once I got on T3 replacement (Armour - which actually is the T1, T2, T3, T4), I felt so much better. Some drs put patients on T4 plus add Cytomel (T3). That way the dr can calibrate the T3 and T4 separately to suit each patient's needs. The ratio of T4 to T3 is fixed in Armour thyroid so it's more difficult to adjust each segment individually.
Posted 3/6/2011 7:04 PM (GMT 0)
Hmmm....thanks. Food for thought.
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