HealingWell
Search Close Search
☰

Ready to Cry.....

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/30/2011 5:02 PM (GMT 0)

This is my first time in a forum.  After reading all that you all have been through I feel like a wimp.  Of course my husband would say I was LOL.  I was diagnosed tentatively in mid September last year.  I went on a trip with my husband and we were rear ended on I-5 in Seattle on October 2nd.  On October 4th I met my rheumetologist and he confirmed my diagnosis...... I had been actively searching for a diagnosis for three years, and silently suffering for five.

Anyway, I feel like crying.  My legs hurt so bad today I find it difficult to walk or stand for very long.  My skin on my legs feels like it is on fire, but I have to work. So here I am at work trying to hide just how bad I feel.  Does anyone have suggestions on how to get through this flare.  I know I don't have a myraid of conditions like the rest of you have, but I hurt and hope that someone can throw me a line cause I am sinking fast.

Posted 3/30/2011 5:26 PM (GMT 0)
Hi Love My Dogs,

I love dogs too. I would love to welcome you to the HealingWell Fibromyalgia forum. I am so glad that you have joined us.

It sounds like your pain is just as relavent as anybody elses. Yes, some of us do have more illnesses, but fibromyalgia is enough. I am sorry that you are suffering so. All I can say is take it one day at a time. Heat really helps, so when you get home, use heat to feel better. I have a bed buddy that I heat up and put around my neck. I got it at Walmarts in the pharmacy area. It is a tube full of rice. You can heat it up in the microwave. It puts moist heat to your shoulders and neck and that helps us relax. Relaxing helps to relieve some of the pain.

If you get a chance, check out the thread called "fibro 101". It is the first thread on the forum. It has a lot of wonderful information on it. And will answer a lot of questions that you may have. And of course, post if you need some answers of any sort.

I hope that you have a wonderful painfree day.

Hugs, Karen
Posted 3/30/2011 9:12 PM (GMT 0)
Hi, Love My Dogs, and welcome!  I'm glad you joined us!  Trust me, you are not a wimp.  You can't have fibromyalgia and be a wimp.  We are very strong people that live daily with chronic pain.  Wimps can't do that.

 

You have to search to find what helps you be in control of the pain.  I didn't say pain-free, mind you, but in control of it so you can lead your life.  For me ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 have helped me a lot.  I also do daily stretching exercises and also walk daily and swim in the summer, too.  You need to keep moving with fibro or you will be stiff as a board. 

 

I see that Karen directed you to Fibro 101...the first thread on the forum.  Please do read that.  You will learn a lot there.  There are links about the malic acid/magnesium supplements and vitamin D3 there, too.  These have helped me a lot and also other people, too.  They don't help everyone but it might be worth a shot.  Be sure to pass this by your doctor first.  Mine told me they couldn't hurt me at all but he didn't think it would help.  He was wrong!  wink

 

I'm sorry you are having a rough time right now but remember, fibro waxes and wanes.  Your flare will end.  That's what you have to remember.  Take one day at a time.  I hope you start feeling better soon.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear from you soon.

 

Sherrine

Posted 3/30/2011 10:04 PM (GMT 0)
Hi Love my dogs,  I love my dogs too LOL.  6 German Shepherds.  You have found a great forum for support. You're not a wimp at all.  Welcome!!
Posted 3/31/2011 5:50 PM (GMT 0)
Good Morning~

I am also new to this FORUM and must say I am so thrilled that I found this support group; as I really have struggled with FM and CFS probably since I was 16 (when they thought it to be MONO)  remember, the kissing disease?!  LOL

I am 55 yrs. young and have been hit hard with this!!  I work part time and have a sweetheart of a hubby who is beyond sympathetic!

I am so hard on myself like many of us sufferers and need to just ACCEPT this!! 

So now I am sitting here sipping my coffee and reading all your posts which brings me much comfort knowing; I too am NOT LAZY nor a WIMP!  LOL

Why is it we are so dang hard on ourselves?!!  We gotta STOP that!!

I so look forward in checking in daily to read any and all suggestions, self help, positive words to help us all get through this painful disease.

Afterall we all need one another to get make it through our tuff days.

I live in SEATTLE and is there any support groups that meet on a weekly basis?  Also, what meds are ya's taking?  I am on Cymbalta and also Duloxetine for Peripheral Neuropathy. 

I look forward in sharing emails/chats and helping us all help and support each other!!!  Many, Many  Trying to stay POSITIVE!!!

(((((((Hugs))))))),

MoeCat

Posted 3/31/2011 6:24 PM (GMT 0)
hi love my dogs, i love mine also, three gsd, i too am new to this, not in happy mood today, too sore too tired, you know the same old crap. sorry, hope i dont make you feel worse. love to hear from you .
Posted 3/31/2011 9:36 PM (GMT 0)
First: Love your name on here. I love my 4 furbabies so much. I have a yorkie, a pom and 2 long hair chihuahuas. They diff help me with coping.

I too often feel like a wimp. My hubby is great though trying to keep my spirits up. Sometimes I cry silently in bed after he goes to sleep. I really love coming here and seeing I am not alone. Welcome!

Posted 4/1/2011 11:51 PM (GMT 0)
Hi lovemydogs,
I work too,and I understand,nobodyknows how much pain you are having,and they really can't understand.I try to hold off on my pain med until around 1pm ,and then I take one percocet. I never use to take pain med at ,work but it helps me really to function ,and finish the day.I'm not recommending this med for you,but it helps me able to function and walk with a lot less pain. My knees are very bad now ,never had knee pain prior.advil does not touch the pain.Also on a lot vitamin supplements and ribose.Im told ribose helps with fibro,all new to me,including armour thyroid med.feel better, I love my dogs too! I have 3.

Feel better
Sage
Posted 4/2/2011 1:53 AM (GMT 0)
I'm newly diagnosed as well and understand exactly what you are going through. I work as a nurse and some days I am on my feet the whole day, some times for 12 hour shifts. By the end of the day I am in tears by the time I get in the car b/c my legs ache so badly. Those who dont have fibro could never understand the pain that we endure. You are not a wimp.

I recently started a supplement with magnesium and malic acid...hoping it helps. Plan to boost up my vit d3 as well. I do exercise regularly. I find that it def waxes and wanes. And bad weather def doesnt help. Im learning right along with you so if you find out any great info please pass it along and I will do the same. I know diet can play a key role and Im working on learning more about that now. Hang in there and research as much as you can.
Shanna
Posted 4/2/2011 3:28 AM (GMT 0)
You are NOT a wimp--don't ever put yourself down that way. :)

I'm aching like mad today after a trip to Wal-Mart...I don't know how people manage to work with FMS. I really should be adding some Tylenol to my usual meds, but I'll do that in a moment....

I wish I could tell you what to do for your legs, but FMS is so different in people, that it's hard to tell except through trial and error, what works for you. Perhaps the sensation of heat/pain might be relieved with a cool pack somewhat? I say "cool" because ice might be too extreme. My arm and foot pain responds well to cool packs, yet my back, neck, and shoulders would be in agony if I touched them with anything cold. So I put heat on some parts of my body, and cold packs on other parts.

Epsom salt can relieve pain a little, too...a nice bath with epsom salt added might help you feel better. Again, try different things until you find what helps.

Good luck!
Posted 4/2/2011 9:57 PM (GMT 0)
Hi Shanna,

I'm nurse too , I can relate to your pain.I'm keeping on a healthy diet also.We need to take care of our bodies.
Feel better
sage
Posted 4/7/2011 11:31 PM (GMT 0)
Thank you all for your comments.  I do love my dogs I have three chihuahuas.  Pip, Squeak and Burt.  Well I figured out why I hurt so much.  The weather was changing.  Last week we had 80 degree temps in Reno, now we are down to 32.  My husband is wonderful and really tries to take care of me, the problem is I know he is in constant pain too.  He has had three back surgeries and now has a six level fusion, all of his lumbar spine.  It really helps to have people to talk to, so I don't feel so guilty.  My doctor currently has me on neruontin 1800mg per day, tramadol (can't remember the dosage), and flexeril.  I also take wellbuterin for depreassion (16 years now) and levothroxin for hypothyroid and vitamin D.  Today sucks, it has been snowing off and on all day and its just cold.  It really helps to know you all are out there and really understand. 
✚ New Topic ✚ Reply