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Fibromyalgia
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Posted 4/22/2011 10:56 PM (GMT 0)
I have been in horrible pain for a week. A rheumatologist diagnosed me with fibro a few years ago, but after lyrica caused my mental health to become worse - they discharged me from their department saying there was nothing more they can do. I had a PCP through that hospital, but when she left the practice and a new PCP came in they also discharged me saying they will not treat people with chronic pain problems. I took a while but I found a PCP willing to see me. Last weeekend I went to ER at another hospital and they gave me tylenol 3. I went to my PCP on Monday and he just said drink water and rest. Last night was total agony. I spent the night roatating between the tylenol 3 script I got last weekend, advil and regular tylenol but nothing even took the edge off. At 5 AM I either passed out or just fell asleep. Either way by 7:30 AM I was back awake in agony. I called my PCP and went to see him. He told me just rest and drink water. He also told me my pain cannot be that bad because my blood pressure not high also people ache more when they get old. He said he would not give me any more pain pills and just to double one of my psych. meds because it would cause me to pass out. I cannot live like this. It is unbearable. Please give me some ideas as to what to do. Thank you
Posted 4/23/2011 12:25 AM (GMT 0)
Have you thought about going to a pain clinic for your pain issues? Is there one near you? Either that or change doctors. But when you do that, they think you are drug seeking. It is hard to find a doctor that will prescribe pain medications anymore.

Have you tried a bed buddy? They are a tube with rice in it that you can heat up in the microwave and then place around your neck. They help a lot. They relax you and help with the pain.

I just noticed you are new, so I would like to welcome you to the forum. I hope that you find it helpful here. Remember we all are in the same boat as you and have a lot of issues with fibromyalgia, so we do understand.

I walk every day and it really helps me. If you can get out and walk any, do so. Even if it is just a little bit. Even if it is just five minutes. It loosens you up and helps you to feel better and think clearer. Gentle stretching helps also. And your doc is right about the water. Water hydrates the muscles and that helps with pain. Resting is good, but move around some if you can. If you don't, you will be really stiff.

If you get a chance and want to, read the first thread on the forum, called "fibro101". It is full of useful information. I think you will find it quite enjoyable to read.

Take care of yourself. Keep posting.

Hugs, Karen
Posted 4/23/2011 12:47 AM (GMT 0)
Thank you for the welcome :)

I just goolged bed buddy and found a bunch of diffent products. The gloves look interesting. My hands always feel swollen and stiff. I have not been able to cut food for at least a month now.
I have four kids - ages 14yrs, 6yrs (7yrs tomorrow!), 5yrs and 3yrs. So they keep me moving some what. Other adult family members live with my husband, kids and me - they help a little. My husband is curently not working (lay off season :P) He has been a big help this past week
I found another rheumatologist in my area, but she does not take my insurance :( However, someone I know with lupus and raynods recomended her, so I may go anyway
Posted 4/23/2011 12:09 PM (GMT 0)
Hi, Woodanemone, and welcome!  I'm so glad you found us and joined in.  I think you will like it here.

 

Because of your psychological problem, there could be a reason they don't want to give you narcotics....especially with your reaction to Lyrica.   For all of these doctors to say this, there must be a reason.  You should ask what it is.  Perhaps they are concerned that, with your other health issues, addiction would be a big concern.  Trust me, Wood, you don't want to go there (addiction). 

 

I don't use narcotics for my pain.  I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 supplements for my pain and fatigue.  Then I add stretching exercises, walking and/or swimming, and getting gentle massages.  This regimen has worked well for me for a couple of decades.

 

I have the Bed Buddy for the neck and it's the best.  I bought the slippers for my daughter but she only uses them occasionally because you can't walk in them.  If you were going to sit down and watch a movie, then the slippers would be fine.  I don't know a thing about the gloves.  I also have a bed buddy-type thing my massage therapist gave me one year for Christmas.  It covers my shoulder and back like a shawl.  These do help if you are in a lot of pain because they give off moist heat.  Hot showers work great, too.

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information about fibro and you will learn a lot there.  There are links about the vitamins, supplements, and the stretching exercises there also. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.

 

Sherrine

Posted 4/23/2011 1:41 PM (GMT 0)
When it comes to that hospital and narcotics it not just me. I know people who have had back surgery and they refuse to give pain meds. The put some new policy in place like 2yrs ago now? (maybe only 18mths?) That is when I was dropped by the PCP associated with that hospital. I have never seen the whole thing, but from what I have heard from th hospital and others it basicly says no body gets narcotics.
Do you have to worry about the supplements interacting with your other medications? Should I be asking the pharmacy before starting any?
Posted 4/23/2011 5:47 PM (GMT 0)
With vitamin D3, you usually have blood work to see if you are low.  Many of us are.  We use sunscreen and also are indoors too much.  I was very low and my doctor has me taking 5,500 IU a day.  They suggest you should take about 1,000 IU a day for a person that isn't low.  I spoke to my doctor first. 

 

I spoke with my doctor first before I started the malic acid, too.  I explain the whole thing in Fibro 101.  I just think it's wise to bounce things off your doctor before taking.  I know herbs interact with meds.  But these vitamins and supplements are needed by the body.  Malic acid is found in apples but I'd have to eat a bushel daily to get the amount I'm getting in the supplement.  My doctor thought I'd be wasting my money.  So I flat out asked him if they would hurt me and he said no.  I tried them and have gotten a lot of relief from them....and so have others on the forum.

 

Sherrine

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