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Amytripoline your opinions please

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Posted 5/1/2011 4:39 AM (GMT 0)
My rheumy suggested to fami Dr ti put in on Amytripoline in the evening startting with 10 mg and increasing if needed. I find when I take one i sleep but then I take two and I sleep but feel hungover sleepy, I would rather not take any I am already taking zoplicone so I think that is eniugh,
Posted 5/1/2011 6:31 AM (GMT 0)
Hi grandmaroses~

I sure can understand your thoughts on preferring not to take anything for sleep if you don't have to. I tried amytripoline and it didn't nothing for pain so I stopped. Other meds have given me that 'hung over' feeling and it's miserable. For me the trade off wasn't worth it.

My philosophy on taking medications is ... it's my body and if I'm not comfortable taking it then I won't...within reason, of course. I'd prefer not to take insulin but I not about to stop taking that one.

But when my doc tried a different or new medication for fibro I most often will give it a try but if the side effects are horrid and I'm not getting anything for it then I will quit taking it right away. We do have to use some common sense there but for the most part when it comes to medications dealing with pain I feel we have a right and duty to choose what we put into our own bodies.

Hope something in this helps,
Chutz
Posted 5/1/2011 6:07 PM (GMT 0)
I was weining myself off the zopliclone taking half a tablet 4-5 times a week instead of a 1-2 tablets nightly, then went to Rhuem Dr and she wrote my fam Dr a letter saying I would benefit from 1-2 amytrip's nightly so he said why not try it if it may help. I think I've given it lots of time to work 2 months and I don't notice much of a change except I am again taking more zopliclone to sleep. I am extremely sore everyday, people on here talk about flares and working and having a life, well I don't work too much pain to consider this, a life is something I know I'm alive because I hurt so bad. Basically I have been in a (flare) chronic pain state for 3 years with maybe having a few days where the pain was not a 6-8 range. I have tried everything that has been suggested on here as well as by my Drs with one exception I have not done water exercise for 2 reasons 1. is I am too fat to fit into my swim wear 2. is I can not afford to buy swim wear and to go to a public pool. I have been waiting for our weather to warm up so I can have our above ground pool set up but that is cold cold cold water and I can not see that feeling good. Chronic pain and FM is stealing my life and any enjoyment. I am a cranky fat old woman and am at my wits end how to make things better. Please do not kindly suggest I do stretches and get more mobile I just needed to have a vent no replies are necessary. I do stretches and I try to walk daily I hurt darn it and I am sick of it I want it to stop. I will say that mix all my conditions with menopause and I have had alot better days.
Posted 5/1/2011 8:39 PM (GMT 0)
Grandmaroses,

I know how you feel. There are times that exercise would help, but we just can't do it. Allow yourself a day of rest. I think that feeling guilty does us more harm than good. And the stress of all the thinking about what we use to be able to do doesn't help.

I hope that you feel better soon.

Hugs, Karen
Posted 5/1/2011 9:35 PM (GMT 0)
Oh dear Rose,
You mentioned menopause. I was told my my rheumy that going into menopause I would get much worse, but coming out of it, I would get better. Well she was right about going into it. Now that I'm two years beyond it, not sure if I am better. Just wanted to mention to you that menopause can definitely be contributing to your bad flare. Have you talked to anyone about what you are eating? Sometimes things like coffee (decaf and regular) can really aggravate FM, or a high carb diet. I just thought I'd mention that to you...
I hope you feel better soon,
Miriam
Posted 5/2/2011 1:22 AM (GMT 0)
My physician had me try amitriptylene but after a few weeks of literally wanting to sleep around-the-clock she discontinued it. She said sometimes people are sleepy at first, but their bodies adjust. Mine never did (nor did I feel any pain relief while on it.)

As has often been said on this forum, everyone responds differently, so I am all for trying something in case it benefits me -- and even when something doesn't work for me, I'm still always holding out hope that it helps someone else.

We all deserve to catch a break!
Posted 5/2/2011 1:30 AM (GMT 0)
Tried it and finally gave up when my hair was falling out. I was donating it to Locks of Love and
it was NOT a good thing.
Posted 5/2/2011 10:48 PM (GMT 0)
Thx for the replies, I was surprised that Dr said menopause because I thought (hoped) I had gone through this already when I had hysterectomy, but he said I probably went through most of it but this can happen and not to be too upset. I'm not upset I'm sore and nothing is working to relieve the pain. I see a chronic pain Dr in a week maybe he can help?? I'm sorry I sound so whiny or grumpy. I really try to" tone down" before I post because I don't want to offend anyone.
Take care
Rose

PS I can actually spell but for some reason even after reading my post 3-4 times I always find errors?? I blame FM
Posted 5/2/2011 11:12 PM (GMT 0)
Hi grandmaroses,

I don't like to read when someone is in such chronic pain ,because I can really understand.I see a pain management Dr., and it definitely has helped me make it through my days. I wish you luck ,and I hope you get some pain relief.

Sage
Posted 5/3/2011 3:00 AM (GMT 0)
I'm so sorry for how you feel! It's taken me a long time to be brave enough to join this forum and actually respond to people's posts. I have not yet posted anything myself, but I really, really relate to yours.

Don't feel bad about wanting to vent. I think that its important to be able to do this! I don't have anyone close to me that fully understands what we fibromites deal with day to day. Sometimes when I read through here, I cry because I feel like I'm not alone anymore! I don't mean that my family doesn't try to understand. They try. Sorry for rambling!

As for the medicine, I take two 25mg each night around 2-3 hours before going to sleep. I haven't had any side effects but I usually respond opposite to what I should. So...it doesn't make me sleepy at all, but does help me sleep better once I finally do drift off. I'm not sure about whether or not it helps with pain. Every time I think something doesn't help, I take a break from the med and find out it really has helped. That being said, I won't take anything that I'm uncomfortable with either. I quit taking Ambien for my insomnia because it made me feel hung over the next day.

Hope something breaks and you start feeling better! Thanks for letting me vent right along with you.
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