Finally Help

After 20+ years of on and off pain periods which are now more on than off. And countless doctors, not to mention four different pain clinics, I have finally found a pain specialist who understands my needs.

I now receive the proper medication needed to control my pain. I have lived with pain so severe and for so long, I did not remember what life was like without it.

It is wonderful. To have pain that is less than 5 for most of the day, is like being pain free.

Hence I am enjoying a comfort honeymoon. I even cleaned today and for the first time in years, can actually walk without feeling someone is stabbing mer in the but with hot knives (I use a wheelchair).

Maybe the doctors are finally getting it. I know I was surprised to be with one who did not think my problems were emotional and could be fixed by psychiatry, weight loss, accupuncture, etc. These things help but I am one of those fibro folks who need more. Thank goodness I am being helped.

Pain ruled my life I now realize. It affected me far worse than I could admit. Very few people knew how bad it was because I am cheerful by nature. Now, I no longer have to fake feeling fine.

So friends, do not give up. I did not think I would ever be without pain. I figured there were no specialists willing to help. My daughter told me to persevere, so I did. She was right, I did find help.
Donnaeil

Donnaeil, this is wonderful news!  I know how hard you have tried with this illness...all the water aerobics and such.  I bet it is an amazing feeling to be able to do things you didn't think you would ever do again!  I'm very, very happy for you.

 

Sherrine

Thank you Chutz, Sherrine and Achey.

What amazes me the most is how severe my pain was and how much of my life centered around being in pain. For example, I attended a holiday party where I could not bring my wheelchair into the home. I had to walk up 5 cement steps and did not find that a problem. However, since I use my chair so much I forgot how uncomfortable couches and other pieces of sitting furniture was.

So, every single move I made while sitting hurt. Going to the powder room, standing up and sitting down all hurt. All the while, no one knew what I was going through. I was pleasant and cheerful but it was a painful three hours.

I used to be so frustrated because I could not do much housework. Now I wonder how I ever got out of bed.

My pain is severe and the doctors knew that. However, non of them wanted to prescribe what I needed. I know that a few of them did not believe my pain was real. They barely would mention the word fibromyalgia.

I am going through the stages of grief over how I, and others are treated. We suffer so much and for so long. I told the Pain Management team that I was not used to someone actually helping me. They understood.

I do not want to say exactly what I am taking. I will say that I never even imagined having it prescribed for me. I will say it is long acting and I take it 2x per day. Next month they will increase it to three times per day. It is also planned that I will receive an even stronger med in the future when I can afford it.

I would suggest that people look at other forums which focus on pain management and chronic pain. I received good incites from them.

Donnaeil

Thank you Myself.

Donnaeil