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Anyone suffer with raynauds?

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Posted 5/14/2011 11:42 AM (GMT 0)
Mine has gotten worse. The pain in my toes and fingertips can be pretty intense at times. hate to take more medication but is there anything that can help it/
Posted 5/14/2011 2:24 PM (GMT 0)
I started by taking Niacin when I had flare ups but then it stopped working so now I take a low dose of Vasotec.
Posted 5/14/2011 3:55 PM (GMT 0)
Gabapentin will help with the pain of it. My fingers were so sensitive, it was excrutiating for me to hold my toothbrush before Gabapentin (Neurontin). You have to start it slowly but once you get used to it, it's been really good for me. I still have nasty days and times but it's better now than it was. Don't have to wear gloves to grocery shop anymore except some days. I also take the Gabapentin for the tingling/buzzing in my legs.
Posted 5/14/2011 4:03 PM (GMT 0)
thanks for the help. getting ready to buy some gloves.

Are there any side effects from these meds.?
Posted 5/14/2011 4:24 PM (GMT 0)
I just was dx with it.
My toes are so cold sometimes they hurt. I sleep with a heating pad for my feet.
My hands are starting to get cold also. I have to put the in my are pits at times to warm them.
Does anyone find that when they tap their fingernail on anything that it sends pain thru your fingers?
By the end of the day my hands hurt sooo much I can hardly use them for anything.
Is this all normal?
Posted 5/14/2011 4:47 PM (GMT 0)
Hi Sheila, I also have raynauds and have been taking Diltiazem, a calcium channel blocker. It dialates the blood vessels and helps with circulation. I do still have trouble with it, mainly when I'm sitting for long periods of time or sleeping. The pain in my feet sometimes wakes me up and I will get up to massage them. Using a bed buddy does help...and I do wear socks to bed too.

There are some side effects that do come with this type of medication. I've been lucky not to experiance any. The side effects range from rashes to trouble breathing. I take it tp prevent ulcerations.

The fingers and toes are both ver sensitive to pain when the raynauds is flaring..the pain is worse in my feet.

Hope you will find some relief!

Hugs, Robin
Posted 5/14/2011 8:59 PM (GMT 0)
I have raynauds also. My dr. told me that He can put me on a drug that open up the vessels more. I live in Alaska and this is the probably the worse state to live in. I also wear wool socks year around. I try to avoid anything cold to hold. I did lose a partial great toe over this disease. I know it's hard to keep your fingers from the cold. It can be warm and my hands and fingers will just ache and be extremely cold. I get the heating pad and it solves the problem. I carry those hand warmers that you shake to activate.
Posted 5/14/2011 11:32 PM (GMT 0)
I was told by someone who has raynauds that tehy think I have raynauds - but never asked for a drs input. We were out gettign hot drinks over the winter and I said how much pain the cold had caused me. She looked at my hands and saw the fun colors. I know I cannot stand the AC blowing in me in the summer so I stay clear of it - maybe that a tip that can help?
Posted 5/15/2011 12:08 AM (GMT 0)
today my fingernails stayed purple for a very long time. I notice that mine gets worse in the summer time due to the air conditioner. Gonna ask dr. about these meds....thanks!
Posted 5/15/2011 1:04 PM (GMT 0)
Sheila, do you smoke or drink caffeinated drinks? They can cause you to have attacks more frequently. I'm the same with A/C..I have a love/hate relationship with it. I have a deflector on my main wall vent so when I am sitting on the couch, the air doesn't blow directly on me. Same in the car, I try not to have the air blow on me. I also bought a pair of Raynaud's gloves from Theracare and personally, I didn't notice a difference to be honest. I just make sure to wear gloves anytime the temp reaches below 60 degrees.
Posted 5/15/2011 3:10 PM (GMT 0)
I forgot to mention that stress can trigger a raynauds attack. It isn't uncommon for me to be outside in 100 degree temps and have my fingers and toes turn white, blue purple and pink.

Raynauds can sometimes be connected to the autoimmune connective diseases so it is important that your doctor rules those out.

Hugs, Robin
Posted 5/15/2011 8:16 PM (GMT 0)
I don't smoke and only drink 1 to 2 cups of coffee a day. Stopped drinking any soft drinks with caffine cause of the trigger for raynauds. I hate to cut out the coffee but may have to. it is killing my stomach anyway but I am just SO tired all the time. I sure don't want to spend a small fortune on gloves if they don't help that much. I usually just stick my fingers under my armpits when it gets real bad.
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